It’s encouraging to know I’m not the only one Sally! I’m wondering if it’s a form of cystitis or UTI ktk as I read others talking about it on another thread. Some people on chemo seem to get it and have associated pain and some just need to go to the loo all the time or both. I haven’t got the irritation this time but I’ve had it before and it’s horrendous so I feel for you. In the meantime I’m off to buy some cranberry juice as that’s supposed to help. You can also buy over the counter cystitis remedies but I’m not sure about doing that before consulting my onc. It might seem strange but I’m sure I read that Waitrose’s own nappy cream is a wonder cream for relieving irritation and moisturising in general. Might be worth giving it a go. Do hope you can find something to ease your symptoms ktk I’m getting isolated bouts of nausea too and I’m taking the meds as and when. Seems to be helping. Hugs to everyone xx
On cranberry juice: if you can get unsweetened cranberry juice, that is much better. It doesn’t taste nice – I used to dilute it with water – but the amount of sugar in cranberry cocktail juice (what is usually on offer) is like a smorgasbord for bacteria. Doesn’t mean they’ll eat it up, but if they do, it won’t be much help. (I had a run of UTIs in my early 30s, and vividly recall this advice from my doc.)
I’ve never had a UTI in my life (not bad for a 55 year old) so I’m pretty certain mine is just the volume of water I’m drinking. I’d be more worried if I wasn’t peeing loads I’m taking that much in ! 
Thanks for the advice. It isn’t cystitis, more external irritation!! Sudacrem helps a bit!!
Pain on peeing is a symptom. But I imagine being bare down under could make that tender skin irritable, too. If no sign of the other symptoms (NHS has a list at www.nhs.uk/conditions/urinary-tract-infections-utis), then it is probably the body balancing water intake.
I go to the loo all the time – spent 75% of my admission for neutropenia drinking water and shuttling to the toilet.
Oh dear, being sore anywhere down below is awful. I had thrush down below on first cycle, gp prescribed canasten cream and pill, that sorted it out. This time around seems to be ok down there! I wonder if the toxic chemical coming out (both areas down below) can irritate and make it sore? I also find I am constipated for a few days and have to strain (good job we are friends on here isn’t it!! - tmi) and get sore, it usually seems to go once the toxins are through. Feeling good today, only slight metal mouth taste so making the most of this week before cycle 3 begins again next week… Does anyone constantly have dreams about chemo? I always seem to dream about it… can’t escape even in sleep!!!
It’s still soooo hot here at the moment, would love some rain, the garden lawn is all but gone, only the weeds remain steadfast and green.
On another subject entirely but one which I could use some input from people who are not associated with this in the slighest. I have been made aware by my daughter of another girl in her year who is posting very disturbing things on social media… photos of her crying in her room, suicide references, self harming references etc. Other kids are then replying to her, some of which are not nice at all. I am aware that she is moving schools over the summer but don’t know why, just guessing she is having problems there. My daughter doesn’t really know her well and I only slightly know the parents. I have rung the school this moring and am expecting a call back from Safe Guarding officer so that I can make them aware…have I done the right thing? I have battled with this for a week or so and just feel that if she did do something to herself and I had known ( along with several other children on this flippin’ app) I would never live with myself. Any thoughts?
Kip xx
Kip you have very much done the right thing. You’d not be able to live with yourself should anything happend to this girl. I’d probably go further and maybe notify child protection at social services too.
Absolutely the right thing to do Kip, the pressure on youngsters today is awful. Let’s hope the young lady gets the help she needs.
Jacq
Spot on Kip. The school’s safeguarding team should have procedures in place to help straight away. Social media does so much harm in school ?
So got seen in clinic (an hour after my appointment time). I’ll be ok to still have chemo Friday cos I’m on the clexane but she did say I may need to have a picc line which I really don’t want. They also give more risk of further clots and infections so I’ll resist as long as I can.
I mentioned being breathless in the heat ( I’m fine when there is aircon) and she said that is classed as fatigue from the chemo made worse by the heat. Apparently the woman who was there before me complained of the exact same thing
Oh and I went to see the radiologist about the letter for mammogram and scan of breast I’ve not got. They’re looking into who ordered that and why and she confirmed that obviously I don’t need to attend.
Ladies, pee pain/burning per even with no temperature could be a uti, please phone your units, I will as in for 6 days due to uti but no temp. Also botty survival kit is anisol (lots of it) sudocream and baby botty wipes to use after the loo, they will help, sorry if tmi but it’ll help ??
shi xx
Thanks for the support ladies hopefully they will help her,
Thanks cdc for the advice, it must a shame such things exist for our children. One of the sites this child was using is apparently anonymous and she was getting abusive messages on there, I’ve learnt a lot from my daughter about these sites let alone the abbreviated messages they post, it’s an eye opener!
Hi Kip, i am there on 23rd but chemo is 10am so i shud (if all goes well) have left the unit by 2pm but you can never tell. Had chemo today and as soon as got back to sisters had to sit on loo!! Not had that side effect before. Stomach settled down at mo! Yes its tuff going up weekly, no respite from it really but i guess im getting same doesage as others just spread out differently x
Julie, fingers crossed I don’t see you there, otherwise that would be along day for you… althoughy would be nice to see you in the flesh! Is it FEC you are having? Do you get good days SE free during the week, that must be really really tough otherwise? How many are you having?
Lisa Marie, how are you darling??sending 
And ???from here ??shi xx
Hi Kip, no not on Fec yet, thats to come later. 12 weekly Plaxitxal (not sure of spelling) but on weeks 1/4/7/10 i have Carboplatin as well. When these 12 weeks are up (and ive had 5 so far) i switch to FEC which will be 4 lots of 3 weekly, which i may be able to have in Stowmkt if theres a space. Im normally up there between 3-4 hrs at a time so might see you next week!!
HI Juju, wow you certainly have a lot going on… I am having my last FEC on Monday, (1 every three weeks) and its been ok… few days of feeling slightly nausea and a bit of a sore mouth, foggy head but it does pass and then from about day 8-21 feel pretty good, just the hair thing. Do you lose yours on your regime? I will be staring the T part after my Fecs are done, not looking forward to those as have heard they are harsh but then everyone reacts differently don’t they… fingers crossed.
Maybe I’ll see you up there!
Kip
x
Hi ya Kip , yes lose hair on this treatment plan. In fact ive had mine shaved off already as it was coming out in handfuls and was quite distressing. Im wearing scarves and hats at the moment but havent used either of my wigs i bought which is really bizarre! Sat at work with just a bald head the other day as was too hot! Im feeling quite anxious about everything at the moment which isnt helping. Someone else whos going thru this too told me to trust my treatment plan and have patience - thats so true really but im quite impatient and want everything done now!!