???Kip fantastic lovely lady 
Hope you rang the clanger off it ???sent you pm the other day don’t know if you got it? Don’t forget to choose tune for club Tropicana thread, hop on over, dance floor, Sunbed and ???await ???
Shi xx
Thanks everyone, I know the bell etc is a bit cheesey, but it definately marks a point in time and meant a lot to my kids to ring it with me. Feeling emotional today still, hoping i can fend off the worry gremlins until after Christmas at least!
Kip
xx
Just on train to work now. Anyone else on letrozole? Ive been on it 6 weeks and have now lost more than half my hair (that I kept thru chemo) and have real problems sleeping. Went to bed last night and was still awake 6 hours later, hence only just being on the way to work. I’ve no aches or pains, that I didn’t have before but itch like crazy at night. I’ve been taking antihistamines before bed bit it’s not seeming to make a difference.
Yes Reddi, if I had wings I would have floated out of there at that moment!
Kip
xx
I was very excited to find enough eyelashes to put mascara on this week!! My head has a nice soft covering now and my brows are reappearing! On the down side, I have had to defuzz my legs for the first time!!!
Hope you are all doing well. Much love Kxx
Reddi ??glad you found the for eyebrows go with a powder and stuff little brush, a lady on google does good tutorial and to start with a couple of the eyebrow stencils to use with the powder help, get it all off Amazon dirt cheap but really good ??and grab a few tinsel wigs too, it’s Christmas and you’ll rock them ???I did last year and bit of tinsel round the drain darling, if it’s going to hang out with you it’s got to join the party ???No bar humbugs allowed its Christmas ? ???Shi xx
Ktk glad youve found the eyelashes are coming back… nice isnt it… Not so the leg fuzz tho!
Reddi you did make me smile withnthe doppelganger post… And loving the bow for the bag! Ive thought about spraying my white buzz cut with glitter to lookn ike a bauble!! Eyebrows are a tricky art aren’t they? I remember the lady at the LGFB course saying they shoild be “siblings not twins”… Mine sometjmes just looked like dead slugs. Good news is when they come back they seem to do so quickly… Now have hairy slugs again!
Lovely to hear from you!! So I went to a friends’s Birthday party last night. The biggest problem was finding something to wear, as I have put on so much weight! I don’t really want to spend on new clothes as hopefully I will lose the weight soon!
The bad news is that I lost my thumbnail at the party. I banged. It washing my hands and it came off! There is a fair bit of growth, about half a nail, underneath. I guess the rest will follow? Kx
Oh ouch ktk that sounds painful, seems we are all suffering with problem nails. Ive painted mine just to hide their hideousness! Just another gift frim the wonderful chemo!
Is it sore wihouy the nail?
It is around the sides and top. Just wondering if I can stick the nail back on. It is very sparkly ?
RedRose… Ring that bell loud and proud!
merry Christmas everyone… May it be SE free and full of love and peace!
Brilliabt news Red Rose!! ? ? ?
Hope everyone is able to have a joyful Christmas. We’ve all come so far and though we haven’t had a choice, we all deserve to be proud of gettng through each treatment. Huge hugs to everyone and here’s to a great New Year! Xxx
Well said CDC!
RedRose how did the last one go? Ive got a little red sunburn patch on my collar bone but doesnt hurt yet.
Greetings ladies!! It’s been a while I know, I last appeared here on 24 July and while I kept meaning to dip back in, life got in the way. I’ve caught up with all your posts for the last few months today and it’s good to see the posts about chemo side effects slowly being replaced with posts about hair growth and approaching radiotherapy. Here’s my catch up.
I finished my 4 FEC / 4 T on November 22nd, so five weeks ‘out’ today. I have to admit to keeping quiet here during my FEC cycles as many of you were having such a bad time and I thought it ungracious and fate-tempting to report that I didn’t have any adverse side effects at all - other than the hair loss and weighing a ton (self inflicted!).
I hit a icy patch a few days before my first Docetaxol, I woke up with vertigo/or a derivative of, it wasn’t looked at too closely as it’s not life threatening. A couple of days on travel sickness pills sorted it out, although I walked like I was drunk for a week or so after. In the general scheme of things, it was just a bump in the road but I wouldn’t wish it on anyone.
I had a PICC line put in before the poisoning started. I had expected it to last through the 8 cycles but it seems it’s not usual for that to happen. It stopped working, they couldn’t get any blood back out of it during the weekly maintenance and for the nadir bloods. I had an ultrasound to see where it was, if it had moved but it was being blocked by a clot just below my collarbone. They replaced it with a mid-line, a shorter version, and the hospital told me that I had to give myself daily anticoagulant injects for three months. That freaked me out, being needle-phobic, but I had to suck it up and get on with it. I did that for a week and then the oncologist asked me if I was taking my tablets. “TABLETS? THERE ARE TABLETS?” I shrieked … when he came back up from under his desk he wrote me a prescription for tablets.
The Docetaxol wasn’t as kind to me as the FEC, I did get very tired on the first lot, I had to take two days off work and lie down but that was on the back of the vertigo. The second cycle was easier, I took two days off just in case. The third and fourth cycles were even easier although I did take the days off as a precaution. I booked a dog walker for those days as I found getting round our (steep) park, pretty challenging. My fitness is not back 100% but it’s getting there.
The mid-line kept me going for the next 3 cycles. That one failed just before the last cycle and I had to go ‘traditional’ and have the poison administered into my hand. I am just so grateful that I had that line for 7 cycles, even if it did give me a clot. They told me the clot would dissipate over the three months and then I’d be able to stop the anticoagulants. However, a follow up ultrasound last week has shown that it’s still there and the radiologist has suggested that it’ll be there permanently and that I just need to take the tablets forever.
Last week also saw my annual mammogram, brought forward slightly because of my forthcoming radiation, on the remaining boob last week. I was a bit fraught in the run up (understatement!) but it was clear. Hoo-effin-ray!!
I’ve got radiation starting on 3 January for 16 sessions. I’m a little concerned about the burning and will do as much moisturising as I can but I’m really rubbish at all that stuff. I’m also worried as I have lymphodoema in the arm on that side and it’s stretching across my scar site. It’s very fluidy and I’ve got an dread of the radiation heating up the fluid and me boiling from the inside out. I’m no doctor!
On a more positive note, my hair started to grow during cycle 7 of the poison. It’s getting wiry round the sides but is still very sparce on top. The different lengths make me look like a cross between a baby bird, a 90 year old man and a testicle. That’s a good look eh? In another cruel twist, I kept my eyebrows and lashes until my hair started to come back, then they jumped ship making me look like Humpty Dumpty with my big bloated steroidy-crisps and chocolate-bread face. I’m off to get one of those Lush shampoo bars as soon as I can.
Anyway, enough about me. It’s been really good to read your posts and to see that we’re all moving through this adventure we’ve been thrust in to. I’m keen to see your radiation advice too in the next few weeks.
Wx
Hi Willie! So good to hear from you. Your post, though quite serious in subject matter, had me laughing! Loving the humpty face reference… That was me entirely… I Stil have his body it seems!! Glad to hear all things progressing for you. I am day 8 post rads and now starting to see some redness although not sore just looks sunburnt. Feeling tired today but coukd be post xmas tiredness as its been busy round here.
Reddi… congrats on tube out day… Its a great feeling!!
Kip
Xx
Reddi ??on retuning That’s great news you are healing well ?? ???Shi xx
Sorry reddi detubing got changed to retuning on predictive text, but still we’ve all been in for a retuning haven’t we, it’s called chemo ???Shi xx
Cdc Thinking of you and your mum today, hope the anniversary has been filled with loving memories of your dad. We always do something dad would have loved and still ‘share’ the day with him when it’s anniversary ??? sending love Shi xx
What a lovely remembrance, cdc. xoxo
Juat wanted to wish you all a Happy New Year and thank you all for just being there for me! Heres hoping for a better 2019 for sll of us!
kip