Well, first session over! Went quite well I think. I was seated next to a really lovely lady and we spent most of the session just nattering, so my book stayed in my bag and I completely forget about my sweets. Kept supplied with tea and biscuits by the nurses
I had two canula put in, a spare in case they needed it as it was the 1st session. It was needed as I had a reaction to the Docetaxel. It started as a pain at the bottom of my spine then became quite intense and throbbing on both sides. The docetaxel was stopped and I had an antihistamine and steroid put in through the spare canula. There was a pause and the docetaxel rate was dropped right down which seemed to work. And we carried on. Took longer than anticipated but no other problems. Was fine catching the bus back home. Had pizza, and went to bed as feeling very tired. I slept really well. Tummy has been a bit achy this morning and had soft stools (apologies for the detail!), but other than that feeling good. I even took the dogs out for a walk as anticipating side effects may develop over next day or so, but hey, weāll see.
I hope everyone going in today does well.
xxxx
@attheseaside well done on getting the 1st one done. Thanks for the update and glad youāre not feeling too bad todayā¦.long may that cont.
Good luck to everyone else starting today.
Hi everyone
Just a wee introduction as I will be starting chemo this month - still working out the dates. It will be four cycles of EC and four of Pac - I think a few people are on this in the thread?
Was diagnosed with Er+,PR+, Her2-ve IDC at start of April, had therapeutic mammoplasty at the start of May. Nodes had looked fine on scans, but turned out that two of the three taken in SLNB were positive and one was heading off beyond its margins, ecologist was pretty sure they would find more if they looked so its throw the kitchen sink at it time. Will have chemo, then node clearance surgery, then radiotherapy.
As with most of us the irony is that I felt well before all of this, just noticed a wee dent in the side of my badly behaved boob.
Good luck to everyone starting this week!
Good luck to everyone starting chemo this week!
I had my PICC inserted by a consultant last Friday (and he had to go for the second choice vein as apparently I have very narrow veins). Horrendous bruising (nurses had to check nothing sinister) but it is in and done!
Chemo this morning was fine. Nurse stayed with me throughout. I shaved my head on Sunday and havenāt cold capped. The room was pretty warm to be honest. Another patient was cold capping and they had a blanket etc as I think they were feeling colder.
I took loads with me but next time wonāt! However on subsequent sessions I wonāt have a nurse with me throughout so may be able to read a bit more and catch up on podcasts.
Am now feeling a bit fuzzy-headed and had my sonās Dad check I was setting the medication alarms correctly, but otherwise Iām just delighted to finally be doing something!
Take care all, lovely to read your updates. ![]()
Welcome @binky hope you get your date soon.
@attheseaside and @beef2000 well done for completing the first day!! Glad it went well for you both.. I had my picc inserted today and took a bit of doing as my veins were hiding so had to have a few attempts!! Felt all of them too!! I have to say itās not the most comfortable as I feel something pulling my bicep But I suppose it will settle.. hope this is normal..
keep in touch about how youāre feeling..think thereās a few starting today hope you all got on ok..
mines Monday start for me
Hi all
Just hopping on from April and May (long story but in a nutshell started adjuvant EC-T for TNBC in April and treatment changed to neo-adjuvant Pembro/Carbo/Pac/EC in May) to wish all you June starters good luck.
@attheseaside I had the exact same reaction to Paclitaxel on Friday. Itās the weirdest sensation, isnāt it? Nurses were great though and like you, it was all quickly fixed with antihistamine and steroids and treatment was completed with a slower drip.
All the best to everyone. x
@mssteel I was amazed at how quickly the nurses reacted. I have previously had a prolapsed disc in the same area which still feels sensitive from time to time so thought initially that I had just been sitting a bit weird and set it off but as it got more intense they were very quick to act.
Hope everyone else doing ok?
For those waiting to start i had 1st EC cycle yesterday.
PICC went in fine luckily.
Chemo itself only took about 40minsā¦i think 4 syringes of epirubicin and one of cyclophosphomide.
Sat there for an extra 1hr15 with the cold cap (30mins before, 45after). Was cold and stinging for about 10mins then numb then just v tight feeling for the restā¦not pleasant but tolerableā¦will keep going for now.
Didnt finish until 5pm. Yesterdayā¦just v tired, bit of a headache and stomch just feels not 100%. Nausea ok but am taking all offered -apripepant, dexametasone, ondansetron and even metoclopramide when needed. Same symtpoms todayā¦all manageable.
About to give myself the G-CSF injection ![]()
Sorry long message but just in case this helps anyone yet to start. Xx
Glad it went well @beef2000 1st one done, one step closer to the end ![]()
Also had my first EC yesterday and sounds like a very similar experience. Found the cold cap a bit chilly and heavy, but definitely bearable. Iād taken layers and a blanket in case I got cold but actually was quite happy to stay in joggers and a T shirt the whole time.
Was at the hospital for 5hrs in total but lost track of all the different timings - prep stuff, cold cap, chemo drugs etc, chatting to nurses, loo visit with the drip stand. It was so ābusyā and interesting I didnāt even have time for my downloads or book!
Was awake a couple of times during the night (steroids?) and my tummy felt a bit off. Feeling a bit spacey today but have been out for a walk with a friend dodging the showers.
Feels like a full time job keeping up with all the meds Iāve brought home too!
Thanks @beef2000 and @jillylovesgin for sharing your experiences yesterday. Great to hear about the cold capping as Iām going to try friday. I hate being cold and Iām such a woose but will give it a go!
for those getting Phesgo or other long SC injections in the thigh Asda have a brilliant range of āaccessibilityā clothing. Iāve got a pair of joggers with zips down both sides so I donāt need to pull my trousers down and a wee hoodie with zips in random helpful places.
anyone on docitaxel doing the cold gloves and socks? Worried Iām going to be icing my entire body at this rate!
Hi @eils85 , good point about the trousers.. what are the injections for? Iāve not been told about any injections I need but I read so many people have them..
Iām not using cold gloves Iām going to try compression gloves and socks instead.. Iāve seen a trial
Showing that they are as effective as cooling so maybe a little more pleasant to wear.
Good luck for tomorrow ![]()
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@beef2000 and @jillylovesgin thanks for such a detailed description, it is really helpful and reduces the anticipatory anxiety a bit. How have the last day or two been?
thatās interesting @loopylea about the compression gloves. I have ordered Suzzipad, but they have arrived and are really heavy, so Im wondering if they will be a real faff to use and if I have bought a donkey. Starting to think that I should return them as they arenāt cheap and turns out having cancer is really expensive!
Compression gloves and socks sound infinitely more bearable, wish I hadnāt chucked out all the compression socks I wore during pregnancy now!
I canāt believe how much we spend when we are diagnosed.. new boobs, bras, creams lotions and potions, clothes, wigs, wig holders, wig products, dentists, food, (blueberries in the amount Iām eating are expensive!) changing cleaning products to none hormone disruptive products.. why dishwasher tablets have to be so many more pounds than normal ones I donāt understand! Compression garments, etcā¦. Iām nearly spent out this month already and itās only the 5th!!
Hi
I hope everyone is doing ok and really helpful with everyoneās tips - my Amazon basket is getting very full
Yesterday I had the HER2 drugs and unfortunately had a reaction to one of them and spent 8 hours at the hospital. I was very sick but the nurses are great and stopped the treatment and gave me Puriton and anti sickness. My blood pressure was low and stupidly I hadnāt drunk much and they said I must drink lots. Today having Docetaxel and something else (havenāt learned the names yet). Best wishes to you all xx
Sorry to hear youāve been poorly @joc2 . I wonder if we are on the same regime, Phesgo injection in the thigh (for HER2), docitaxel and carboplatin every 3 weeks?
I hope part 2 goes well for you today xx
Many thanks eils85. I had pertuzumab and trastuzmab for HERS2 on a drip but yes having same as you Docetaxel and Carboplatin today. During my treatment I ate some custard creams - donāt think I will ever eat them again
. Feeling very chilled this morning after all the Piriton they gave me yesterday.
They will do steroids today before treatment as I couldnāt take them yesterday. Good luck for your treatment and will be good to compare notes.
Sorry to hear you were unwell yesterday.. Hope all goes well today @joc2 , crossing everything for you ![]()
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Im spent up too, it will be old clothes and porridge for the rest of the month. Although, I suspect that none of us will be dancing the night away for a few months. But I do now have a nice array of lotions and potions which I think have cost the equivalent of a weekend away. You just want to ensure that you have all the things that might make a difference and give you a feeling of some control over your life.
sounds like a rough day. I hope today has felt a bit better.