Fab Mimi!! It is a great feeling not to have those drugs pumped into you again. Hope the next stage goes well for you. Much love Kxxx
Morning ladies. Tablets have been changed and feel relatively normal today. Just the normal tired. Still have red hand and now foot being sensitive too, so will be asking oncologist tomorrow. Hopefully it won’t put back last chemo next Wednesday. As for the cocktails ? lets start with a woo woo! They are lovely and we all deserve a big woo woo for getting through all of this! I know it’s just the end of part of our horrendous journey and we all have our different paths to continue on but you know what I’m proud of us all. We have had our moans (who wouldn’t ?♀️) but we got though this bit, made brilliant friends and we are ?? women embarking on the next stage ?? xx
Congratulations ?? to all of you that have completed your final chemo ? xxxx
Fingers crossed for you Lisa!
Sadly my unit only does Herceptin on its own at the weekend so I’ve requested a move to a Sunday as it’s less disruptive over all. That does mean everything is pushed back a week and there’s a possibility I might need to request another time for the December one, but I’ll have to wait to see what’s allocated. I feel really let down no one had said it would be moved to the weekend if that’s a non-negotiable. Now worrying about my radiotherapy timetabling not being able to accommodate my three nights booked in Belgium.
LJ
Woo Woos coming up!!! Ill keep some chilled for those late arrivers.
Lisa your hand looks sooo sore, my tingly thumb now sends random tingles up my arm! Nobodh seems worried about and t still wont see Onc until 8th November once surgery over and healed. Ill keep everything crossed your last chemo gets done on time.
Mimi … Your woo woo is being prepared…well done!
LJ what a pain about the weekend slots, does herceptin take long or is it just an injection?
Keep going ladies. … Big hugs
kip
Xx
Hi,
Pacli number 10 today. Had a nice walk to hospital so my veins were pumped and canula in 1st time. No messing around like last week.
I think re the trial it’s to do with the grade and aggressiveness of the cancer plus the fact I’ve had it twice. I’ll find out more at the next meeting with the oncologist. Family history doesn’t come into it for me because I’m it. No one else in my family has had breast cancer.
Woo home already. So much better than last week. Slept through from pre meds to flush after pacli, missed it altogether.
Thank god for piriton.
Hi all – chemo is in for today. Had to be at the day unit at 9:30am, but pharmacy was slow delivering my drugs so I won’t get my cannula out til 5:30 or 6pm: I get my first HER2 drug, then have a mandatory obsevation break for an hour before the second HER2 drug, then the docetaxel, then saline flush. By the time I start docetaxel around 4pm, I’ll be amazed if my cryo stuff is still frozen.
@cdc My hands are super dry, despite using kitchen gloves and moisturizing *all* the time. I’m sure it’s a combo of chemo, anti-bac hand sanitizer, and hand washing (I’ve had quite a lot of loo visits over the past 1.5 weeks and have been extra vigilant washing because of the C diff). I have some peeling and redness between 2 fingers, but I think this is the result of getting water in my kitchen glove – I’m still not used to using them. Also: my breast cancer nurse said periods often come back after chemo for those pre menopause, which is why I’m a candidate for Zoladex, too.
@Sally What a lovely day for a walk to get your blood pumping and your miod up. I’ll be interested in hearing more abour your trial when you know more.
@LJ Herceptin on the weekend? Ugh. Is there no way they could arrange for you to have it on a weekday?
@Mimi Congrats on so many fronts!
@Lisa Marie Any news on your hand and next chemo cycle date?
miod –> mood
I’m a terrible phone typist.
Girls can I just remind you about the undderly smooth with extra urea on Amazon that is great cream for sore hands and feet, it was the only thing that worked for an lot of us ??
Shi xx
Sorry udderly smooth with extra urea. Xx
Also ask your go for Doublebase which is really good and free on prescription ??
Apparently because the Herceptin doesn’t need monitoring when given on its own it is weekend only and they won’t give during the week. Given it’s such a non-negotiable I don’t understand why no mentioned it to me before. As luck would have it I already had stuff booked for the first three cycles on the Saturday and as I couldn’t do the first Sunday either it’s all moved on a week and will be on a Sunday. At least it should be in and out - as long as there’s no pharmacy delay…
I’ll having hormone treatment too which I’m not looking forward to given all the horror stories I’ve heard about it. I’d at least like a little break to shift the weight I’ve put in over chemo and get back some level of fitness.
And of course there is the radiotherapy to contend with too! Have first appointment about that on Thursday where I have to persuade them to avoid my three days Belgium trip. That’s been booked since before all treatment started so fingers crossed.
My PICC line came out this morning, feeling slightly bereft without it!
My skin is like paper too, fed up with moisturising without any effect!
Sorry, I’m all moans today, and given my slimming world journey needs to start with a vengeance again, I might need to pass on the cocktails!!!
Hugs all xxx
LJ
Hi all, sounds like everyone is ploughing on with their chemos which is great. Hope you all manage to avoid too mahy SEs.
Cdc good idea to name my thumb… Any suggestions…??? Sounds like you had a lovely break away too. My tingly thumb is also very dry… i use Flexitol on my hands and feet it also has urea and is actually really for feet but is good on hands when reallh dry.
It really concerns me that you all seem to know about what hormones you will be getting, nobody has askedmentioned ovaries to me, i was still havjng periods before all this although chemo seems to have stopped them but as my bc is 8/8 er+ i will need to stop all eostrogen, so they mentioned tamoxofen but not anythjng like zoladex? Do you normally start the hormones after or before rads? Perhaps i should call my onc nurse to ask?
Sorry i confused you with my photo… Not exactly the kind of photo you would want on your wall but a poingnant milestone.
So day 12 today and although still tired not feeling too bad, larry tongue still hangjng around but taste buds sort of back tho not quite right…
Enjoy your Friday evening
kip
Xx
@Kip My understanding is that you either get Tamoxifen or Zoladex – never both. I can’t remember off the top of my head why they were thinking I’d get Zoladex based on my tests, but I have notes and an audio of the meeting, and can chase that up if you’re curious.
Long, long day at the chemo day unit for me. Arrived 9:35am, cannula out 6:30pm. Tempted to order pizza for supper rather than tossing up our usual post-chemo salad…
Hi all. update from today: chemo will be delayed by 1 week as oncologist thinks I need a bit of a break. He took one look at my hands and said umm ? I think we will give you a break and possibly reduce your last dose. Apparently I have given the max high dose on each cycle because of my age, so effectively it equates to another cycle ?. I have been on the zoledex since before chemo to suppress my ovaries, as I was told the chemo would stop my periods and that they could never return as it could send me into early menopause because of my age. The zoledex itself is a big needle in the stomach but it’s bearable compared to the rest we been through. Not sure if the hot sweats I experience are early menopause or the zoledex xx
P.s he confirm or deny whether it’s Planter Palmer syndrome or not, he wants to see me in a week to see how it’s going xx
Hi Reddi thanks for the info, i guess ill find out soon enough, they definately mentioned tamoxofen, i suppose i have to get the surgery done first. Im just thjnking ahead.
Lisa marie… Crikey no wonder you have suffered with the chemo .all full doses!!! Mine was reduced for 2nd T and 3rd… You really do need a break from it… At least the BC will have been well and truly nuked!!! Enjoy the extra week out… Hope the hand improves.
My OH came in from work last night and said another colleague has just been diagnosed with BC, thats 3 since my diagnosis and all under 50!! It so scary…
Hello all
I’ve had a bit of glitch in my treatment. My blood tests showed that one of my liver enzymes was quite high so they are delaying my 4th treatment by a week to give it time to settle down. Wasn’t the news I was expecting as so far I feel as though I’ve been quite lucky with the fairly minimal side effects I’ve suffered in comparison to some of you.
I feel fine - really my pre-chemo self so I’m hoping it will sort it’s self out.
Has anyone else had this issue? I’m on EC regime
Thanks, Sue