Hi Jo. The soreness is a sign of shedding I’m afraid. Try some paracetamol or ibuprofen to relieve the pain. The day I lost a load on the shower I decided to shave the rest. I have had 3 cycles and there is still a bit of stubble. If you have a look at the June thread you will see our rogue’s gallery!!
Thanks cdc
How long do you have the steriods for? I have them the day of my treatment and 2 days after. Stopped crying now but i haven’t bounced back like i did with the first round.
Well, onwards and upwards!
B
Xx
Hello B, I’m also a June chemo starter and like many others always have a downer when I come of the steroids. Lots of tears and negativity which is hard to deal with but it does pass again after a couple of days, although the hubby usually pays the price at the time! I am on cycle 4 (my first T after 3 x FEC) and the steroids have been increased, 8 a day for three days (starting day before chemo) and then 4 a day for three days but some hospitals don’t seem to give the extra ones? So who knows what will happen when all that lot comes out of my system and it is effecting my sleeping but the nurse said next cycle I can play around a bit with the coming off and ween them out slower if needs be. Hang in there, the days do pick up again, thats what gets me though… big hugs
Hi kip, we didn’t use the lush shampoo till we’d finished treatments, just check with your team it’s ok to use darling just to be on safe side. Also we rubbed Jamaican black castor oil on our bonces too after treatment finished and that helped with hair regrowrh too, again please check with your team it’s ok to use 
???Shi xx
Hi ladies,
Def feel like I’m coming out of the otherside of round 2. That said, I have a feeling like something is stuck in my throat and mouth ulcers. My temp is ok. Should I be worried about the throat thing? I can swallow just feels like when you have eaten too fast and it gets stuck!
Becky x
Hi Becky,
I have the throat thing too , 8 days into cycle three of FEC so maybe it is a side effect. My neck feels swollen too but it isn’t to look at , I am going to mention it at the next appointment as had it before. I take a clarityn a day as think it might be an allergic reaction ?♀️.
This cycle wiped me out even on the steroids slept for days 2-5 , couldn’t function at all so maybe a tweak is required. Changing to T now anyway so will see what joys that brings. Tempted to do the fasting , willing to try anything to help this treatment pass more easily…
Hope you are ok , heading for the good weeks now thank goodness?.
Hope you enjoyed Liverpool , my home town , such a lovely vibe for a night out isn’t it.
Best wishes
Karen
Ladies, I’d ring your units just to check it’s not oral thrush or something just to be on the safe side, they may give you some fluconzole or difflam, please keep safe, you don’t always get a temperature when things are going on so rapid response line always 1st port of call, they would rather you ring and keep safe ??Shi xx
Morning
Yes, I phoned yesterday and they think, as do I, that it’s thrush so off to the drs this morning. Xx
Hi Becky. I get the stuck in the throat thing too. To the point where I can barely swallow. I mentioned it to my oncologist last week and he gave me Omeprazole, which is for indigestion I think. I’ve had 3 x FEC. First T on Wednesday. Kx
Thanks ktk.
Got a drs apt later. May be I’ll lose some weight! Ha
Becky x
Hi ladies im from june chemo, and on cycke 4 of 6. Ive had terrible oral thrush this cycle and ulcers and slimy tongue, definitely speak to helpline/gp early on to get somethingn for it as i think i let it get bad before i did and paid the price.
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Well I have now discovered the downside of having chemo at home. Had 4th FEC yesterday but nurse couldn’t canulate me - mainly cos she was avoiding vein used on last three cycles as that is giving me pain. Their protocol is that after three attempts they have to "phone a friend ’ to do it but no friends in the area. She had to leave me and come back at 3pm with another nurse who took 2 attempts and ended using sane vein but further up arm away from pain so fingers crossed it doesn’t make things worse.
Upshot is that I will probably have a port for the T part - just trying to sort it out.
Slightly amazed that even though I didn’t get my steroids until 3.30pm I managed 4 hrs sleep normally only get that when I take them at noon- though one of my nurses has recommended taking nytol ( or boots cheaper equivilient) so don’t know whether that is actually helping - could be all on the mind but I don’t care.
Hoping to get away for long weekend in cornwall on my good weekend before the dreaded T starts- really want to see the sea as rather landlocked in Bucks. Now cant book it yet until I find out about port fitting - nurse says they prefer to do it on 3rd week of cycle when bloods are back up.
Grumbles over- apart from what I am calling the s**t week after chemo I haven’t felt too bad ( apart from arm and being more tired after 3rd cycle)
Debuted my wig at nieces wedding - first time wearing it in public- now wear it more often as I am more used to it - and I managed to stay at the wedding until 9.3pm.
Have also found myself slightly addicted to cheese and marmite biscuits ( apologies to marmite haters) went to a food fair at weekend and they are amongst the many indulgent food items we bought - won’t be going on the scales for a while. Have found a recipe on line and persuaded daughter to make me some- cant wait!
How is everyone faring - anyone hit T yet? Have to say I don’t like the list of SE’s my medical people keep telling me even they say ’ you might get…’
Take care all
Lal
Hi Lal, Im from June chemo thread and have had 1 x T so far (having had 3 x FEC) and have to say the side effects are very different . I have had no sickness (which is good) but have had a horrible mouth for ages, tastes and feels slimy and most food tastes like carpet! Even marmite… boo hoo… and I’m a lover. Another common SE seems to be bone pain, sometimes severe, although I haven’t suffered with that … yet.! Also constipation (seems to be caused by the extra steroids you get given) and/or diarrohear or asit is referred to “the T Trots” - again I haven’t had that yet. Your fingernails/toenails can hurt to, like they’ve been jammed in a car door and you can get tingling pins and needles in them… mine is minimal at present and I am day 18 of cycle 2. Other than that I feel pretty good this week, despite a stay in hospital last week due to neutropenia. I would say overall the side effects are not worse but definately different than FEC although as usual everyone is different and as always they do pass. Oh and a bonus… my hair is growing back now FEC finished… although have discovered hair growing on my toes too… grrrrr
Kip xx
Thanks Kip, like to be prepared with relevant medication if I can- already have stuff for constipation, diaroheaa, mouth ulcers and plenty of painkillers - used in varing degrees on FEC so hopefully should be good to go!
Disappointed to hear marmite may be come absent from my life.
Does the fuzzy head feeling go - bit I have hated most on FEC.
Lal
Hi I agree with Kip. My first T last week. Initially I was fine, no hangover or nausea symptoms, so first couple of days ok. However I have been far more fatigued this time. Everything is an effort. Even a short trip out means straight home to bed. I had constipation for a week then diarrhoea , oh joy! However, I have slept more and am beginto feel better. Less indigestion, but fuzzy mouth and no taste so little appetite!
It is worth remembering that it affects everyone differently and Kip’s and my experiences may be very different from yours. Kxx
Hi all,
Hope we are doing ok. I’ve finished the first lot of of drugs and begin the next weekly on the 21st. Not sure how I’ll be but only way is forward! I couldn’t stand the cold cap this time so I need to embrace the baldness!
Starting to worry over the surgery now as that is moving ever closer.
B xx
Has anyone sufferred with aching back? Top, shoulders? I know it could be the injections but worried it might be a sign that the bugger has spread
B x
Hi Beckett 
Try Epsom salt baths, a lot of us had Epsom salt baths to help with aches and pains on the chemo journey ??but also mention it to your onc at your next appointment, they will be able to reassure you about everything ??keep ???you are doing amazing ??Shi xx
Ok. Thanks. I will x
Turns out that I have bronchitis, hence the back pain