With the pacli you have several infusions, ranatidine to stop stomach, heartburn issues, not had any, that works, steroid infusion to counter reactions, not had any, that works, and it’s much easier on the system than tablets. I can tell that as it elevates my blood sugars significantly less than the tablet. Also piriton infusion to counter possible allergic reaction, again had nothing so it works. An added bonus of the piriton is that is knocks me out and I sleep through the actual pacli which itself takes about an hour to administer. Then another vein flush. I’m also cold capping so for me it taken about 4 hours so about 3 without the cap sounds about right.
I’d never had piriton till about 3 years ago so I have no tolerance to it. There’s three of us that sit in the corner having weekly Paclitaxel and we all fall asleep 
Cdc I think the cream is called Doublebase. I was given some and my district nurse also recommended it.
Thanks for the lovely comments everyone. I’ve been a bit weepy today but trying to hide it from my son!! Night xxx
Hi Ladies,
im hijacking your chat tonight as I know many of you… I’m in hospital AGAIN with sepsis - score is 0.3. Have had another little ? cry… last time I was in 4 nights, then on Tuesday this week for 4 hours, but my chemo nurses when I called today to say I had oral thrush, were worried so called me back to say that the oncologist had ordered me back to A and E. it took over 4 hours to see a doctor, and the hospital was heaving with people!
So it’s the Acute Assessment Unit for me for the weekend.
Deep joy - not.
Georgie xx
Blimey Georgie, if it wasn’t for bad luck you’d have no luck at all. Hopefully you’re fast asleep now getting a decent kip and you won’t see this till morning just before they send you home.
Fingers crossed.
Hope your night wasn’t too grim Georgie and they let you out soon. Thinking of youxx
Oh my what a lot going on.
Cdc… thanks for the info re hand/foot… Cant believe how that nurse treated you saying it wasnt chemo related! You did well not to say i tood you so! My thumb is still numb and didnt get a call from onc so dont know if chemo on monday will be reduced or not. Im so annoyed that nobody seems to worry enough to see me, its not their hands that could be permanently damaged is it. Shame you have to see the horrible onc too!! Pacitaxel sounda like it coukd be a good thing in the long run for you tho. If you have minimal se that will be wonderful. I hooe everuone is waiting on you and you can out those poor feet up.
Ktk… Sorry youve had tears,. Big hug.
Georgieg… sorry to hear you are in casa nhs… Hope you escape soon. I had oral thrush its horrible, have you got fluxonale to take? Salt water seemed to help gargled regularly! Take care.
Sallyg. Glad you are doing well still.
Take care all off to hospital for pre chemo bloods now, fingers crossed for good neuts
thank you all ?..when my son came to leave last night he had just heard the sepsis diagnosis and even though he is 29, he was fighting back tears ?.. it doesn’t matter how old our babies are, they are very tender when it comes to mum’s health. We had been sent to the ward without even seeing a doctor (even with chemo emergency status) for over 4 hours.
We were able to chat a bit last night and the subject came up of my not wanting to go ahead with T. or anything else as I felt so ill. He said he needed me. First time I’ve heard that in years…
does the burden we feel for ‘having cancer’ generally make us so protective and guilty towards our loved ones?
Gee
Hey Gee I’m feeling very fragile as I waved my 18 year old off this morning. He popped into my bed for mummy cuddles and breakfast first thing. Your comments about your own lovely son have just set me off again…?. Hope you are feeling better and they let you out soon. Xxx
Awww I love that your son hopped into your bed ?..
that started me off again and I’m crying into my green soup (allegedly potato and leek ?)…
Georgie xx
Just wondering if anyone else has had pain when they swallow. It is a bit like when you take a tablet and it gets stuck half way down. I’ve had this for two days now and it is extremely painful. Any thoughts? Kxx
@KTK - I have had similar sensations which I put down to indigestion. I found it particularly bad when drinking plain water and salad type foods. So I’ve added a little squash to the water and am avoiding hard salad vegetables and that’s keeping it at bay. (And stopping me burping ??) I mentioned it when I saw the oncologist after T1 and she didn’t seem unduly alarmed. I’d give your unit a call if it’s still painful and see what they have to say.
LJ
Hello from hospital, night 3 ?
And thank you all for kind words and wishes.
I’m in a quiet ward, which is a nice little extra, but no nearer to the exit route.
Still having IV antibiotics for sepsis, but today was hunted down by the blood labs, as I have something ‘unusual’ ? (trust me!!) growing in my blood from Friday night.
So had another load of bloods taken today, and I’m sure the junior doctor was young enough to be still wearing his school trousers… he asked ME what I thought my swollen mouth and tongue would benefit from. I actually cannot open my mouth wide enough to say the obligatory ‘aaaah’. I said, ‘well hopefully something to soothe the swelling and pain’. He actually suggested Vaseline ?. I mean ???!!
My neutrophils have risen, but they have added another IV antibiotic to the mix now, and are saying this may need to be given for another 10 - 12 days, depending on the result of the wierd blood tests. So it’s mouthwash, earplugs, sleep hat drawn downward to shut out the hospital lights (good tip, that one…?) and hopefully some answers in the morning.
Night night, and don’t forget to put your Vaseline on your sore mouths…
Georgie Gee x
Georgie gee ???good news your neutrophils are on the rise and here is the good blood dance ???That the may17 ladies did for us all when having a stint in casa nhs, it does work so double ???good bloods dance for you so we get you home safe and sound soon. Vaseline ???that’s a new one on me but they are the experts so worth a try, anything worth a try to get you home, make sure you advise them you can’t open your mouth and if you are having any difficulty eating or drinking you need to keep strength up and hydrated. Google Bristol stool cakes, it’ll give you a laugh at the ideas that some come up with and you’ll never love ok at Bristol stool chart in the hospital loo the same again ???you’ll see flakes and mars bars, chocolate raisins and all sorts ???
???keep strong and positive darling, you’ll soon be home ???
Shi xx
Hi Georgie Gee - sorry to hear you are still in hospital. Junior Docs are a nightmare aren’t they… mine couldn’t get any blood out on numerous attempts and ended up using my foot with much pain! The nurse came along and could use my hand no problem. And as for vaseline!!! What??? When i was in I had terrible ulcers, sore mouth which was swollen and I kept bitting the insides and sore throat. I had fluroxin (think thats how you spell it) in tablet form to take everyday and I now get it with my chemo meds to. this helps thrush. Last cycle I took it as soon as the mouth started to feel sore and it didn’t get any wore. I also had nystatin on perscription which you drop on your tongue and swallow, plus used Iglu for the mouth ulcers and bonjela and regularly salt mouth rinses too. On cycle 2 i made up a bottle of salt water and rinsed after every meal and that helped too and paracetomal helped with the sore throat as well. BUT i never used vaseline!!! Hope you find something that helps and that you escape the hospital too, I had my own room but it still wasn’t quiet and those lights… grrrrr…
KTK - I have heard of several people having problems with swallowing and I think its a SE, might be worth a call to chemo line, probably is indigestion?
CDC, KTK, and anyone else out there with kids… that guilt over being ill is sooo hard isn’t it. Lovely that your son had a cuddle KTK, they are never too old… I definatley find my 16yrs old son is so much more affectionate than my 13yrd old daughter… shes very feisty at the moment and keeps out of our way a lot… but I think some of that is worry… she is still have weekly meetings with her head of year to talk over any worries and she has asked me to explain what is happening next so that she can tell her teacher so I guess she is thinking and worrying even though she says she isn’t. CDC your little one is still a bit younger than mine but girls do seem to be different… well in my experience anyway but my son has always loved a cuddle… he still climbs on my lap at times… just to annoy me mostly as he sits there and rubs my stubbly head and laughs at it.
Well now preparing for Chemo 6… the last one… fingers crossed. Haven’t heard a peep about my numb thumb which is so annoying so will hopefully find something out at chemo today as to whether they are lowering the dose, just hope it doesn’t delay things. CDC hope you get your next ones altered to more suitable days and with the ONC you like!
Take care all.
Hi Kip. Good luck with your last chemo whoop whoop!! I hope it goes well with limited SEs. I must say Docetaxol doesn’t suit me. I feel decidedly under the weather. I have a constant headache and I haven’t been drinking much because it hurts so much to swallow!!! At least I’ve not had constipation this round but borderline diarrhoea (not as bad as last time) and some bleeding. I’ve barely left the house and, now the children have gone, I am holed up in bed! I guess I am feeling a bit sorry for myself, which really isn’t like me! Anyway I have plans for later this week meeting friends, dinner etc., and I have my rads planning meeting on Friday. Tattoos?! Really! 
Moan over!! Kxx
Hi Reddi, thanks for sharing your experience with us. What an amazing story. Kxxx
Hi all,
Sorry I have been so quiet.
Had last T last week and so feel like I am coming out of the fog a bit now. Mouth feels rubbish and definite aches and pains but the biggest thing seems to be tiredness (I feel exhausted by everything at the moment).
Currently waiting for CT scan and will be tattooed later today and then rads start on October 9th. Feels like I am on a run away train that just doesn’t stop!!!
Reddi - thanks for sharing your story of your mum, you’re right about being strong and resilient (both us and our children). Mine are only 6 and 8, and being a single parent I worry about how much we are all holding in to protect each other (or maybe I am thinking too much!).
Anyway sending hugs to you all, esp Georgie, hope you get out soon,
Hugs,
Em
Xxxx
Reddi You’ve written from your heart ???just beautiful like you ??Shi xx
Oh Reddi thanks for that lovely post, uih have been through a lot haven’t you, very brave to share it
But thank you! I have had a reduced dose of T today, the nurse said first dose of T is 100% strenght the .2nd is reduced anyway so my 3rd may have been reduced slightlh more but still safe as they have a scale of stength to keep in-between. I didnt get to see anyone though they did look at myfinger nails and said the white lines i have on them represent each cycle so should end up with three!
KTK the full dose could be why the T has hit you hard?
Feel relieved that chemo is done but strangely apprehensive that its over and on to the next bit, i guess i felt safe being blasted now got to hope the body behaves!
Had a sleep deprived sleep last night due to steroids so not looking forward to another one tonight… heh ho might get up and do the ironing…
Kip