I wasn’t told my stage and looked it up on the [NHS predict tool] my outcome (Predict Breast) and Dr Liz O’Riordan recommends this Komen website for staging at she stated that hers had been downgraded since she was diagnosed.
Hope this helps if you want to know 
I need a nap most days
I am working / dealing with teens but it’s getting harder and I finished chemo
Hmmm
Yes I think most of us aren’t told & wish I hadn’t looked
I also started asking chat gpt what 3.2cm was in a fruit comparison (cherry apparently)
Think I need to stop scrolling lol
Hope everyone is doing ok. I had my 2nd docetaxel last week and I was thinking it wasn’t as bad as the first dose and then had my birthday on Wednesday and woke up feeling very grotty and couldn’t get off the sofa all day. Feel like I’m over the worst of it now though. Last dose on the 23rd. I’ve got an apt to talk about radiotherapy next Wednesday. My last apt was meant to be with an Oncologist but they didn’t have any apts available, so they moved me to a nurse and now I’m not seeing the Oncologist anymore. Has anyone else had this? I wanted to discuss hormone treatment as it’s still on my letters, but the Oncologist had said it was probably pointless as I’m TNBC apart from mildly positive for progesterone. Hoping Wednesday isn’t a wasted trip.
I know what you mean. If you do want to know go to trusted sources.
BCN, MacMillan, Cancer Research, Dr Liz O’Riordan, Menopause and Cancer,
I never knew we moved off an onco… guess once I’m firmly on hormone plan I will too?
So far my letters are say onco team (inc my Nov appt) x
I should have seen an Oncologist last time but I think it was a nurse specialist that I had a phone call (was too unwell to go in) with. I’m seeing her next week to talk about radiotherapy. I only know we’re discussing radiotherapy after I received a copy of a letter to my breast surgeon. The nurse is part of the Oncology team but I’d much rather see my Oncologist. I get the feeling I’m seeing her because the Oncologists are really busy and don’t have apts. I don’t like the fact that she’ll (no offence to the nurse) make a decision about medication for me for the next 10yrs. I googled being TNBC and being slightly positive for progesterone, don’t know where I saw it but think it’s only 2% of people, so I’d rather have an Oncologist. I don’t really understand it if I’m honest, so want confidence in who I’m talking to. Suppose I’ll see next Wednesday. Is it me or does it always feel like there’s constantly something else to contend with?!
A stage was never mentioned just primary bc and it was grade 2 in the early days then after lumpectomy on my letters it said grade 3. Xx
Happy birthday for Wednesday. Sorry you’ve felt crap since. Hope you meeting goes well. Tbh my meeting about radiotherapy was with someone who i haven’t met before. She was a constant. Someone rang me yesterday about my phone follow up appointment next wed. The one i didn’t know a thing about! To see if they could change the time. Haven’t a clue what it’s about. Will let you know. Xx
@debi1 ah thank you.
What day is your last chemo? I’m sure you’re slightly ahead of me. Can’t believe that in just over a week and a half, I will have had my last chemo.
I’ve got a follow up with my breast surgeon soon. It was meant to be next week, but got cancelled and now in mid November. Maybe that’s what yours is?
I’ve only seen my oncologist twice, once before treatment & then last week to ‘discuss’ radiotherapy, (ended up discussing more my probs after last chemo) and almost as an aside he said he would refer me on to radiotherapy so really none the wiser yet! Although he did say probably 5 sessions and up to 4 boosts (have no idea what all that means yet) .And he said we would discuss bisphoshonates after radiotherapy finished so I’ve no idea what/when that will be.
Other appointments in between chemos have been telephone ones (& I had to ring up to get them as they didn’t seem to come through automatically) with oncology nurses and TBH have preferred talking with them as they are more approachable than my oncologist. Once when I had a question the nurse couldn’t answer she did ask the oncologist and got back to me later so maybe your nurse will do the same re possible hormone treatment? It is tiring having to push and advocate for oneself all the time, I think NHS resources are so stretched things do slip through the net unfortunately.
So I had my last chemo yesterday!
8 hard sessions.
I thought I’d feel elated. I feel totally numb and devoid of any emotion… do you think this is normal?
I felt/ still feel the same
In fact I was on a downer after
Odd as in thought I would be leaping with joy & glad to see the back of chemo
Hope the last of the side effects is not too brutal
I can’t shake this exhaustion off 
@fluffy888 my last chemo is Friday hun. Yes just a few days before yours i think. @ourkirst i think it’s natural to feel this way. We are all going and have gone through so much. I dont think there is a right or wrong way to feel. Think we are all just exhausted through it all. X
Hi all
Happy sunday!
I survived my first EC chemo with only a bit of anxiety when the first meds started. The 3 days of steroids and daily injections x7 are a pain though. I have felt a bit weird/tired since thursday but overall ok. I am a nurse myself and have injected hundreds of people over the years and stabbing myself in the stomach is a whole different experience 
The EC regime is definitely overwhelming for me more than the weekly taxol. Still cold capping for now.
@cf640 hope your feeling a bit better - the codeine should help you sleep/diarrhoea. Hope it has!
@ldm nice to see your plan of timeline - my planning radio is not till 4 weeks after my chemo finishes but i think this is because it was planned in July! and y chemo is only fortnightly till 21st Nov (if goes to plan) I am going to ask nearer the time.
@idcand49 i was never told my stage but looked it up on breast cancer now and then it came through on my hospital letters from oncologist so mine is T2 N1 not to be confused with the grade 3. Although my BCN told me they dont use the stage as much now. Hope your fatigue starts to lift soon. Maybe i am more rubbish after EC too after 12 taxol who knows! I managed to walk to my sons footie match yesterday but didn’t do much else!
@debi1 good luck for your last chemo xx
@ourkirst congrats - I get so emotional thinking of people finally finishing their treatment.
@olli3 - I’ve been told I am having boosts when i have radio cos of my age (45) - like extra strength boost to hopefully keep any cancer cells away for ever!
@bex1 ah congrats on the shrinkage - I started my EC for four rounds on Thursday and not too bad at all. Still cold capping too so waiting for any hair shedding. When do you finish your chemo? must be around when i do xxx
P.S. Anyone who’s had EC or having - when did the bone pain start from the figrastrim injections if you had any?
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Hi all
Sending big Sunday hugs to you all.
I’ve felt really low this week. I’m usually able to stay quite upbeat but I’m just shattered. Tummy is bad and a got a rash on my face now.
I’ve had 2 surgeries, 3 x EC and 5/9 paclitaxel. I just want the chemo over and done with now.
I’ve started having a nap most days now and am cutting down to 3 days a week at work from this week. Work keeps me from fixating on the treatment etc and is really important to me.
I paint to keep myself balanced but even that’s a chore now!
Just feeling sorry for myself today.
Got a telephone call tomorrow about radiotherapy and a scan on Wednesday so hoping I might get dates for it to give me something to aim towards.
Have a look at my painting if you want to I have a little Etsy shop. https://refashon.etsy.com/
I find this forum a life line thank you ladies for stating your journey it really helps
Sending you huge hugs. It’s so tough and I keep telling myself one day at a time. There is so much to deal with the pain of treatment and the whole mental shift one gets with a diagnosis let alone thinking about the future. I really feel for you.
I’m half way through chemo now. Had more allergic reaction which we think is the Carbo. I’m taking all the medication available for pain and reactions and mainly staying in bed until my legs stop hurting. The heated blanket is a godsend. I’ve got Covid as well which hasn’t been too bad apart from a few sniffles.
Half way scan on 28th and the. Start EC and pembro on 30th. Already hoping the side effects will be less.
Sending you sisterly love.
Massive hugs x
You are very talented. Love your painted glass work the teapot is especially cute! x you are doing so well, nearly through the chemo nowx