@reddi, it’s definitely the small victories that see us through! I bet you felt so much better with clean hair ? Here’s to minimal SE’s and no neutropenia. ?
Jacq x
Hi Kip, hope u feeling ok today. Sounds like you were put through it yesterday up the unit. It does mess with your head alot when things dont go according to plan. I know youve told me already but what is the “T” you refer to, im having plaxitaxol and carboplatin combined so is it a variant of those? I switch to Fec in 7 weeks time so will be taking advice from you regarding that lovely one!! When you up there next for bloods and chemo?
Hi Juju , the T is doxataxal (also called Taxitol) so could be similar to yours? My next appt. Is bloods on 11th Aug at 11.30 I think and then chemo on 13th at 15.00pm, how about you? We can all talk you through FEC lots of experience on here. Let’s hope we meet next time.
So apart from not sleeping well more due to incredible heat than anything feeling ok this morning. Just popped the first pill of this round,. . Here we go again…
Ha ha :smileywink: just 're read my post from yesterday and saw i wrote Roasting hog instead of roasting hot… although I did feel like a roasting hog at the time… Bloomin predictive text
Kip, mite see you on the 11th then as my bloods are 12 30 so if i get there really early we can chat. My chemo is 10am on 13th so shudnt still be in unit by time you get there. BTW how long does the FEC take to do, im normally up there 3-4 hrs depending if its my week for carbo.
Hi Julie, FEC is a saline drip which just feeds through at same time as the chemo and then the FEC itself is fed into cannula or line if u have on. The nurse sits with you feeding it in slowly so can take about hour but mine have taken half hour sometimes, they like to go slowly and will keep stopping to check all ok. If all goes well and no waiting around usually out easily in 2 hours.
Good for you Reddi I seem to be fixated with bad posts and news articles at moment and it’s doing me no good… Must stop!,
Just for info to all if you get a call up for a routine smear test during chemo my onc nurse said do not have it done until well clear of chemo as it .can give a false reading she to the cells looking different and that’s a scare we can all do without isn’t it.
I also checked with her that j don’t need the injections this month as I thought j would be but she confirmed no as my bloods were good last time and they like to give the least drugs you need as they all caused effects so j guess that’s good, just hope next bloods are ok though, always something to worry about hey. So far day 3 of cycle 3 and feeling ok, still on steroids though so watch out for saturday! Hope all are doing ok today, another hot sleepiness night here in Suffolk and roasting already this morning love Kip xx
Morning all.
Is the heat killing anyone else? I’ve hit a complete wall energy wise and it’s a struggle to put one foot in front of the other. Finished the EC last week and starting Taxol next week. I’ve seen posts about having to take more steroids? That’s not going to happen as they send my blood sugars so out of control that I can’t even correct them with loads more insulin. My hair has thinned a bit but most of it is still here so the cold cap has done it’s work so far (plus on really hot days it’s lovely to actually be cool with the cap on). I’ve taken to sleeping with an ice brick wrapped in a tea towel on my head to keep my scalp, and the rest of me, cool. They are saying tonight in london won’t go below 22c so sleep is going to be hard to come by.
Morning all, ? sorry for not posting for a while but been away with the fairies ?♂️ this time around. Had the hystroscope on the Monday which found polyps and the fibroid I knew about already, polyps were removed and a biopsy of my womb lining taken. Antibiotics given for this made me projectile vomit and have diarrhea. Tablets were changed after visit to hospital of Tuesday for physiotherapist. On chemo on Wednesday I nearly tapped out, hot flushes, spaced out, totally not me. On 3rd shot I managed to finish and have been in bed since. Major heartburn, sick, sleeping 23hrs a day, doggy tummy and aching all over. i Still feel like crap and am in bed but at least awake. I look forward to catching up with you all and your journeys as I continue to improve. Bc, early menopause symptoms and chemo plus recovery from minor surgery in this heat is shocking xxx
Reddi,
I’ve been getting a wate spray bottle and spraying cold water on my bed sheet then sleeping on the top of it. It does help, a little
Evening all. I have had a busy couple of days! OH invited the world and his wife for a BBQ on Tuesday. Luckily they didn’t stay too late as they had kids with them. I made extra to take to a friend’s BBQ last night. Also yesterday I went to school to say farewell to members of staff who were leaving. It was the first time most had seen me hairless, so that was quite fun! Then we didn’t get back from I’m the BBQ until 2am!? and it was the first time I have really had a proper drink ?. I slept well and have enjoyed watching OH sufferings today?.
Trying to make the most of the good days before cycle 3 next Wednesday. Btw, my FEC is all delivered in syringes through the pump. Two syringes each, takes about an hour but I need to take the antiemetic horse pill an hour before it starts so I’m there for 2 or 3 hours in total.
Love to all, especially Lisa xx
Morning all, another hot and sticky night here in Suffolk, looking forward to a thunder storm later (hopefuly).
CDC - glad to hear you are doing well and getting out and about and even staying up til 2am… go girl! I think it really does help to keep enjoying the good days, it makes it so much more bearable if you know you still get some life going on between bounts of chemo. I haven’t joined the Friends like me thingy but I have hooked up with a lady I went to school with whom I haven’t spoken to for years and years and found out that she is 18 months post diagnosis with BC! We are now regularly chatting and it does help to speak to someone who has been through all this, she has sent me wondeful photos of her bald, and shaving her head, photos of all her medications and very positive stories about getting through this. It does help having someone who has been there. I am lucky now to have a few people around me who are/have been in this situation - you girls are a lifeline. I haven’t managed to brave going out bald yet but I think I may do if this weather continues, I have walked across the fields with out my hat so I think I may be brave enough. I got my son to measure my spikes on top yesterday, 4mm at longest, bit sparse though, not exactly a head covering, in fact probably only me aware of them but it makes me feel better… so long as FEC doesn’t take them again this time… grrrr.
Good to hear that your lady found T easier, I have heard that too, just have to wait and see and ride it out. Good news is I ticked of another day and not 59 until my last blast.
Take it easy today girls… the weekend is upon us again… Love Kip xx
Good morning ladies
I do look forward to your updates as I tend to steer away from cancer conversation with my nearest and dearest in an attempt at normality!
Looks like the weather will break soon, it has been wonderful but the fields around here are very yellow and a bit sad looking. I don’t know how you cope in cities, it must be so tiring, I feel very lucky to live by the sea, it’s definitely cooler!
I too have avoided going out bald but I did abandon the nylon wig (dead cat) for a lovely lemon chemo scarf for a trip to our local this week. I don’t think anyone had realised I was ill before, they just thought I had a new hairdo! It was ok actually, I was a bit self conscious but it was much more comfortable than the wig. The landlord has promised me a large gin when I can drink again ? #smallvictories
Best wishes to all
Jacq xx
CDC, another couple of antisickness meds if not on your list are akynzeo which you take 1 hour befor Chemo then metoclopromide that they give you to take after, I was on these and no sickness at all and didn’t loose taste or appetite, so just thought I’d mention if you need it 
??
shi xx
CDC, with the akynzeo and then followed by metroclopromide I was off the antisickness meds by the Tuesday and my Chemo days were Thursdays, they are worth asked big about darling, keep ???your team will get right combo for you. Also have you tried antisickness bands? Some ladies from my thread used them very successfully too ??shi xx
CDC, my anti sickness med are 1hr before chemo 125mg and 80mg for the next 2 days after = emend. Metroclopramide 3 x per day 1/2 hour before meals till feel ok not to take them and can be used as an when and also odansetron for first 5 days x 2 per day 8am and 8pm (is when I take them) fingers crossed never been sick with the chemo. Was only actually sick when given and antibiotic after hystroscope that didn’t agree with me, think it was because combined with some form of acid and stomach didn’t like it. Hope this helps with you quest to find your sickness meds that work xxx
I have meds half hour before chemo. Emend, a couple of steroids, a domperidone and ondansetron.
The next day I have emend and ondansetron, steroids.
Day three emend and steroids.
I have domperidone to take as and when but TBH I’ve not finished the pack I was given at the first cycle. I tell them not to give me any now. I have never felt any nausea or sickness at all, probably because I take the stuff for the first couple of days but after that I don’t bother.
I only have one a day of the emend and ondansetron. The domperidone should be 3 x a day when I take it but I don’t need it so don’t bother.
Really helpful to hear what other anti-sickness meds people are taking. Thanks! There are obviously various combinations and it’s just a question of finding the one which works best for me. Xx
Hi all I’ve had the steroids come down today, terrible tears this morning and feeljnf sick yesterday and today although I think it’s abating now and I’ve managed without pills today, now on anti biotics for 10 days as don’t have the jabs this time around. Didnt know hiw to feel this morning just so fed up, feeling better now though thankfully my son was there to pick me up, he really is amazing, he said cancer has made him realise what is important and that tomorrow is never certain so make the most of every day! What a 16 year old!, my daughter just cuddled me too, my OH is always at a loss as to what to say, to be honest there was no right answer just let me cry and vent!, hopefully I’ll pick up from tomorrow. Its rained a lot here today so nice and cool which helps. I also had mega headache in the night, do any of you take paracetamol? I know we have to take temp before hand but can never decide what’s best to do.
Hope you’ve all managed somethjngnnice this weekend. I’ve gotta week off work now but as it’s the week for low bloods not sure where I’ll go but the break is nice!
KIP XX