June 2024 chemo starters

Erm nooooo @nicd i don’t think that is ok!!! :flushed::rofl: should have turned round and tickled under her chin like she had a goatee :rofl::rofl: but I do sympathise as I also have a very fuzzy face lately… I’m just glad it’s winter as I’m sure any sun on it would only extenuate it :tired_face::tired_face::rofl: I’m hoping it will sort itself out over next few weeks when hormones get back on track! Good news about hair though … on your head I mean … mine is also growing and starting to look thicker … although it does blend a little in my temples into my furry face!! :roll_eyes::grimacing::rofl::rofl:

Thanks @jojoh … yes it’s a horrid feeling … I’ll ask more about it tomorrow when I go for my follow up appointment … along with why all my bones seem to ache all off a sudden like I’m 101 now :tired_face:

Yeah a watsapp group sounds good! … loving the “Titty committee” name … made me chuckle … along with “breast friends” … both very good @ljlj :rofl::rofl::rofl:

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@wjs thanks for the recommendation, i shall check those out!
@ljlj
Both those names are good…

Sorry everyone is feeling old and achy…i took some vegan algae for a couple of months and do feel better ache wise (not 100% but better) but whether it would have just got better anyway i dont know. Ive had a break for a couple of weeks and didnt get worse…
Trying magnesium from this week, see if it helps aches/brain fog and sleep. Inshall report back!

Im 12 weeks past chemo today, that feels quite unbelievable…whilst this year has been long, 3 months have gone quickly!
Happy hump day !

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Hi @nicd do you have a link for the magnesium please? I was also interested to add that to my ever growing list of daily supplements :rofl:

@charlie22 here you go. Hope this works, when i tried to send link it wouldnt paste…Nutravita is the site. Got the algae (omega 3) from here too

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Loving the name suggestions for the WhatsApp group!!

I too have white fluff all over my face and will look into those facial razors @wjs and it is definitely not acceptable to have your face stroked @nicd!

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Stroking is totally unacceptable!!

I was thinking last night about the logistics of a WhatsApp group. I’m rather reluctant to post my phone number on a open forum like this. Maybe one person coordinating, as @wjs suggested, is the way to go?

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Hi
On the hair re growth course they said use hair removal cream and fingers crossed if you didn’t have it before treatment it should get rid of it for keeps. Hope this helps. X

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I’m up for WhatsApp group too. Love either name that’s been recommended. I too am a little dubious about posting number on here. @nicd as you’ve already given your number are you happy for us to WhatsApp you and then you collate and make the group?
I returned to work today, was looking forward to it but it wasn’t as I hoped. Kids had missed me but I felt out of sight out of mind with my colleagues. I think it’s going to take time to fit back in.
Xx

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Thank you @nicd I’ll get those added to my supplement list!

I’m sorry to hear your return to work wasn’t as you hoped @alig1961 … please don’t let it deflate you too much. I think we have all discovered over the past few months about those people that really matter and have been there throughout for us. I often think colleagues don’t really know what to say … I work in a team of 15 who I don’t often see, but when I do I have found that some will do anything to avoid eye contact now just so they don’t have to engage in conversation … I honestly feel they just feel uncomfortable and awkward and maybe scared of saying the wrong thing! It’ll take some time but you will get back to feeling like part of the team again soon I’m sure!

So yesterday I went to see my surgeon and I am so pleased to say he told me I am now CANCER FREE :raised_hands:t3::partying_face: all margins were totally clear and everything so far has done its job!! Just a bit of radiotherapy to do … but that will start a bit later as unfortunately my wound isn’t healing great, there’s a small hole and I have seroma, so he fitted a drain bag thing yesterday which I have to keep on for two weeks … no tight tops for me over Xmas…:roll_eyes::rofl::rofl: and immunotherapy again and I am also on Taximofen tablets for 5 years!!

Anyone else who has reached this point feel really overwhelmed?? I couldn’t stop crying yesterday and went from feeling really elated to really numb with thoughts of what the actual f@#k has been the last 9 months mixed in!!! :face_holding_back_tears::flushed::exploding_head: Crazy … but I woke this morning feeling lighter and determined to enjoy the positivity! Only downside is I was advised to cancel my Pilates plans in January and delay going full force back into a fitness regime… which I was actually looking forward to strangely!! :rofl:

:two_hearts::two_hearts:

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Just catching up with you all… totally feel the same…
I went into my school for the morning yesterday to watch the Christmas play.
All I did was hug everyone and felt like crying but glad I went…
Yes please to what’s app group
The titty gritty breast friends committee?
Happy to message my number to anyone?
Or equally happy to set one up.
Charley

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I’ve been on Letrozole for 6 weeks now.
It’s given me achey joints definitely, feel
about 100yrs old some days. Also a bit of dizziness and tummy upset… I’m hoping it all settles down. I go on the other one in jan… the ciclib one…

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Re the WhatsApp group, would it work if we private message our numbers to one person so they’re not on view on the main chat? You can do this I think by clicking on the person’s name.x

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Good news from the surgeon @charlie22 hopefully you’ll get the all clear to start RT soon.

That sounds like a good plan @wjs we just need to decide on the ‘responsible person’ :grimacing::smiling_face:

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Sooo much to catch up on team!! LOVE the group name… I’m happy to coordinate if everyone privately messages their numbers to me - you can either give your real name or stick with your June group name!!! :rofl:

I have been up and down like a bloody yo-yo this week… one day fine & positive, physically feeling pretty good then next day feeling 100 & struggling to walk up the stairs without aches and crying outside Argos coz Xmas lights had sold out (wtf!!! :flushed:) … it is all exhausting and overwhelming… I’ve never felt such extremes before in such short periods of time & with no apparent logic!!! Im so glad I’m not alone with this rollercoaster of emotions!

Touching your face is a NO but did make me laugh…maybe smack her!!! Ha ha … people are so unpredictable with their responses to us! You get tilted head ‘aww’ look or the over compensating chat about how amazing we are or the absolute worse … ‘let’s pretend it’s not happening’ response… argghhhhh …

Keep going everyone… no matter where we are. We can all see the light now even if Argos has sold out!!! :rofl:

I’ll set up the group - message me xx :two_hearts:

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I’m not implying I’m the responsible person though!!! Ha ha, definitely not at the moment :rofl::rofl::rofl:

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Thank you @donna_51
I’ve messaged you x

Ive not been sleeping well and have been getting more and more tired on an average of less than 5 hours sleep a night at the most. After a bad day yesterday it dawned on me that I may be not sleeping because of discomfort from the skin oversensitivity after the nerve damage from the operation :roll_eyes: I wore a bra in bed last night for the first time and slept for an extra 4 hours!:woman_facepalming:t2: Long may that continue!!:rofl:

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@donna_51 I’ve messaged you x

Sorry @donna_51 didn’t mean to pass the buck re setting up the group :laughing: but thank you for sorting. Will message you.x

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@pat I wore a sports bra to bed for several weeks after my op. Glad you managed to get some more sleep and hope that continues!:crossed_fingers:t2:

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