RT number 2 complete! Only 18 to go! Journey was rubbish once again, hour and three-quarters fro a 35 mile trip. We got parked and checked in just in time. I’d barely rested my behind in the seat and they called me. We left the car park 25 mins after arriving!
I’ve got my post surgery exercise sheet back out - I’ve got really good movement in my shoulders but I think if I’m not careful the RT ‘position’ will see them stiffening up and I don’t want that.
How’s everyine else finding it? Kip - is it tomorrow you start, or Thursday?
LJ do keep up the exercises. I found that I began to get cording under my arm. Just kept stretching and massaging!! I’m finished now but my boob became very itchy with a sort of heat rash in the last week. Piriton helped! I was warned I would become fatigued but that never happened. Good luck with your session. Kx
Please keep yourselves hydrated during rads, it helped me for sure ??seems a lot of us lost our dads early and for me I know my dads been by my side through this As I am sure yours have too, we were their little girls and always will be Get your meet up planned ladies, kip get the tank warmed up to gather the troops for a great meet up And to also throw red rose another hen do too ???Shi xx
Looks like if I do have rads I’ll be way behind everyone else and it’ll be getting on for a year after I was diagnosed and 10 months post surgery. Mine was lobular so a spread rather than a tumour but it was 11cms so who knows. If I do it’ll be at St Thomas’ which is a 2 minute walk from work so getting there won’t be an issue. I’ve an appointment on 12th December when I find out more. I finally have an appointment next week to have a fitting for a prosthesis. I have to take a post surgery bra with me because nothing is provided locally. I have the ones I got from Asda so I’ll take the least uncomfortable one with me and see how it goes.
My hair loss since finishing chemo and starting letrozole is still continuing. My pillow is covered every day and I’m still only washing it once a week because I lose so much when I do. It’s been 6 weeks now and hair is growing everywhere else but nothing on my head. My eyelashes are giving me trouble. I’ve had to snip a couple that were so long, and the nurse at work had to remove one that was curling into my eye and couldn’t be trained upwards.
The joys we have to deal with not to mention the extra money we have to spend on stuff.
Oh Sally that will be a long wait for Rads won’t it. Fingers crossed everything gets moving quickly. I hadn’t thought about what happens when the eyelashes get longer, mine are coming through but still quite short so not a problem at the moment. There’s always something to deal with isn’t there. Sorry to hear you are still suffering with the hair loss, do you think it could be because the folicles were weakened by the chemo anyway, perhaps once they are gone they will start re-growing again? Once they start they come on pretty quickly. Thats just anothing thing you could do without.
One more day until I start Rads… actually quite nervous, not sure why as I know it won’t hurt and is over quickly…its just being back at hospital again I think.
Today my legs aren’t feeling quite so achy (the epsom bath I think) but my back is still stiff across the bottom and round the hips.
Shi- I’ll make sure the tank is fully stocked and ready to rock!
Kip ?? it’s like the movie ground hog day darling ??but it does go quick promise, now everybody was Kung fu fighting on the jukebox for your lovely ???brilliant beautiful ladies ???Shi xx
@Kip & @RedRose You both start RT tomorrow, yes? Thinking of you – with godspeed.
Eye is on the mend. Pressure has normalized and the inflammation is much improved. Thankfully, that means I can stop the drops that dilate my eye, so I should be able to see more clearly in about 12 hours. However, I’ve got 6 weeks of steroid drops to take – a very slow tapering – and my eyes seem to be very dried out from chemo (thus all the watering to compensate). So eye drops for that now, too.
And after spending the whole morning at the hospital, got home at 2:30pm to discover an appointment letter to see the surgeon – at 3:30pm today. Called and they asked me to come in if I could manage it. So had to turn heel – arrived just in time, but of course the clinic is running late.
Reddi - goodness me what a day you had! Glad your eyes are improving. I had terrrible dry watery eyes after chemo (and throughout the last sessions too actually). They got really sore from all the watering. Funnily enough I never really noticed it stopping and only just realised that it has over the last week or so. I think also due to eyelashes returning? Can’t believe you had to turn around and go back to hospital… but it sounds like you have a good plan in place for moving forward, and if you can get it done before Christmas you can sit back and recover and be pampered (oh and eat lots!!).
Shi - thanks for the juke box… I’m going to check out the locals at the Radiotherapy centre and see if any potential boogiers there!
Hi reddi, I started my rads on Monday so today was number 4/20. Just leaving hospital now and looking forward to getting home, whipping the bra off and slapping on the moisturizer ? xx
I took a tube of moisturiser with me and used it before I got dressed again! Just to let you know that my boob is nevertheless dried up and itchy. Maybe a bit blistery! Kx
Well done RedRose, 4 done! My first one today, was fine, felt a bit weird just laying there, kept expecting some rays of light or something! I didn’t even wear a bra, only having the one very flat boob left its not really noticeable for me so I just wore a very soft vest top. Do you feel sore yet? I completely forgot to cream before I left hospital, I had it in my bag but was in a hurry to leave. Must remember tomorrow, oh and tonight too.
Shi - no potential boogiers at my RT session today, infact quite a dull lot to be honest… not a word from anyone. Just two old guys discussing their prostrates! :smileyfrustrated: Maybe tomorrow…
I didn’t feel sore at all during the treatment. Just itchy like sunburn at the end. I also just wore a vest type ‘bra’, without seams or tight bands. X
Kip did you manage to get any ???To join you today at ??? bit of the greatest showman soundtrack ‘this is me’ needs to be played from your phone in the waiting area to give you all a ???of how amazing and incredible you all are ???keep slapping on the creams, airing the skin and keeping the fluids flowing, you are all doing great and any concerns over your skin tell them you want it looked at don’t wait for your reviews, keep safe ???Shi xx
Unfortunately no dancers at my Rads so far… only the 3 “prostrate pals” ( my new name for them as they love to discuss their prostrates loudly for everyone to hear)… maybe I’ll meet some new ones tomorrow? I had to keep myself busy with a jigsaw again instead.
Ha ha Shi, perhaps I can enlist the prostate pals too! Got a full week of Rads this week, first one at 2.45pm today… still feeling ok with it, just these aching joints… omg… don’t think I can do a good dance to Push It… more like… “Achy Brakey” by Billy Ray Cyrus!
OMG that is fab CDC… daunting I can imagine but very important and like you say there will be others in the same boat… I can just imagine you all having a little siesta half way through. Sorry to hear the neuropathy is still being a pain (literally)… I imagined I would finish chemo and bounce back… seems it doesn’t work that way. I did some searching and reading on this site yesterday regarding Tamoxifen and its side effects and there are so many women all having the same aches and pains as me and all on Tamoxifen too, it has to be that and the induced menopause that does it. Apparently you need an amount of oestrogen for your joints/muscles and when they suppress it, you can suffer the aches and pains. Not sure how you address it though, some ONCs seem to agree with it some just say its not related. A friend told me that she knows of ladies who suffered this way and it settled after a few months, so I am going to try to continue with the Tamoxifen for a while (haven’t even had it a month yet) and also give the chemo and rads time to leave the system and then address it. Apart from the aches and pains I feel fine really, I’m sleeping better, still waking up like a 150 year old but at least getting some sleep. I think the Epsom salts do help a bit, they certainly relax me and get me ready for bed if nothing else. I am also taking Magnesium, Zinc and Vit D to see if that helps, and somebody suggested glucosamine but I need to get these checked to see if I can take them with Rads. The chap doing mine yesterday didn’t know but is finding out for me. So far Rads have been easy, no pain or soreness yet but expect that builds up. Its just so time consuming going back and forth to the hospital and I haven’t even done Xmas shopping yet… not sure when I can fit that in eeek!
