Well, after a rocky start I’m home. Got out at 2.30 which is an hour earlier than last time. They weren’t very busy today though. Only a few early birds having chemo. Lots coming in and out for the picc line flushes. Next time I have physio the afternoon before so I’ll get the bloods done then and should be straight off at 9.30 the next morning for chemo.
Saw the same lady I saw last time who was on number 5 of T. Still no side effects or any hair loss. She is cold capping but with T it only stays on for 20 minutes after rather than the 90 for EC cutting the appointment time right down.
I have to say the cold cap was much easier second time, the brain freeze bit only lasted 5 minutes and was nowhere near as severe as the first time.
Canula straight in and everything so straightforward and quick.
Hi.started weekly pacletaxol treatment yesterday following my diagnosis of secondary bc in lungs and bones this month… never had bc before so this has been a bit of a roller coaster of emotions and little time to digest the huge amount of information but I am getting there and have a great support network.
As far as my first treatment goes it wasn’t to bad and so far i feel ok. I am under no illusion that this can and most probably will change but I am trying to stay positive and hopeful.
I also decided to give the cold cap a go as well. As with all the posts I have read it was the first 10 mins that were a bit tricky but it truly did get better and was bearable after that and you can unplug for those all important but tricky trips to the ladies.
I have read lots of posts in the forums and I can hand on heart say they have all helped me feel less anxious and provide real experiences you don’t get from reading all the very factual printed stuff you get given.
This my first post so hopefully I have done it right when I hit the button.
Next treatment booked for the 2nd July fingers crossed.
Thanks for reading
KellP
The lady I mentioned is on the Taxol too( I’ll move to that after 2 more EC) and with cold capping she’s kept(after 5) all her hair and has been side effect free, even when she forgotten to take the antisickness meds. Fingers crossed you’ll fare as well. Good luck.
Morning all! Nice to hear from you KellP. Glad you are staying positive. I too will move to Taxol after three FEC so I am really interested to read your experiences.
It is another beautiful day. What has everyone got planned? The only meds I have today are the lovely injections, but I do have emergency anti sickness if I need them. Yesterday was the first day I felt almost normal. I ate well and stayed awake all day. Didn’t do much though as even a little bit of housework tired me out.
It is my 30 year college reunion this weekend. I have now ducked out of the evening events as I just can’t stay awake that late, but I am going to meet up for a lunchtime drink (none for me with the injection meds!) so that will be nice. Need to slap on the factor 50!!
Good morning all, sorry didn’t post yesterday, spent most of it at the hospital. Yes they said they got all of it in the left breast and this is the “mop up” and the radiation. Fertility found my womb lining was too thick so have referred me for a hystoscope. Yesterday had welcome to chemo and was told that I will be having a canular in my right hand even though fertility clinic said vein in hand collapsed on them and they hand to use forearm, I told chemo nurse but she wasn’t concerned. Said they use baby needles for it. Oncologist in afternoon which was more confusing as I had to tell his registra what was there for! Had zolodek injection have anti sickness tablet for Wednesday. Apparently will have steroids and more injections to administer after first session. Hystroscope was booked for 3rd but having to be change to end of cycle 1. So much info!!! Hope all you ladies are doing well this sunny morning and are doing something nice, off out to do some chemo shopping for me (thermometer and mouthwash, etc) and some treating of my step daughter, then an afternoon in the garden xx
Well after a couple of days feeling very sleepy, I fee much brighter today and am attempting some baking for the football tomorrow! No other SE’s though just the sleepiness so long may that continue. Last day of anti sickness mess today, but first day of injections this evening ?
My patio is just in the shade now, so I’ll take some crafting outside and enjoy the air I think!
I went to my daughters and then week a weekly shop. My husband noticed I’m a bit slower cos he got up the stairs first at my daughters flat and in the two years she’s lived there, that’s never happened. I’m a bit tired but the day after chemo I wake up at even more silly o clock than normal so have been awake since 4 am, apart from a 20 minute doze a couple of hours ago. Partly tiredness caused by by blood sugar being completely out of control because of the steroids even after I took more than double my meal time insulin and added an extra lot lunchtime. I might ask them next time if I can skip them. Why do we take them? Ive also in my diabetic confusion taken my first filgrastim injection tonight instead of tomorrow. I had it in my head to do it in the evening and not the morning and just got it out of the fridge and did it after I ate my dinner (no loss of appetite here). Last time I was taking them first thing in the mornings soon as I got up so it’s only 10 hours early. Should be ok.
Everyone ready for the England game tomorrow? Don’t forget, 4-0.
I had a lovely day at my college reunion yesterday. I didn’t feel too good in the morning but was determined to go. So I took one of the emergency anti sickness pills and it seemed to do the trick. After s nice lunch we had a tour of the college and then sat in the quad enjoying drinks and nibbles (mine were non alcoholic!). I didn’t stay for the evening meal etc and was exhausted when I got home, but so glad I went.
I don’t know why some get filgistrim injection and others don’t. Maybe because of the chemo regime, or being TN or post menopausal? Who knows?
Lazy day reading in the shade I think. BBQ for tea. Have a lovely day ladies. X
Hi
I was prescribed the injections for chemo round two as I developed neutropenia after my first chemo and was admitted for four days IV antibiotics . They boost white blood cell production in the bone marrow. Happily no neutropenia this time! ?
Maybe I was just given them with from the first chemo because I’m diabetic. I checked my blood results and they all within the normal range (though they have dropped after). As a diabetic I’m supposedly more prone to infections but in the last 8 years since I was diagnosed I’ve had about 6 days off sick. I don’t get ill so though the figures say one thing, my immune system seems to be pretty robust. I’d not had a single day off in my current job until my first operation, the mastectomy.
I’m more concerned about the steroids because they do me no good whatsoever.
Aside from that, roast dinner cooking, doing loads of extra veg so I can have it for my lunch at work tomorrow, counting down till England kick off!
Lovely to see you are all enjoying the day, I’m watching football to! Ha£ a very tearful morning but ok now, just normal roller coasters of emotions. Come on england ???
