Hi LJ, lovely to hear from you. Glad the Rads are ticking off albeit with a nasty journey added in. I’m on No 10 today of 15 so getting there too. So far so good, no soreness or anything just the annoying visits every day. I keep checking and waiting for something to happen, not even sure exactly where they are pinpointing the radiotherapy but just know its chest wall and collar bone… no signs of anything yet.
Your nails sound exactly the same as mine… the horrible colour and the ridges. As the horrible bit gets to the top it breaks off so am hoping it will just grow out eventually. I keep them painted because I look like I smoke 100 a day if not! Not a good look when you are having radiotherapy is it.
Glad to hear your hair is coming on nicely too, so nice to have some again itsn’t , almost dont mind the white… everyone tells me it suits me… not sure on that front but its hair afterall. I keep trying to update my profile picture on here from bald to skinheard… not having any luck yet! IT brain not working as it was I think.
So I got seen at Guys today and it’s been decided I will have radiotherapy after all after being told I couldn’t have it. That’s something to look coward to in January a long time after surgery (February and beginning of April)
Oh gosh Sally. How are you feeling about the prospect of radiotherapy now?
Reddi- I’ve been thinking of you and really hope tomorrow’s surgery goes well. Good luck!
Hi LJ Glad the end is in sight. I’ve lost one nail but there was another growing underneath. I’ve kept my nails varnished but I can see some very definite ridges.
ktk I’ve just remembered my daughter has some hair chalk. Maybe she’ll let me borrow some!
Looking forward to seeing your updated profile pic Kip.
What colour hair chalks did you use Kip? My daughters chalks are purple and blue and as well as not having enough hair yet I think the colours would look extremely odd!!
Hi CDC - I haven’t used any hair chalks yet, but might invest in some… still working on updating the profile… watch this space!
Didn’t get to have my radio yesterday as I got a phonecall mid morning to say the machine was broken and the other one was in pieces being serviced and they had a 4 hour waiting time. I was offered to either skip a treatment (didn’t want to risk that), add it on to the end (didn’t want another day added) or go in on Saturday morning… so Saturday morning it is…not ideal as I have so much to do, but didn’t dare go for just 14 sessions. What a nightmare, but it was good to have an afternoon off, especially as it was my daughters birthday! Didn’t fancy laying there thinking “14 years ago I was having a baby… now look where I am!”.
Sally - that is a long wait to decide to have Radio isn’t it!
Forgot to say, I also got a phonecall from teh physio department and they are passing me over to the lymphodema clinic for some physio as they are the best placed to offer advice apparently. So still nobody has actually looked at my arm as yet and don’t know how long I wait for an appointment. Woke up today with horrendous stiff legs, back, bottom again… I thought it was getting better… am really beginning to think the chemo has brought on rheumitism/arthritis which is triggered when it gets colder… already feel 100 now I feel 150…!!
Oh dear CDC, I know those knees! Today mine are so stiff and sore when I get up from sitting or try to go up/down stairs. I don’t know if its chemo, tamoxifen or just the menopause or possibly all 3. I;m currently walking around with a heat pad stuffed down the back of my jeans on my lower back… not a good look!
Op went well! Been out of recovery for hours; actually enjoyed my hospital supper of chickpea and sweet potato curry. Seems pretty certain – at the moment – that I’ll be home this time tomorrow. (Of course, I’m doped up on painkillers right now…)
Reddi ??? great news your ops gone well darling and already enjoying food Take it steady and pace your excercises post op ??big To everyone and kip happy birthday to your daughter ???Shi xx
Fingers crossed you get home tomorrow Reddi, nice you have decent hospital food but if you’re anything like me, I could have eaten a scabby monkey after surgery I was that hungry.
Nearly a year after diagnosis I thought I was done with treatment. Seems like it’s never ending for me. I have another CT scan Tuesday, that’ll be my 3rd.
Well I finally met somebody at Radiotherpay who was in my age bracket… we have both had BC, masectomy and 6 x FECT. Unfortunately she had BC 10 years ago and had a masectomy then and this was a new diagnosis in the other breast but she has now had the other breast removed and has chosen to remain flat! She was so pleased to be matching finally and said she felt quite pressured to have recon but it wasn’t for her. Nice to talk to someone else in the same boat. We compared nails, hers looked pretty much like mine and she had lost a couple and some toenails too eek. We discussed hair… shes still wearing her wig as hers isn’t growing much yet and we had a good old moan about Docetaxol! Oh and she suffered from the neuropathy in her fee & .fingers and had trouble walking, and they are still sore but improving! She even finishes her radiotherapy on 19th too. Made a change from chatting about prostrates!
@SallyG63 Ha! For all I know, I did eat a scabby monkey. My OH did refuse a sample…
OMG Sleepless night! I was excited when my surgeon scored me a transfer to a private room… Until one of my neighbors turned out to be an angry, shouty problem patient. The nice bits growling through the corridors were, “Help me!” and “Kill me now!” Other bits would get my post deleted from the forum. All. Night. Long. Between that and the alarm going off on my Pico vacuum dressing for the drain, no Nod for me. But looking good for discharge this evening, thank goodness.
Oh no Reddi! You sound like you had the same patient next door as I had when I was hospitalised for low neuts! He was shouting “kill me” “help me” and “Mother are you there” all night long too… I thought I was home and dry when put in a single room but hell no…I think every trolley that went by clattered into my door and the lights… grrrrrrrr… hope you escape tonight… and watch out for anymore scabby monkey! I’m sure CDC can sympathise with the alarms on the dressings, I seem to remember she had fun with them too!
@Kip Ah, the joys of hospital. Can’t decide if “Mother, are you there?” sounds poignant… or Norman Batesy.
Trolley crashes sounds awful. I was saved that. My door is opposite the nurses’ station, so lots of quiet chatter and gossip overnight. A bit like my own soap, though less captivating than Coronation Street, and far more interruptions.
@Kip p.s. I hope someone on the lymphedema team sees you soon and you get some help and guidance on your arm. And nice to finish rads before Christmas – and to get your daughter’s birthday off (unexpectedly). No silver linings emoji on my phone, so… ?
Ah thanks Reddi. Yes “are you there Mother…” definately odd!
Just had Rads No. 11 and feeling unexpectedly teary on the way home. Sometimes I just suddently find myself hit full on with the thought “oh my god I have cancer”… tried to explain that to OH just now and how scared for the future I feel sometimes and in true style he said “Life is terminal”! Gotta love him hey…He says hes sick of talking about cancer… bloody hell try living it I thought! I know he doesn’t know what to say… guess he never will really… definately gonna need some counselling after xmas I think…even if just to sit and cry and not be judged… In true British style… I’m going to make a cup of tea and have a biscuit…
Kip ?? this is a belt and braces for you isn’t it with chemo and rads? As my beautiful bc nurse said to me, you haven’t got it any more. It’s hard to get into the ‘had’ when speaking but it will come once rads done ???but rads does have bit of a habit of bringing a ?from out of nowhere. Hope that biscuit is a chocolate one with the tea ??reddi hope you managed to catch up on some sleep or better still are home ??Shi xx
