@moomoo716 I’m so glad you’re feeling better on Ribo now. I am too though I have bloods again on Monday and am dreading my neutrophils coming back super low again…
@runnerjen the heatwave gave me chemo flashbacks too. I don’t know how we all got through it last year. This time I felt very lucky to spend most of the heatwave kayaking and to have a full covering of hair again-even if it is a bit of a mullet…
Me too… on the memories of last year. Though feel my brain has blocked a lot of it. X
Oh, what I’d give to have a mullet right now.
That’s something I never thought I’d say!
Yes, I much prefer this stage to my previous Gollum look but even my husband says I look like Rod Stewart! On a positive note Ribo doesn’t seem to have caused hair loss-I know it’s a possible side effect and would be really depressing to lose hair again just when it starts growing post chemo…
That’s a relief! It would be too cruel to have more hair loss now. Mine is growing well / sticks up a bit, like McDonalds chips! Nice problem to have though!
I’m off to see my plastic surgeon this afternoon for a checkup, presumably the last one. I expect they will ask if I want nipple surgery (no thanks) or the tattoo - I’m really unsure about that so have asked on the forum if anyone can recommend it. I expect I will say no thanks!
Also just booked blood test for Zometa number 2 next month. That’s come round fast! Hope you’re all keeping well and enjoying the small things still - good coffee, a nice book, etc xx
I’ve had a little bit of hair loss/thinning on Ribo but nothing mega. My eyebrows are finer than they used to be. My leg hair is random and I no longer have to shave the hairs off my chinny chin chin everyday. Still buzzing the buzz cut but at least it’s thick. I’ve been delaying the zometa but I have run out of excuses so will have it next month.
I am thinking of giving wild swimming a go. I’m not a great swimmer but good enough to keep out of trouble. I’m hoping it will be good for the mental health.
Hi all! So good to hear how everyone is getting on. I’ve been working my way through a phased return to work for the past 3 months, bloody exhausted. The mental fatigue has been eye opening.
Can you believe it’s been a year since this group started. I got a bit emotional seeing that the June 2026 group had been created, thinking of all those amazing ladies starting their chemo journey.
@runnerjen hoping some people come back to your discussion on the forum about the nipple options. I always thought I’d want to go down the tattoo route but read terrible things about the NHS nurses doing it.
Also wanted to share about The Lounge Foundation they provide grants to women affected by cancer. Grants can be used for various things such as making memories, counselling, alternative therapies, financial impacts of cancer etc. I’ve just noticed their applications have closed but I think they open every few months. I applied last year and got funding for a tattoo artist to do a nipple tattoo. They even went away and found someone and will sort it all out when the time comes.
Hope you are all having a lovely Saturday.
It’s so hard to know what to do with tattooing, I’m so scared of getting it done and hating it. The surgeon suggested I come in and just have the ink painted on to see if I like the colour match to the other one. So I might try that with no commitment! I know a good one would look better but I’m just scared if I do it and it’s not good and then I hate looking at it! None of this is easy is it? Even now, when I’m getting heavy hints from an in-law that I should be putting it all behind me now like her friend did. As if I don’t want to do that! It’s still hard, the drug side effects, appointments for the infusion, waiting for a mammogram and deciding about my boob - it’s not behind me!
Anyway, apart from that, I’m enjoying the small things still and really getting back into my reading and book review hobby. X
Will it ever be behind us? A lady on the BCN moving forward course did say that it does get better and you do put it behind you but that seems a long way off atm. Especially with the Ribo. I can’t even be bothered to explain to people why the Ribo means it most definitely isn’t over. I certainly can’t put anything behind me. I’m tired of being a zombie.
The fatigue does my head in. Some days I’m ok but more often I’m a zombie by 2pm. Only having maybe 5 usable hours of energy those days is horrible. It’s genuinely life changing, I had some fatigue before this with endo, but this is much worse and barely anyone understands. Granted it might improve still, but it’s crap to think that this might be it for the next 9 and a half years. Learning to pace ourselves is going to take time I know, it will get better then but until then I keep overdoing it on good days then paying for it for days after!