Thanks Karen x
Good luck Dutchie. It will be interesting to hear how your treatment compares to the UK. Kxx
Hi Dutchie welcome aboard
Just checking in!
Day 6 of FEC-T Cycle #2 and all’s well.
I still feel exactly the same as I did before any poison. Only balder. And fatter. So, I guess not the same at all then? But nothing bad, and that’s good. I had swollen ankles a couple of days last week and I’ve put on 2kg. The nurses told me it’s water retention but it’s not. It’s ice cream retention, I can’t get it down me quick enough. Solero exotics. Farmfoods bargain choc ices. Ben & Jerry peanut butter on offer in Morrisons. Lidl Madagscan vanilla. The ultimate - Mackies Scottish dairy vanilla.
I’ve had a couple of short and disturbed nights’ sleep, but hasn’t everyone? It could be the post-poison steroids but the heat is not helping.
I’m managing to do as many steps as before, 20k on Sunday, 10k before work this morning with the dog. I’m working 9-5 - what a way to make a living! - five days a week (poison day excepted). Not enough though to cancel all that bloody ice cream. I’m going to freeze my gym membership and subscribe to Les Mills On Demand at home on the telly. When it cools down!
My head is not totally bald yet, it’s covered in ‘bum fluff’, still holding on to some of it. I haven’t plucked up courage to go naked at home when anyone is in, I’m just not ready yet. I’m wearing scarves and bandanas and my head is boiling.
I’m trying not to tempt fate by thinking this is going okay so far. I know it’s a fragile thread and can snap at any time and I’m only just into the second cycle. However, the nurses called me yesterday to see how I was after the weekend and they said they didn’t know who was more surprised by how well I’m doing, them or me. I have, obviously, had the same thought as others - does this mean it’s not working? The loss of my hair is showing something’s working though. I hope.
I can see varying degrees of SE’s being experienced by you all. I hope you’re all doing okay.
We can do this.
Willie xx
Hi willie
Just wanted to say that I love you’re writing style. You always make me chuckle.
Have you thought about writing a blog…? Just a thought.
Keep cool ladies and drink plenty of water.
Sue xx
Hi everyone
I’m glad to see that most are experiencing minimal side effects! I’m different to you ladies as I’m on TCHP and OMG it has hit me like a ton of bricks! I slept all weekend and then have not been off the toilet since and on a positive have lost 7lb this week!!!
FEC-T was kind to me so whilst you all feel able to do things I would encourage you to do it but listen to you bodies as the T side is not so kind!
I’m having T at moment and my mouth feels like someone else’s! I have lost taste and due to soreness I have reverted to being a baby and currently living on mushed up food such as mashed potatoes and beans followed by ice cream!
The weather is not helping and whilst I shouldn’t complaint about our glorious british summer I wish at the moment it would FEC down a bit so I can sleep at night lol
Hair is still on head but know within next week or so it will slowly depart but as I always look for the positive at least I don’t need to worry about my legs or bikini line!
Take care ladies Love Colista xx
Hello everyone I never thought I had be back here again. ???Less than 2 years after TNBC diagnosis, surgery, FECT 6 cycles + 4 weeks radiotherapy. A routine check in June this year picked up TNBC with lymph nodes mets was back ?I started Carboplatin today. I feel rough any tips. ?
Hey Ru
Sorry to hear your back on chemo like you 2 years out from tnbc And now I’m triple positive with lymph nodes involved ! I’m on carbo but also on 3 others so don’t know which one is giving me the side effects! Just listen to your body and rest when you can xx
Hi Ru
That’s awful to hear! Really hope you feel better soon. X
Hello Warcol thank you. When I was On FECT, the last 3 cycles of the T affected me mouth sores, thrush you name it, but it resolves as soon as you finish. Resting in this heat is tough. I managed a jog this morning when it was cooler. I will take each day as it comes All the best x
Hie Beckett thank you I hope so too. How are you I hope the bloatedness has subsided.xx
Hello lovely Ladies,
Welcome to Dutchie and Ru, nice to see Willie back, Ice cream retention made me giggle !
Ru sorry to hear you are back again on this merry go round of treatment 
, life is so unfair when you have been through this already.
Vey hard day or two just slept for a full near on 24 hours after steroids stopped and felt the worst yet. Legs in pain again and feeling on another planet , quite faint and sicky with that horrible taste in my mouth as when the chemo first goes in again ?
Have taken some Clarityn and it’s helping but hoping it will pass quickly… under pressure as booked my bloody cruise for Sunday now ?. I am going regardless but have decided maybe I was a bit over ambitious if I dont feel better soon. That’ll teach me ?..
Now half bald and just want a smooth bald head all over it looks scruffy and I hate it.
Sorry to moan when we are all in this but having a , pee’d off , hot , sicky , anti half baldie kinda day. To be fair I have lost 7kg without trying over the two cycles, eating less and no gin I reckon ??. Look for the upside I guess.
Best wishes
Karen
X
Hi Karen,
Sending hugs and hope you improve for your trip! I’ve had 2 days in Scotland with my brother and his family. Heading back to Manchester now and hoping for 2 good weeks before next cycle.
Hope everyone else is good today .
Becky x
It’s been a wee while so I thought I’d drop by again and wave hello to all you July ladies, keep it up girls, it’s a means to an end and doesn’t last forever, at least that’s what I’m telling myself and I haven’t even started yet! All systems go day for me is 1st Aug so I guess I’ll be lurking on the next thread too…
So, yesterday was the pre chemo talk & tour, thankfully no surprises as I was wary of an ‘omg I hadn’t thought of that’ moment, lots of light reading to take home to while away an hour or three though haha. The chemo nurse was lovely and was able to reassure me about a couple of the possible se’s I was concerned about - thanks to a careless driver I currently have a stoma caused by constipation arising from complications so reading that constipation could occur had me a little bit frazzled not to mention the other end of the scale, believe me having the trots when you poo into a bag is not delightful!!! The nurse reassured me that they were aware and could give me ‘stuff’ in advance to combat either, phew! Now that concern has been alleviated I can just relax and go with the flow ?
Ta for the travel insurance info Karen942, no1 daughter wants to take me to Morocco next year for my birthday so it’s good to know it won’t break the bank ? Sorry to hear your 50th wasn’t a big affair but 60 is the new 50 doncha know so get planning hehe
I’m glad my daughters are all grown up now (youngest was 21on Tues) and seem to be taking everything in their stride but I have to say that the comments from those of you with younger children make me feel that they are a testament to their mums and you should all be very proud of your youngsters ?
35 degrees today and my hair has been wet for most of it, I’m “almost” looking forward to having a cooler head; online purchases have been turning up so I have a variety of pretty headgear sitting on the side, I’m fairly sure I’ll come to loathe them!
Dutchie I hope your first treatment went ok, did you try the cold cap? How was it?
Ice cream retention? I’m using that at work tomorrow lol. Mind you it’s so bloomin’ hot out there it’s a race to eat it before it’s just a creamy puddle in my lap, albeit an enjoyable race haha.
Working/driving after treatment, coping with fatigue and other se’s… all tips gratefully received cos I’m planning to take as little time off as possible (I only get paid when I work unfortunately). …and obviously I’d like things to remain as normal as I can, I know I know, optimistic right?
I talk a lot, seems that doesn’t change when I type lol.
Keep cool ladies, I’ll check in again after my first round altho it’s possible <sarcastic voice> that I may not be so chipper next time ?
Fran x
Ps sorry for waffling on a bit
Thanks Becky, feeling a bit better already. Hope you had a lovely time in Scotland ?. X
Hi Fran,
We must st have been typing at the same time…
Pleased your chemo workshop was able to reassure you on some of the issues you were worried about and you are all set ready for your first step to getting your treatment ??.
Karen
X
Well never thought I would be typing this but I can’t wait to be bald- hair is driving me crackers. Shaved to a grade 2 a fortnight ago as was losing it and wanted to avoid clumps on plug hole scenario- now have action man type fuzz with bald patches. Still shedding but cos it’s so short it’s spiky and uncomfortable when it drops + I leave a trail where ever I go. I’m day 10 after 2nd FEC so thought it would have gone by now. I know I am on a slightly lower dose of E as I am having 8 cycles rather than 6 but still…
Apart from that moan ( and heat/tiredness) not actually feeling too bad. Have my suspicions that T may be harder but will worry about that in September.
Love to all
Lal.
Lal??moan away darling 
The moth eaten teddy bear look that we’ve all had if not cold capping is just another part of this journey. Glad you’ve taken control with having a buzz cut ?? don’t worry about t, everyone is different, will tell you to paint fingernails black while on t, it’ll help protect from uv light. Please all be vigilant on each infusion of t, if you suddenly go hot and chest tightens, shout the nurses, they’ll stop infusion and put another back of something on to stop the reaction, John st wanted you all to know so you keep safe Your onc might suggest Abraxane or back to fec if it happens. Beckett, the bloating after steroids is a fine balance of taking laxatives about 4 days after you start your steroids, it could help if you get botty back up. Keep ???ladies you are doing great ??
shi xx
Georgie gee ???to you darling, keep ???we are all here to ?do as your team tell you, if the antisickness meds don’t work, ring the rapid response number, if you feel funny but no temperature phone rapid response the main thing to remember is to keep safe on the chemo journey and you can and will ?:female_sign:?:female_sign:?:female_sign:Kick it’s butt beautiful ??shi xx
Hi Georgie Gee, good luck for next week, here’s hoping it’s not too horrific! See you on the next thread ?
Keep strong everyone ??? this too shall pass!
Fran x