@ktk I’m obsessed with holidays! We had to cancel one booked for May so I’m currently googling where to go for a short break with a PICC line. I love to swim but it will need to be a different kind of trip this time. Booking an all inclusive in Lanzarote for March and I cannot wait. It’s Good to have something to look forward to. ?
@LJ food prep is definitely the way forward. I follow an LCHF diet so my fridge is very well stocked with eggs, cheese, bacon and cream with some berries and yoghurt thrown in for good measure. Hope you maintain at next weigh-in, that’s a win on chemo I’d say ?
Jacq x
Glad everyone having chemo this week are doing ok, and can that those of you trying are sticking to losing weight, I’m sat here eating haribo tangtastics so not exactly healthy!
Seems we are all worrying about T cycle next, I’d heard head hair can grow back whilst in T, in fact met a lady at chemo who was finishing last T and he’d was coming back? Guess we have to wait n see! Thanks for tip for spare pants!! :smileyfrustrated:
I did brave the scales today and have out on half stone…
As for seeing my onc, they saw me after 1sf fec and said not to come back until after 1st T unless severe problems? Oh well been quite nice not to have appts for a while.
Hope you all get nausea free evening and good sleep Kip
Not the best night’s sleep! Dropped off ok but woke just after midnight and haven’t dropped off again. Cracking headache but no temp so taking painkiller. Although I don’t feel really sick I am having problems swallowing and my mouth is very sore. How are the rest of you? Kxx
Sorry about the sleepless night, awful headache and sore mouth ktk. Did the painkiller s help? I have been using a topical local anaesthetic I got over the counter called Anbesol when my mouth gets really sore. It contains Lidocaine so numbs the area. Onc said it was a good idea if it made eating less painful. I had a massive row with my OH at about midnight so didn’t sleep well. We are not getting any time to ourselves and I’m fed up with hosting! The week before last my Mum was here, last week my stepson came for a week which is fine but then my sister in law and partner wanted to meet up. This Sat my older stepchild is coming for 4 days and next weekend my OH and his sister are taking our daughter on a barge for another 4 days. I suppose I should be pleased but ‘ll be on my own and I just want to spend some quality time with my husband and daughter by ourselves. I’m finding it all overwhelming and feel that we need to recalibrate as our own little family unit. I suppose my SEs can’t be too bad if I’ve got the energy to argue!! . Certainly feel the Emend is working this time round. Spent yesterday between bed and the couch and think it really helped to take things very easy. Feel so much better today so will take my daughter to a holiday club and have an hour or two pottering around the local shops.
Sending everyone hugs and look after yourselves xxx
Hi cdc, oh dear midnight argument isn’t great but I’ve just had 7.30am argument with my OH as I made him breakfast in bed and it wasn’t right. I find myself struggling to explain how I’m feeling sometimes it’s so frustrating being in this BC world when all I want is normality back… it’s always there lurking isn’t it. Being a constant host is tough for you I couldn’t do it, it’s exhausting at the best of times. I usually have OHs cousjn and 3 boys to stay in hols but have managed to get out if it thus timd round. I think what I feel us envy at other people not having to think about BC and having normal lives … I know thats wrong but I do. I watch people walking by and feel envious… That used to be me! It’s a tough old time but we’ll get there… Xxx kip
Hope you don’t mind me saying Kip but I am glad I’m not the only one struggling with emotions and relationships. I’m not proud of how I spoke to my OH but I needed to tell him what was bugging me. I think he’s trying to be helpful by organising things without having to bother me- but it just leads to massive misunderstandings. He’s so stressed with work at the moment which doesn’t help. We don’t ever talk about IT! I have a therapist and some good friends I can talk with but he doesn’t really have many friends. Im hoping he’ll go and get some counselling but I can’t force him. Although we don’t talk about it our lives have to revolve around b****y BC. I thought I was doing pretty well but last nights meltdown shows I need to be more careful about looking after myself and stop trying to act like I’m on top off everything all the time. It is exhausting! I think someone on here mentioned being in a Cancerverse- I feel I’m in another universe for the time being. It’s not all negative and I’m really learning to take pleasure in little things but like you I do find myself feeling envious of others at times.
JaquB Thanks for the heads up about effects of T. Another friend had a similar experience only she was out at the local shops and had to ring a friend to bring her a spare pair! I’m having the opposite problem on AC and Senna is my friend!! I will make sure to pack some undies when I start T in September. It’s great idea to have a holiday to look forward to. Might do the same although I’m not sure when I’ll be having my MX yet.
LJ and Sally How are you getting on?
Sending best wishes to all. Xxx
Sorry to hear you’ve been having sleepless nights ladies, I’ve had two steroid induced insomnia nights this week, which definitely lowers my tolerance level! fortunately I can nap during the day which helps. . CDC1811, Hosting!! I’m in awe, I couldn’t host anyone at the moment, in fact I’ve pulled up the drawbridge and made it clear that I’m not up for visitors, mainly because I haven’t hoovered for weeks! If I’m feeling well I meet up with people out of the house. I’ve learned to just say no, it felt selfish at first, but for me it’s now self preservation. Kip, I know what you mean about being envious of others, I look at people who have obviously not taken care of themselves and they don’t hve cancer? my internal toddler wants to stamp her feet and say not fair!! Ktk I hope your mouth heals soon, it’s a side effect I’ve not experienced but I’m sure it must be horrible, does it heal between chemo doses?
Love and best wishes to all
Jacq xx
Sorry to hear about the arguments ladies. I have snapped at OH and my kids, but no full blowns yet luckily. I can’t believe you are expected to host a constant stream of visitors Clare. JUST SAY NO!!? I get tired enough having a couple of people round for a bbq, but have enjoyed being taken out for lunch.
I’m having a lazy day today. I managed to drop off about 9 and have just woken up. Just had a quick bite before taking the Dexamethasone. I am really worried about the SEs associated with the higher dose needed for T as members of my family have had mental illness in the past. Anyone else have concerns?
OH I feelso relieved I’m not the only one feeling like this… A lot of my friends have all gone off on various hols and I feel so envious… Cancerverse is not the destination I picked!
We must remember to be a bit more selfish, but I guess we have to try to understand our families are thrown in this nightmare too…
Hi ladies,
For the first time in a couple of weeks my energy levels seem to be up to what they were. The extreme heat really took it out of me. Funnily enough it’s also coincided with me finishing my filgristim. Wonder if there’s anything in that?
Apart from going to work I’m being really lazy. I’m down to hoovering once a week, it’s not going anywhere. I’m basically doing as little as I can get away with, and that includes cooking. Who needs it?!
Funnily enough I also had a row with the other half on Saturday. I left him indoors while I went out to the pub with the kids (grown up) for a drink and some nice grub.
Hello ladies
I’m on the August tread - just had my first EC chemo today and I’m feeling nauseous which has pushed away my appetite. I’ve taken 2 lots of anti sickness tablets and I’m drinking plenty of water.
Any tips on what I could do to make myself feel better or do I just need to ride it out…
Many thanks in advance x
To supplement the info below - I have managed to get down a bit pasta in a sauce - can’t say I enjoyed it though
Hi SB. Take all the meds they give you and then the Metoclopramide if you need it. I found that I didn’t want to eat at all the day of chemo, nor much the next day, but I had a spoonful of yogurt with the Dexamethasone. Do try to drink loads of water and look after yourself. Take to your bed if you need to and hibernate. You will feel better by the weekend and great for the next two weeks, so make the most of those weeks ?. Kx
Yes SB listen to your body., Eat whatever you can manage and take all the meds too, drinking helps flush everything through too, I find tonic water refreshing or lime cordial or suck ice lollies. It will pass. I keep a daily diary of how I feel and it does tend to follow a pattern each cycle so you adjust what you do around that time. Take care Kip
So at hospital for 1st paclitaxel. It’s just taken over an hour to get canula in as veins kept blowing.
So 1st paclitaxel done. No tablets or injections to bring home. Was going to give me domperidone for as and when but didn’t need them as still have loads left from 1st cycle as I’ve never needed them. The other antisickness and steroids were given as a drup so no more to taken. Feeling ok so far, but hot in 32c. The cold cap was lovely and cooling though.
What my phone thinks a drug is I don’t know, obviously should have been a drip.
Well done Sally hope all stays well.