Re weight. I lost about a stone following surgery and FEC initially. Mainly due to the slight nausea suppressing my appetite, and the lovely weather making salad the staple!! However, I have now regained every ounce and then some ?. This is due to T I am sure. Although I couldn’t taste properly I was constantly craving rubbish food especially sugar. I think partly in an effort to find something to taste, but also a desire by my body to boost my energy.
Also, and for me this is crucial, I have been so sedentary. I have no energy, and even the slightest exertion exhausts me. I know I need to start exercising but I am still waiting to recover from my last chemo session. Hopefully soon, but from what everyone says about rads, I don’t hold out much hope. Still, a few (??) pounds is a minor consideration compared to bc!!!
Sat here in tears. Think I’m having a off day. Just really emotional. Notts City hospital have just rang to invite me for and appointment on 25th October for a CT scan and planning appointment, presumably that means discussing and tattoos. Just tired to get hold of OH to discuss it with him and and he messaged signal bad and busy, ring you later. So then I burst into tears. May be it’s the fear of the unknown or just cos I’m feeling ? anyway but it all a bit daunting and feeling like on a rollercoaster ?. Deep breaths and put my big girl pants on. Xx
Ah Lisa, big hugs. Is that planning for rads? They just get all the measurements right and the tattoos are a real disappointment. 3 tiny dots that you can’t even see. And I wanted a butterfly!!! However, I did get a very fetching top to take home!! Much love Kxxx
Oh Lisa, big hugs to you - we’re all entitled to those days xx
I’m waiting for my planning appointment date, I hate not being able to plan - it’s the control freak in me coming out!
Ref the weight thing. I shall weigh at Slimming World tomorrow morning - I’ve put on 9lbs so far - reckon that’ll be up to about 12lbs and then I plan to refocus and get that shifted. I feel quite motivated for it at the moment so fingers crossed that lasts!
Hi all, yeah it the radiation ct and planning. Had on on Monday at local hospital and signed consent form etc, but told him that still have last chemo to do yet and it has been delayed again by 2 weeks. So rads ct appointment on 25th, oncologist 26th and if he says yes, last chemo on 31st. So possibly ringing the bell ? on Halloween ?. They said that they was going to give me a 4-6 week break in between chemo and radiation treatments to let me recover, so by my calculations Christmas dinner? looks to a festive sandwich ? at the hospital. Was so hoping to get it all done with by then and give the step kids a “normal” Christmas. It will be my first tattoo too, thought if I was to get one my first would be a rose ? not 3 bloody cancer dots. Ah well beggars can’t be choosers. Xx
I think it’s the control aspect for me too tbh, we all have so many appointments and things we have to do when it comes down to what we want to do it has to take a seat on the back burner because of the cancer. Either appointment already or feeling not up to it because of the med. Hate being in limbo especially this time of yeah when so many birthdays, festivities etc, can’t plan a thing yet xx
Major hot flushes here too, cheeks and head mainly, to the point where sweat dripping ?. Not sure if early menopause, chemo treatment or zoledex causes them. Not had a period since beginning of chemo but that expected as zoledex is being used to effectively shut down my ovaries on a temporary pause, but was warned that it may be permanent. Won’t find out till chemo and rads all over xx
Quick question, 5 days in from 3rd T and have a two inch ish lymph node or gland come uk in the middle if my neck / throat. Not feeling ill as such , anyone had that and should I do anything , it’s not painful or red and is soft, kinda feels like it’s fluid filled ?♀️
Last proper week of 4 day weeks at work ahead of last chemo tomorrow. I’d got to work at 7.30 two days on the trot and slept from 9pm to 4am. 7 hours altogether, unheard of! Youngest is picking me up from station later and taking me to sainsburys to get a load of cupcakes to take into the chemo unit for the ladies tomorrow. I may try and convince them I got my Bake Off on
Lisa Marie - oh it must be in the air. I’m having a bad day today too, am getting very nervous about my operation next week, have fallen out with my son this morning already, big barny before he left as he has invited 5 mates round on Tuesday for xbox day and takeaway and thats when I am in hospital and he can’t see the issue, just said “its only an operation” and left the house with a big slam of the door. I burst into tears. I am suffering with mega aches and pains since finishing chemo, almost think I felt better on T!! I feel I will never get to a point where I don’t think of bloody cancer every 5 minutes, I feel out of control too. Its horrible isn’t it. I was quite positive last week but this week… ooh I am so scared of everything. I don’t know when my rads will start or how many or what hormones I’ll be on, but Im suffering hot sweats too at the moment so don’t know what that means. This is the worst roller coaster ever!
I’ll pull up my big girls pants too and take a deep breath and carry on… and try to avoid those bloody Stand Up To Cancer stories which are freaking me out… and my daughter how is terrified about it returning since seeing those stories. Don’t think I will watch tv for the next week!
SallyG - good luck with the chemo tomorrow… yayyy last one. I’m sure the ladies will love the cupcakes, I took some chocolates to my ladies, they do such a grand job don’t they.
They do a brilliant job. I can honestly say they’re the only department I’ve had to deal with at both hospitals I’ve been treated at that I can’t fault.
I had a call from the Churchill in Oxford today inviting me along for my rads planning meeting on 1 November at 9am. And to allow myself 45mins to find a parking space ? Given at that time of day it’ll take 1.5 hours approx to get to Oxford I’ll be leaving before 7!!!
Ive come out in the sneeziest, runniest cold ever - just as well I’ve not got chemo next week.
Cant remember if anyone’s asked/answered this recently - when can we start eating the ‘forbidden’ foods again?! I’m craving prawns something terrible!!!
I’ve not seen that list before. I don’t eat anything that swims so shellfish is always out for me anyway and I don’t like grapefruit (which you can’t have if you are on stating so even if I liked it I can’t eat it.) I’ve pretty much eaten everything else on the list though. Oh well. I’ve been fine.
Hi all, cupcakes sound like a great idea ? although I ask my lot when I was in for my last chemo and they have said fruit ? ? ?, appears some are dieting and others gluten free and diabetic, so got a hamper thing from Wilko’s and going fill it with fruit and biscuits/sweets so they can take their pick. Not avoiding any foods here either and wasn’t given any list, having had quite a few off it it a good job I’m fine ?. Kip sorry to be blunt but it may just be and operation to your son as he isn’t going through it and it’s not his body. You have every right to feel nervous and scared about it (I would) he may be trying to carry on as though nothing is happening and using his mates to comfort him while your there but it could appear insensitive to you especially with the comment. Your feeling are valid and it’s a major thing. With all the med and this rollercoaster our nerves can be shot on days, one day we are positive and ready for it all the next the slightest thing can send us running, and you know what that’s ok. You know what if I sat here and thought about everything we have all gone through if we read the story elsewhere we would say wow what brave/strong women. Well it is us and we are! We may not feel it all the time but we are strong ?? and we have each other ? xx
Thanks Lisa. Hes home now and weve talked it through… still feeljng scared, more worried that every node will be affected even after chemo! Oh well at least they will be out!
As for what not to eat, i i w told that 4 weeks after cheno finished i csn eat anything agian and go back to doing ehat i like, ie not havjng tto avoid germs. Unfortunately 4 weeks post chemo ill be having op!!
Lisa Beautiful post ???lady. Was told to watch soft cheese, wash all fruit, veg throughly, watch what spices were eaten in case of interaction, no green tea, match powder, black cumin seed oil, it looks like it differs from trust to trust about guidance on foods. ??Shi xx
Thanks for all your advice regarding hormonal son! We’ve sorted it now, he was very sympathetic in the end, I think he just trys to carry on as normal and forget whats happening, which I can understand I guess.
On another note… A friend of mine emailed me these links for 2 courses for cancer patients which may help with the issues of movning on and living with this bloody thing… thought I would post the links on here , you may have already heard of them and hopefully they are offered in your areas. I am thinking of doing the Moving On one (which I have seen mentioned on here before). But anythign to help… Also another friend sent me a link to a swimming session for children who have parents with cancer, it is based in Ipswich, but it may be that your areas do a similar thing, I’ll post the picture too, might be something useful for someone. Not sure my children would want to, perhaps a bit too old, don’t know?
