June 2025 chemo starters

@jenny4 and @moomoo716 its so encouraging to read that you are both getting on ok with Ribo. I’m due to start it in April and I will try to remember about the dark chocolate and exercise :blush:

I finished radiotherapy on Monday! I felt so relieved and excited to finally be at the end of active treatment. I keep going from feeling happy that the big treatments are finished to feeling sad that I had breast cancer and had to go through it all in the first place. Rollercoaster emotions all the way. Today I am super tired so I’m just pottering around the house not doing much. The sun is out though and those alliums I planted during chemo are starting to poke their heads through the soil :blush:

Wishing you all a gentle day x Spring is on its way x

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Definitely the ups and downs theme is pretty consistent between us. Coming up to a year since my diagnosis. What a difference a year makes - what a year we’ve all had. Hope you’re feeling a bit better @cl4reh @runnerjen. Hope the chocolate worked @jenny4. Lovely to see those alliums popping up @twinks77 - a definite sign of us progress/moving forward. Had my first zometa last week - first 40hrs were rough but fine after that. My veins are awful -4th attempt to canulate :see_no_evil_monkey:. Starting abemaciclib on Wednesday this week :crossed_fingers::crossed_fingers:. Hope you all have a lovely week x

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Hope the start of your new meds is going well. Sorry to hear that you had a rough time after zometa too.

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@twinks77 congrats on finishing your radiotherapy! :tada:

How is everyone doing with the various drugs we are on? My letrozole makes me feel mildly nauseous, I take it after breakfast but am wondering if switching to bedtime might help. I get hot flushes day and night so I doubt it would make any difference there.

Work has been better this week, it’s my fourth week and despite being really busy I have coped better, less tired after and it’s felt more like my job - until this week it felt so strange, like I was new. I’m sure one of you said it took about 4 weeks before you started to feel it was do-able again - I forget who but I have been hoping it would apply to me too!

I hope you are all doing well and getting out when the sun occasionally shines!

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Hi @runnerjen

My drugs are going well for now. I take both my letrozole and ribociclib in the evening with a meal. I sleep fairly well although usually have one sweaty wake up then cool down and back to sleep. I plan to try Ribo in the mornings next cycle. This is mainly because I get acid reflex and wondered if it might make things easier but to be honest there is not really a problem. Just trying to find the optimal timings. The Ribo instantly caused mega constipation but I have developed my very own super fibre smoothie for lunch. It basically revolves around 2 kiwis (skin on) and 5g psyllium husk powder. Absolute game changer if you are prone to it like me. I can’t actually believe how much better I feel with the bottom behaving itself.
On the good news front - port comes out on Monday. I can’t wait. I can start Pilates up again with feeling anxious that I might dislodge my port.

I’ve had my 2 week blood test but they didn’t give me the results so I suppose no news is good news.

The letrozole has made me much stiffer although I loosen up as I walk. My lower back is complaining atm but I’m not sure whether to blame the letrozole or running and old age. I’m hoping the Pilates will fix it.

So all in all - I think I am doing well with the side effects. :crossed_fingers:

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Hi everyone,

Great to catch up and read about how you all are getting on with treatments.

A little update, I started Abemaciclib last week which I’ve had some diarrhoea but nothing too bad, I just take loperamide and then I’m okay. I’m keeping my fingers crossed hoping it will settle and not get worse, because the plan is to return to work end of this month if I am okay with Abemaciclib. I also had my mammogram on Wednesday, I now have to wait for 3 to 4 weeks before I get the results. Is the waiting that get’s me. However, there’s nothing I can do but wait. Then see my surgeon for a review in April.

I wish everyone the very best with the new treatments.

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