Iām starting chemotherapy on o9/08 and was wondering how the cold cap worked for you. Did you get any headscarf? Been looking online but to be honest i donāt like what i see ā¦
The chemi bag you spoke ofā¦ what goodies did it have?
Apologies for the questions butni thought to ask wjo has already been where i am nowā¦ and what are boiled sweets???Again my apoliges but Iām really clueless.
@bettyb24 ā¦ itās definitely not easyā¦but we are all made of strong stuff ā¦ we have to be going through this
You look FABULOUS by the way!! And more importantly glad youāre feeling comfortable with your new look! I know what you mean about others ā¦ I clock a few people staring at me now and again ā¦ but thatās their issue not mine
Thanks for the tips about the scalp care ā¦ Iāll look into that moogloo. Iāve also been using my sonās baby shampoo and aveeno body wash ā¦ Aveeno stuff is fantastic ā¦ my skin has never felt so soft!! Xx
@lolac ā¦ ouch ouch ouch hope you have a speedy recovery!
I now have v little hair ā¦ itās slowly gone and my boys kindly said that I wonāt āneed a mask for Halloween nowā!! Cheeky!!! Iām not brave enough to go out without a hat so well done those of you that embrace it all x
Think I may have to try some of the scalp recommendations from you all - who would have thought your head would be dry and itchy ā¦ arghhhhh
@alig1961 ā¦ why did they send you to hospital? Not taking any chances??? Slightly concerning that going to hospital is an actual risk !!! Glad you decided to leave!
Hi All
They sent me to hospital because they said I was experiencing chest pain which was radiating to my back which I knew was bad indigestion. They werenāt taking any chances but they were prepared to sit me in an acute medical assessment unit with no white blood cells and no air flow, open door or window for 5 hours. I wasnāt taking the risk. I know that they are acting in my best interest but I know what bad indigestion feels like and I wish theyād have listened to me. I hope I donāt have a black mark against my name now.
Iām just heading to north for 3 days in the campervan. I have every head attire going. Just trying to debate what to throw on my head as I walk over to the showers.
For sore scalp Iāve been using aloe Vera with tea tree oil from Holland and Barrett. Itās really soothing and cooling. I love it.
@pat ā¦ Iām the same!!! I have a 2/3 days post treatment when I canāt eat much or everything tastes odd but then itās all cravings for proper stodgy, fattening carbs!! I woke yesterday dreaming of Greggs veggie sausage rolls! I have no idea where this comes from as Iām not even sure Iāve even had a Greggs s.roll beforeā¦ luckily there isnāt one too near us otherwise I may have been outside first thing shouting for them to open!!!
I guess technically itās our bodies asking for stodge to support what weāre going through so letās not feel too bad ā¦ plenty of time for healthy living in 2025
Im glad Iām not the only one! My cravings are all for sweet stuff - a lifelong sweet tooth I have found that I am off my food for about a week and canāt eat until about 1pm, so I have a homemade banana milkshake which sees me through. In the 3rd week then I get the crap cravings This morning, for breakfast I had half a packet of Oreos, a couple of Party Rings and a pack of mini Jammie Dodgers. As my husband remarked, Iām going for the Big Girl snacks today
OMG re the fall. Not what you need right now. I had similar break/ fracture a few years back and you have to wear your brace and take it easy. I got a spare brace from Amazon. The old facture was spotted on my petscan recently - Iād forgotten about it. Please be careful and be kind to yourself.
Continued good luck with the hair and cold capping. Mine coped well during paclitaxel, fortunately my tumour didnāt and shrank a lotš¬ No idea how either will react to AC - cycle 2 this weekā¦
Thanks @jbb and others who sent kind messages. I am mostly just relieved to be home, but also now sinking in all the things I wonāt be able to do. Summer was limited, as it is for all of us, because of chemo, but at least I could get out for local walks/restaurants/theatre etcā¦Hopefully my ability to tolerate sitting and standing will improve in the next couple of weeks! Fortunately the hospital always find me a bed for chemo as my existing back problems made that easier!
Sat in campervan and allowing my head to have a little breather. Today I have worn my wig for 12 hours, thatās a record. Glad to get it off now though. Hope everyoneās had a lovely sunny Sunday.
Thatās the one thing that worries me about my wigā¦ getting hot. As soon as I put a hat on I get hot. I think is last five minutes, I even get fed up with my own hair.
I often wonder when is the best time to start treatment: winter - hats are OK but you canāt go anywhere because of the risk of infection indoors and summer - the UV, hot heads, heat and nausea, heat and sleepless nights, but at least you can meet up with people outside when youāre up to it.
Iād still prefer a luxury hotel/ chemo clinic for six months and to emerge like a butterfly
Yup. Luxury hotel with chemo that doesnāt involve cannulae or side effects, individually controlled heating/air conditioning, totally comfy chairs and unlimited snacks consisting of only carbs
Totally on board with the luxury chemo hotel idea!
I also found that my sense of smell is super heightened this week. Good thing is that I can use it as an excuse for the husband to do the bins more frequently Bad news is that food that Iām craving often either taste disappointing because there is something wrong with my tastebuds/sense of smell urgh!