I have to say that I’ve been quite impressed with the response to this from the NHS.
I spoke to the hotline who thoroughly evaluated me and coz it’s out of hours they said to call 111 to get a prescription for extra anti sick meds.
In less than 3 hours I’ve spoken to a doctor who has sent a prescription I can pick up tomorrow and assured me about taking 2 remaining tablets I have in my collection.
I currently don’t feel sick either… whoop whoop!
@kp1 were you not on anti sick meds before starting chemo? I was, I had 2 types to take plus the steroids but I had to take one anti sick 30-60 mins before starting chemo.
Seems like we may all be on different meds for managing the side effects.
Hi all
So hair seems to be the theme, all my hair started to fall out in one day- the quickness of it surprisingly me no warning, i have shaved my head right down. Getting anxious about round 2.
I have felt so alone, as many of you have said somethings are difficult to say to friends.
You guys keep me going and a reminder each journey is slightly different.
Thank you all xxx
I’m on day 32 after 2 courses of EC and havent lost any hair yet! I am expecting it every day though so not counting my chickens yet! I have been cold capping with the paxman machine and using Faith in Nature Rosemary stimulating conditioner under the cap and the same shampoo and conditioner when I wash my hair once a week. I also use Nature spell rosemary oil mixed with argon oil massaged into my scalp 2 days before washing.
The smell of rosemary now makes me feel a bit sick and I never want to smell if again after chemo!
I’ve had the painful scalp and tingling after both ECs but it goes off and so far no hair loss. I have lost all pubic hair though so there are some positives- no more waxing. Sorry if TMI!
I was told if you do lose hair though to carry on using the cold capping as it will allow your hair to grow back faster.
Oh that’s encouraging! I hope it continues to work for you! I think I am losing a bit more than before chemo but not much yet, the hair wash yesterday was ok.
I read that even if you lose your hair when cold capping that if you continue with it the regrowth is quicker, but I know if lose mine I won’t continue with it! I couldn’t wear my glasses with it on so if it all goes I’ll swap the cold cap for my specs 
and the sessions will be shorter and I can read stuff and see peoples faces instead of sitting in a blur the whole time!
Another heat wave starting today, anyone else think we were all a bit daft signing up for chemo in a heatwave 
. (I’m sure it’s just as miserable in the depths of darkest winter). Stockpile callipos, Soleros, carte d’or and bags of ice. One day at a time we will get there x
Ooo icce cream i tried some yesterday in the geat hurt my mouth and tasted foul, ice pops is todays trial.
@runnerjen i hope your hair stays, but if not enjoy the view 
On the hair theme… I shaved mine to a 4 the day before EC2. The combo of the look in the mirror and the fatigue got me down but a week in and I’m feeling so much better.
I had some denser clumps which have gradually thinned (or I may have gently picked a bit at them) and it’s now a very thin fluffy layer.
It’s still gradually falling out but I think I’ll leave it rather than shaving more off and let it just fall out.
I really only want to keep my eyebrows and eyelashes but I’m hoping they are last to go.
I attended an online scalp/hair course with the feel better (?) people which was really good.
They recommended DrOrganic Tea Tree face wash for washing your scalp as it is gentle but the tea tree is good for it - I can’t remember the words to explain why!
I also bought the moogoo scalp cream which is lovely but I haven’t used much because I’ve spent so much time lying down and it’s too hot for a head covering. I don’t want to get it on the furniture!
The moogoo udder cream is lovely for skin too I’m going to use that through radiotherapy.
Hope you are ok, I’m just reading on how you’re getting on. Hopefully the sickness meds will do the trick. You’re now 2/3rds thru EC! Well done you! I’ve got 3 weeks and 3 days left of chemo! Can you tell how I’m counting down…
just want to get it done now! 18 weeks nearly done! 
@warmfuzzies
This morning I have been to a Look Good Feel Better skin care and Makeup workshop! It was so good, I highly recommend you go to one if you can. You get a fantastic good bag of products too. It was also great to sit and have a chat with other women going through cancer treatment. I love our online community but this was the first time I’ve spoken in real life to other people going through it too. It was held at a local cancer charity who do lots of other stuff. So now I’ve been there I feel confident to go to some of the other things they do like drop in groups or counselling ect.
Sorry a lot of you are at the hair loss stage now. I can also recommend MooGoo scalp cream. I sort of pat it on my scalp.
Hope you are all keeping cool 
x
It’s such a good course isn’t it! And like you it was the first group I’ve been to face to face and good to talk. And the goody bag is great! Take care x
Ooh, I’m booked onto a LGFB course in early September. It’s great to hear that you enjoyed it.
My wig arrived yesterday but, rather than looking like I had fabulously tousled beach hair like the previous purchasers online, I looked like an escapee from an 80s metal band who’d fallen on hard times! I think I’ll need to find somewhere to try them in person. Until I do I have some halo hair which looks nice under caps for when my hair falls out…
I hope you’re all finding ways to keep cool. I’m taking my son to the ice rink (wearing a face mask) as it’s wonderfully chilly and also empty during the summer!
Hey @warmfuzzies yes they gave me what they called gold standard anti sickness tablet an hour before treatment. Going to take a different tablet tonight.
Had my 2nd cycle today and found the cold cap a little harder as lost a fair bit of hair the last few days. The clumps that came out yesterday was hard but like you I’m more concerned about my eyelashes and eyebrows. I didn’t have time to sort micro blading but looking to get some transfers ready for when needed.
Glad you are feeling better xx
I had the gold standard sickness meds on EC and then they gave me something different on weekly chemo but it still have worked well x
They were surprised when I was sick on the first night but thinking perhaps I may have just ate too much and it didn’t sit well. I’ve had a lighter meal tonight and so far so good🤞x
Morning all, another hot night, I hope you all got some sleep. I just read in the news that the next three months will be hotter than average and may lead to more restrictions on water use. Have you guys heard of the Priority Services Register? As we are all classed as disabled due to cancer we can register for free:
“Water companies prioritize customers with disabilities through a free service called the Priority Services Register (PSR). This register ensures extra support and tailored services for individuals with disabilities or other vulnerabilities. Signing up for the PSR can provide various benefits, including assistance with bills, communication, and emergency situations.”
I registered with our water company and energy provider. If you haven’t yet it might be worth doing, have a look online on your provider’s website.
I believe that if there is water outage they must provide our home with water rather than me having to queue in a car park to collect bottled water etc. As we are on chemo we need to be able to drink plenty so it was recommended to me to register by the Big C centre. Also if there are power cuts I get updates on the situation too. I remember last year there was a problem in Hampshire where my sister lives and they had to collect bottled water for days. We can cancel off the register in future if we no longer feel that we need priority care. X
Same here. I’ve decided today is the day I’m going to cut it all off.
It looks good under a cap or scarf but awful without - and in this heat I want the choice. Also I’m sick of constantly picking hair off my body, clothes, bedding, it’s still shedding everywhere.
A pixie cut was nice for a few weeks and possibly allowed me to come to terms with what’s happening but now it’s time for the next phase.
Well, that was quite a few days.
I had some time off work this week so was spending it catching up with friends and having quality family time. I was climbing out of the extreme fatigue but feeling a little better every day. Wednesday I felt great.
Then Weds night I woke up shaking with a temp. Ended up in hospital until fri on an antibiotics drip. The antibiotics did their job. They couldn’t find the source of the infection and all tests came back clear - phew. WBC was good. They said sometimes the chemo drugs do this.
Anyway feeling better now, if a little tired as I can’t sleep in hospitals.
Good news is the oncology team said I can stil go in on Monday for the next chemo cycle - so no delays.
That must have been scary, so glad you are ok now though and able to have your next cycle as planned.
Thanks for the tip about the PSR @runnerjen - we’ll definitely register.
@runningandgin sorry to hear you’ve had such a rough few days. I’m glad you’re still able to stick to your planned chemo day: another step closer to coming out the other side. Good luck with your hair later. Mine has started shedding now so I think I’ll be booking in for a no. 4 soon too…
I think you’re completely right. I need to do it as well. I’m scared to have my kids see me in the morning now. Would be better without the straggly bits.