Georgie gee ???sending you big 
Time for a mission set for you ??? me and kip dare you to macerana to the loo next time you go and report back how many funny looks you get ??? report back ???and as they give you your tea in the morning an impromptu shadow, do, do push pineapple shake the tree ???, love you and keep ???were on our way to help you ???it and get you home, kips picking us up in the tank ???
Shi xx
???sorry text gremlins changed agado to shadow, bet you thought what ???xx
Shi,
Do you you suggest I do the Macarena with my drip stand?.. I am attached!!! ???.
Kip, I really wish I had my own room, but I don’t. They are going to see whether I get any better over the weekend, and then review me on Monday morning.
Gee
Hi Georgie gee ???bit of kylie spinning around and twirl your way to the loo with the drip stand ?day practicing for tomorrow’s strictly ??? ???I had a casa nhs stint during chemo and found keeping ???and ???with the love and support from all the amazing ladies on here really helped ???hope we can do the same for you Kip, have you found the drive mode with the tank yet? We’ve Georgie gee to get out of casa nhs ??????????Shi xx
Omg Shi, nearly wet myself laughing! Ive found the drive mode, got my drain in a holster and am ready for Operation Breakout! Listen out for us Georgie we will be coming over the hill, wearing hot pants, tin helmets and blaring out.“.I want to Break Free” … Its an under cover operation obviously… so don’t tell any one!
Captain Kip
Xx
Just received an extensive survey asking about the treatment received for my cancer.
They’ll wish they never asked.
Bit late, but just catching up. Georgie the sensation you are describing when trying to swallow is exactly what happened to me after my second T. I couldn’t even swallow my own saliva and it was excruciating to swallow anything more! I just assumed it was a normal SE and put it down to indigestion. It went away eventually and was not as bad T3!!!
Georgie gee Sending love, hope things have improved today my lovely . kip, ladybowler and I are only trying to keep you ??? while in casa nhs, hope we’ve not offended you, it’s pants when you are in there but the safest place till neutrophils are back up, it’s just ???this whole thing. I just went loop the friggin loop as Shirley valentine said in the movie, and I’ve stayed there ever since ???Shi xx
Hi CDC and Everyone Else,
Shi I am not at all offended by everyone’s kind and humorous messages; I love the idea of the cavalry all arriving to get me out of here! (Drip stand or no drip stand!) … guess I could use it as a weapon even… Kip, keep that tank filled up with fuel! It might be tomorrow, neutrophils dependent! I’ve decided to re-name them as ‘naughtyphils’ - does everyone agree?!
The swallowing has improved thankfully, so i might be ready for the great escape tomorrow.
I’m just a bit slow replying sometimes, but am finding it such a help to be able to speak to other ladies who know and understand my predicament!
KTK that is very intetesting that you had the same symptom with the swallowing! And LadyBowler, I have as it happens run out of pants!! So the glittery ones are on my suitcase ready to put on!..
All the best to everyone
Georgie Gee xxxxx
I am in a bit of a quandary at the moment, about what to do next. I have a meeting with my Inc on Wednesday, and I think she had a plan to reduce Docetaxol to 50% next round, but at the moment, I am quite reluctant to have anything. The thought of this happening again, I just can’t tolerate.
I’m generally thinking that it’s just sadly incompatibility with chemo for me, and for some other reasons I’m questioning radiotherapy at the moment too. Need a good chat with some professionals. I can’t be the first and I won’t be the last person for this to happen to.
I read today about proton therapy, which is in the U.S. but very new here, as an alternative to chemo and radiotherapy. I might ask about it. It’s a more accurate targeted therapy. Anyone heard of it? I am also supposed to have herceptin, but it won’t be with chemo now… oh I am a complicated soul…
Georgie xx
Hi Georgie Gee, I just wanted to tell you of my experience on Chemo. I also had swallowing problems that started when I started Docetaxol. For a good few days I was eating scrambled egg and soup, meat and bread were particularly hard to swallow. My onc put it down to the increased dose of steroids on Docetaxol and apparently they irritate the oesophagus.
I hope your naughty philes pick.up soon x
Michelle, that’s interesting…
I had only 75% of the dose of Docetaxol, and only 50% dose of steroids. I don’t know sometimes whether or not oncologists just have to guess why certain things happen. I must admit, at one point I began to wonder whether the ca had spread suddenly to my oseoghagus!.. you know what it’s like when you have too much time to think?!!
Bye for now
Gina xx
CDC I have had 3 FEC and 1 x (75%) T.
GeorgieGee
All the building work going on around UCLH is to accommodate a ‘proton therapy machine’ - I believe this was the therapy that the couple took their son to Czech Republic for? When there was all the pandemonium about them getting him out of the country against doctor’s’ wishes? I believe it is meant to be the bees knees in targeted beams . . . . . .but not due to be up and running until 2020 I believe.
ah, and it seems there is another centre in the process of building at the Christie, Manchester.
Georgie gee, get the bag packed, me, ladybowler and kip will be ??????????to walk like an Egyptian by the bangles in the morning so those naughtfiles had better behave ???you need to let us know your escape tune so we can have it ready in the tank for you ??kip you’ve got that covered haven’t you mate ?ladybowler, sequinned hot pants hooked up and off we go to get Georgie gee out. Georgie, did you manage the agadoo over your cuppa? ???if not tomorrow’s mission is to fling a sock as far as you can and say the wind must have too it ???or you could do a mai7 special she launched her wig across the ward once ???classic thread moment ???Shi xx
Morning Ladies…
Georgie Gee - loving the NaughtyPhils! Good name… I’ve got the tank revving up, music ready to go and hot pants sparkling…lets break you out.
On a serious note, I think everyone has the right to refuse or question any treatment they are offered. You should definately have a big chat with your ONC, you sound like you have lots of information at the ready, take a list of questions and don’t leave until you are satisfied. You have had to deal with a lot of issues and only you know what more you can take. I had 3 FEC and 3 T, but was told the 2nd and 3rd T were reduced due to me being in hospital with NaughtyPhils, they didn’t say how much they reduced them by, but did say that it was usual to have 100% of T first time round and then reduce them for the subsequent cycles.
Its interesting to read about the Proton treatment, shame the new machines aren’t ready yet though, but worth discussing. Its good to know that treatments are progressing all the time, even it not ready for us just yet.
CDC - glad you got the chemo, not glad you have the tingles and numbles again. Hopefully it will go as the chemo gets throught, my Tingle is definately improving post chemo, its 5 weeks ago since last one and the tip is still numb but a lot less than before, so hopefully you will be the same. Hope those SEs are minimal and you feel brighter soon.
I can’t remember if it was on this thread or the May Surgery thread, but there was discussion about finding suitable post op bras? Anyway, I asked a friend of mine who had MX 2 years ago and she buys hers from a catalogue called Nicola Jane (on line website). They aren’t always the cheapest but do offer all sorts of styles and fabrics. My friend is large busted and finds that when she bends forward (she is a nurse so has to lean over patients) sometimes she would flash a hint of lopsided cleavage and Nicola Jane do bras which have a built in panel to prevent this, worth looking at. She also buys from M&S and Debenhams but N Jane is her preferred outlet. They also seem to do swimwear, clothing and have a range of bras not only for MX but for reconstruction and radiotherapy. I feel some online shopping coming on and I can’t blame the chemo brain now! Eeek.
Kip
x
Good evening Ladies,
I hope the tank is patient! The doctors told me this morning that they are not letting me out until Wednesday.
The antibiotics for my kind of sepsis are only IV, and therefore I have to stay here to receive them.
I was quite shocked, but in a way I guess they are right to be cautious. NaughtyPhils are ok but they are keeping an eye on them.
My daughter was scheduled to come on Wednesday, as it’s her birthday, and we were going to have lunch and be together. My birthday in September was the day after a chemo so I did absolutely nothing, so it was going to be a double birthday!
So Wednesday has changed quite a lot… first thing, birthday girl will come here and collect me from the ward. We will then go to have picc line check up and to see oncologist, which as you say Kip, will take as long as it takes to discuss everything thoroughly. Then I really really hope that we can go home and have at least lunch and the afternoon together.
Thank you everyone for your best wishes and support. It will be better I think when I know what the plan is, but I don’t think it will be an easy discussion as my daughter doesn’t want me to carry on with chemo.
Bye for now
Georgie Gee xx
Hi Georgie gee ???sorry to hear you are being kept in a little longer and sending you big hug and ??that some of Wednesday is salvageable. You should do a double birthday next year with a girls shopping week in New York or anything you fancy just as long as you spoil yourselves ??to make up for these ones, in fact just do it as soon as you’ve finished treatments ??Get your list of questions ready for your onc, you can post them on here if you think there might be something else you need to ask and we could help if you want us too. There is the someone like me facility on the bccf if you need to speak to someone. You’ll need to make choices and decisions that are right for you darling, it’s your journey and you are in control even if you don’t feel like you are. Sending you lots of ???now if you see a rope come down through the ceiling that’s kip doing her Tom cruise mission impossible rescue to you because this isn’t mission impossible and everything is possible Shi xx
Yes Georgie Gee, Shi is right… you ask all the questions you need… and don’t be pushed into anything you don’t feel happy with… its your body… It may be good to have your daughter there to hear all the information and to offer her opinions too… take it all into consideration and take your time.
Look out for the rope…I’ll be swinging in on Wednesday, commando rolling across the floor and whisking you and your daughter out of there… the tank will be revving! For now, rest up and prepare for Operation Breakout!
I’m still attached to my lovely drain and will be again today, 1 week ago I was on the operating table, time flies when you are having fun :smileyfrustrated: I’m working on the exercises, weird being so numb under the armpit though!
Hope everyone else is doing ok, CDC hope the SEs are being kind and the numblies are behaving.
KTK - how are you doing? Coming through the chemo fog now? When do you start Rads?
RedRose - how are you doing? Hows the arms/hands and feet?
Kip
xx
Morning all. Hope you are beginning to feel better Georgie and can celebrate tomorrow.
Kip the numbness in your pit lasts for ages. Really only just got sensation and my op was May!
I was due to start rads this morning and the phone rang as I was walking out the door to say one of the machine was not working. So I am going in this afternoon instead.
Love to all xxx