@emsj I’m getting dull pains in my legs at night, could that be the filgrastim? I’m trying to think about all the white blood cells being made but that’s not doing much for my sleep… I’m not sure the dog snoring helps either. Last injection tonight, I’m hoping it will ease after that.
@Emvers
I think it could be the filgrastim, my legs were very achy initially but it’s worn off now, still got 1 more injection to do. Or I stopped noticing because the diarrhoea was so bad ??. My sleep has been bad too, i do sleep but keep waking up from thirst or some discomfort every couple of hours. Any chance you can nap in the day?
nurse said its the bigger bones like thigh bones that you are more likely to feel it in and I just assumed it meant it was working too.
I’m making a list for when I see the dr of everything to see if I can keep side effects more under control as I had to have my magnesium levels checked yesterday….
X
Hair started dropping out yesterday , as in hand fulls , so pleased it was cut shorter day before. Had a wobble but my daughter saved the day by her humour. " mum does that mean I can have all your hair care stuff , as you won’t need your ghds" just a note I don’t do cheap hair care stuff lol. Head band on today so my food and drinks don’t have floating hair in it .
The injections in the tummy I feel gave me indigestion and dizzy spells as when they stopped those symptoms eased or stopped. Ordered some free gift boxes as I told myself I deserve them Little lift box and cancer support UK. Bit of a pamper pack again. Determined to rock this .
Hi All, I hope everyone is doing okay.
I had my first chemotherapy yesterday, EC. So far I’m feeling okay, just a little bit of nausea and heartburn.
I gave the cold cap a go, it was much more doable than I expected, so I will keep in with it and see how it goes. I have bought some head coverings just in case.
Now the fear of the unknown is out of the way, I am feeling much better, now just waiting to see how this next week goes.
sending lots of love and best wishes to everyone on this journey.
Niki x
@Kneezee ,that’s interesting about the filgristam, just took last one today for this cycle. Did you take anything for the indigestion? Love the little pamper idea. I will have a look, thanks.
@NikiR crossing my fingers for you for this week. One down.
love to you all x
@emsj I took gaviscon first but that just seemed to keep it down and not much better. The chemo nurse told me rennies are best . They definitely helped. A day or so after 7th injection , headache had near enough gone and indigestion stopped. Its now day 15 and only symptoms are hair loss and can go to sleep at drop of hat. Taste all good again. Again only on infection time cups of tea tasted odd and I craved orange orange juice, orange squash and orange jelly.
Thanks for the update, @NikiR . Hope you continue to do okay. What about your first round, @Pajr1 ? How are you doing?
My hair is also starting to go. I visit my brother and his family in 2 days. My niece is going to buzz it down. I hope it can stay on my head until then! I know the science behind the loss, but it’s still tough to think of it gone!
I’m past the extreme fatigue and weird guts, but I still am struggling with a headache and just feel dry, in my nose and eyes, especially. I keep hydrating, but that doesn’t seem to make a lot of difference. I fear it’s the Herceptin, which I’ll take for a year.
I was glad to hear others are hungry. I feel like I have eaten a ton! Stress, maybe, but also surprise because things taste good!
And now that I’m feeling mostly normal, I picked up my meds for the next round…
So I’m really struggling today, been awake most of the night pooping…bad diarrhoea, now all bits down there are so sore it hurts so much. To pee or Pooh.
still feel giddy and weak, it was a week yesterday and I’m already fed up with this…?
Chemo cancelled again. Blood tests were delayed so my doc didn’t want to start without all the info. Very frustrating as ai just called his office and the results are now on the system - I should have started my 1st cycle at 11am today but I have to wait for my appointment with him nxt Tuesday.
hi, sorry you’re feeling so poorly. Do call the number they have given you as maybe there is something can be adjusted?
I also had bad diarrhoea, now got sore bits ?, and I had very very bad stomach pain, so much so I couldn’t do one of the filgrastim injections.
I’m day 10, much better today, still not normal, but a massive difference from Sunday.
Hang in there, but definitely call the nurse
xxx
Paulypops67 
do please ring your rapid response number and check with your team to ensure all ok and no infection please let us know how you get on ??
Shi xx
@Paulypops67 sorry you’re struggling today, really take it easy. I’ve just rung the acute line (again) and they were lovely. We’re all new to this and it’s a massive amount to manage isn’t it? I was feeling a bit better and have totally overdone it today by walking too far (not very far…) and talking to people (which is now exhausting) and am completely wiped out and feeling woozy again. I’m just not used to not being able to do things. The nurse did say that you sometimes get a dip in energy at a week. Hope it all starts getting a bit better but do phone them, that’s what they are there for a this is all v new xx
@Pajr1 , so sorry for the delay again. This must be very frustrating for you. Are you taking time off of work for this?
@Paulypops67 @emsj So sorry for all of you dealing with diarrhea! That’s so annoying and fatiguing. I hope Immodium helps or the on-call people have advice.
I have some other digestive issues that occasionally flare. Aquaphor is a nice protective coating to apply to sore areas and maybe vaseline. Sometimes I do liquids only, like broth, sports drinks, tea, etc. to try to rest my guts but still get calories. You can buy some of those sports drinks with protein.
I hope things improve soon!
I don’t work at the moment but school breaks up today. I had hoped to have one cycle out of the way whilst they were out of the house. I didn’t want them to see me being really ill.
@Pajr1 I know what you mean about the school holidays. I’ve tried to book the kids in for a few things, but I worry it’s going to be a real crap holidays for them, as I don’t even know how well I’ll feel to take them to places. I thought I was managing the nausea, etc. but Friday/Saturday after my treatment on Tuesday days, I felt like I’d been hit by a bus. Everything ached and I couldn’t manage much at all ?. It was better by Sunday, so think it was maybe the injections? I think this will be time to call in those people offering help and favours! I hope you have support around you for this too as it’s an extra mental load with the kids isn’t it?
I was due to have my second dose on Tuesday but they wouldn’t give it to me as I told them I had become hot in the face and had a temperature the morning after my first dose (advised to go to a&e at the time but they found no indication of an infection). They think it may have been a delayed allergic reaction to the chemo and I’ve got to speak to a consultant to make a plan. They say it might be that I have to have the slow drip treatment, so long days and no cold cap. The cold cap had seemed to work really well, so that’s disappointing but just have to embrace the hair loss and realise it’s better than not having the treatment. Hopefully I’ll find a rhythm with it all soon and have decided to try and enjoy this week without side effects and hoe I can dive back into the treatment next week ???
I hope everyone else is adjusting ok to their new ‘norms’ ?
Hey fellow warriors, sending you all a gentle hug, this chemo thing sucks!
I’m now on day 8 of my first cycle, and although it wasn’t pleasant, I was managing OK - until the evening of day 6.
My temp started to go up and at 5am was 38.1 so I rang the chemo line and was sent straight to A&E. The frontline staff were incredibly rude and kept telling me it was at least a 6 hour wait, but when I finally got through to them that it was urgent they took some bloods and set me up an IV of strong antibiotics.
I’m finally home a day later with more meds and extra Filgastrim jabs as my neutrophils are way down at 0.3. Now petrified to be in contact with anyone!
- Today was the day the trimmers were handed to my best friend and no.2 all over. Since Monday the hair loss been getting bigger clumps so from about day 14 or 15 it’s been coming out . Got wig from amazon for £26 , my friend tidied it up and shortened fringe but I’m really impressed. The one I looked at in hairdressers was £355 . I did have voucher but still couldn’t warrant spending that on a wig . Pictures are in order from Monday to wig today 



Sorry .here’s pictures
Hi Kneezee, I’m a July starter too, I have been reading the threads until now but had to sign up just to say you look amazing❤️. I had my 2nd session yesterday with a cold cap but my head is still very tingly. You have given me a lift seeing you look so great. Isn’t it weird what we fear?xx
Kneezee fabulous inspirational sharing your photos will help so many who use the forum thank you ??Shi xx