Inspirational, beautiful, ???ladies, you are going to be a ???thread like our Oct ? was last year, bum buttering tips with mirrors is meesh’s Speciality if you need them when you get botty back up on the meds. Hang onto each other tight and you’ll be ringing the ? ? before you know it???were all cheering you on ladies and Sunbed’s awaiting in club Tropicana thread for when you’ve completed treatment ???
shi xx
Been awake for a couple of hours. Having to eat crisps at 5am to stave off nausea!!! Anyone else having these issues? Going to try and get back to sleep by listening to some relaxation music. Thankfully I can have a restful day. Hope everyone is fairing ok. I’d take the nausea over the psychological downer of more steroids anyday but I’m finding feeling sick hard going. Hopefully it will subside by next week.
Well second day after chemo. I’ve had a decent night’s sleep and woken with only a slight headache. I’ve not been to the loo yet and mustn’t let constipation build up this time so I’ll up the Macrogol today I think. I start the Filgrastim injections today so will have bone pain in a few days. At least I have some codeine to help this time. All in all I seem to have recovered quicker this time around. I hope it is the same for the rest of you this week xx
Clare do you have some as and when meds for nausea?metoclopramide? I have found that they help a lot. They work on your brain to stop the feeling of sickness. I was awake at 4.30. But that is not unusual as Tom would say! ?
Hi Lisa. Well done. If you scroll down to the bottom of the page and go on the Full version rather than mobile the usual edit features appear when you post. You are looking for the icon with the mountain. It allows you to upload pics from your photos. Can’t wait to see ?
Do you know, the first week was hard, after that easy, and last week I couldn’t get it on quick enough to cool me down after 30c temperatures.
I thought it would be harder cos I get brain freeze easily but after the initial 20 minutes first time it’s been fine. Anyone considering it I’d say definitely persevere.
You both look great. Well done!
Sally I couldn’t work it out either but it just went back to the mobile site after a while!!
Now you’re all wanting me to shave off my bob so that I can post a pic! Though I will have to make peace with my “Prince Charles” ears.
Gorgeous, everyone.
@cdc Ginger biscuits? They worked well for me. My sister also sent Queasy Drops galore – I could shuttle a tin to Highbury if you’re wanting same-day delivery. But gah, can’t remember what you’ve already tried – fecing US military flyover zone here, and lost my train of thought while cursing my country’s president.
(Kudos to the person who used FEC this way below – love it and borrowing. Totally appeals to the New Yorker in me.)
@cdc My chemo nurse suggested I take my Rx for Day 1-3 anti nausea (ondanestron 4mg) breakfast and dinner and my prn anti nausea (domperidone 10mg) at lunch on Days 1-3 as well. Plus a domperidone on Day 0 before dinner (I got my chemo at 3:30pm, so this was on top of the IV anti nausea). It worked well for me.
lol reddi, glad you like my FEC comment. I love father ted and used to say it fecked as they do but it’s a running joke we me and my other half, as when the oncologist say you will be having a high dose of FEC-T the other half just looked at me and me to him and we laughed. Oncologist and breast nurse though we had both cracked up. When we we got out we both said it only fitting the name of it and that I was going to have a big dose of FECT! ? xx
Hi Cdc,
I only had a single but in hindsight a double would possibly have been easier in terms of uniformity.
Glad to hear your BRCA news Clare. Still a big decision with the mx. You need to do what is right for you xx
Morning ladies. Hope you don’t all mind but I’m going to vent about my experience yesterday as I’m still in shock. Would love you opinion/take on this. As I had very little sleep last night and am currently laid in a bubble bath ticking this over and over in my brain. Oncologist yesterday and as usual there was loads there waiting and appointment time came and went which is fine we are all late at time, finally got in and it’s a registrar not my doctor. He is reading my notes as I’m coming in. First thing he ask is about my hysterectomy! WTF!! Said Pardon to him. Assumed he had got my notes mixed up and asked to look at what he was reading. But there at the top was my name and date of birth (panic mode) carried on reading and noticed the date of said planned “hysterectomy”. Explained to the registrar that yet again they had made a very big error! The appointment was for my hystroscope! At least that’s what I know it to be for. His explanation… clerical error because of his accent!! I’m sorry but the clerical errors are calling Ryan my finance instead of my fiancé, or a mistake is when they called him my husband. But not that! Continued to tell him it’s not good enough. As you all know chemo can be a very emotional roller coaster and as a 39 year old woman with no children that has recently under gone fertility drugs to collect eggs and the chemo is going to throw me into early menopause. To be told you have a thick womb lining that needs investigation is bad enough as you think it’s appeared there as well and automatically think cancer! Is it me being to sensitive as it’s my emotional battle or did he severely feck up? Oh and he did tell me that a&e didn’t do my bloods was that they tested half and then it hematised, clotted I presume as cancer blood is stickier. My white blood is low. Go figure! Hours waiting for results for nothing. So in disgust and disbelief I left the hospital without having my bloods for Monday, which when I had calmed down a bit I called to see if they did need some, after a lot of transferring and thinking they said no. Then 5 mins later after put phone down breast care nurse phones to ask me to come in to have bloods done for proceedings on Monday as it’s classed as an operation. Heads spinning as feeling all over the place and like banging my head on brick wall, series of unfortunate events or justified frustration? Xx
Hi all, i thought i had posted yesterdsy but it seems to be missing, loving all the photos, everyone looks fab.
Cdc I hope you’ve controlled the sickness now, i have definitely felt nausea for longer this time around, mouth still feels burnt too. I had horrible morning sickness during pregnancy and my chemo nurse said there is a link.
My chemo brain is a nightmare… keep forgetting words. I’ve still got my head stubble too which seems to be growing… now panicking chemo not working! Underarm hair gone tho.
Dud anyone join Ellie’s Friends? My friend just won a manicure n pedicure!
Kip
Omg Lisa… definite reason for anger! That is terrible just being in that place waiting for any appointment is hard enough without chemo in your system and added worry about fertility. You should complain and ensure you have copies of all notes letters etc. What I have learnt from all this is you do have to keep asking for clarification of things and always have to chase up appointments and procedures which is awful at this time we need someone doing all the decisions and organising for us. If he can’t make himself clearly understood he should be double checking what is said is correct. Poor you… vent away to us and try to unwind in the bubbles
Oh Lisa, what a dreadful experience. Just what you don’t need. Registrars, and dare I say it, none native speakers, are the pits! When I went for my first referral from the gp the registrar said nothing to worry about, go for mammogram and ultrasound then go home. No need to return to clinic, I would get results by post. But no worries. So went for tests. Ultrasonographer did biopsy and said go back down to clinic. I said they had said go home but he insisted! I eventually got back in at 6.30 ( the day before Good Friday ) to be told that he is very sorry but I do have breast cancer and would need a mastectomy. I would be able to talk to a BCN on Tuesday! And I’d get an appointment in a couple of weeks to discuss biopsy results. Luckily I saw a consultant then.
I know that the NHS are in crisis, and I can’t complain about the treatment I have had since, but the added stress such incompetence puts us under is unacceptable.
Lisa I hope you can try to put this behind you and try to enjoy the weekend. I am sure everything will be fine on Monday. Big hugs to you today Kxxx
Thanks Kip. Not sure if it was me over reacting as emotional cos of drugs hair and cancer stuff and it’s my personal battle and so I’m emotional thinking I may never have a biological child. Am already panniced from the referral from fertility to gynecologist for thick womb lining to what they will find. So much so I dreamed last night of having the operation in not so hygienic circumstances and under no anesthesia. Not pleasant. So woke up teary and shaken and out of sorts. Told them they better bloody sort it out as this letter was addressed to my doctor! It’s like going in for a toe nail removal and coming out with your leg chopped off xx
Lisa,
That is really shoddy treatment and you’re are rightly angry. I’d be putting it all in writing to Pals. I’ve found the while process to be a catalogue of errors. If I’d not worked in the NHS previously and been pretty vocal about shoddy treatment I don’t know how long I’d have waited. If you feel the need to kick off and call them all idiots, then do it, do it loudly in the clinic, they’ll soon put things right! It’s also very cathartic to get it off your chest (excuse the pun). At a time when people are feeling very vulnerable it’s wrong that it is basically up to the patient to make sure things are done right.