Ann, Emma , Faye, Deedee and Pat hope tomorrow goes well for you. Big hugs.
Emma (Peachy). Congrats on house. Good news is always welcome.
Welcome Izzy , hope your scan goes well.
Deedee - glad you had a lovely time in Ayr. Must be great to take a break from this for a while.
I went to sleep without my cap last night as it was so hot. OH thought there was a convict in the bed.
I,m still coughing and my voice is fast disappearing. Hope my bloods are OK tomorrow but as they need to be collected from the doctors and taken to the hospital, it will probably be a while before I hear. Being rural is a pain sometimes when things like this need doing. Everything is looking very beautiful in the sunshine though.
Just a quickie after my weekly fixation with The Apprentice.
Cress - sorry your hair is gone, but welcome to the ever-expanding no-hair group.
Ann - Happy Birthday and enjoy all those choccies. Your stories make me laugh, your house not the place to be tonight, poor hubby, is he sleeping elsewhere?
All the best for tomorrow, hope the SEs will be none this time for you.
Izzy - welcome to the Jewels.
taylorJ - what a precious boy your son is.
Emma ( peachy) - great news about the house, lovely to look forward to a new home
Deedee - I had Emend for cyle 2 and no headache. The nausea was not as severe as it had been in cycle 1 (without Emend), but unfortunately lasted just as long - until day 12. So I will ask if there is anything else I can try to reduce this for cycle 3, as it wore me out and got me down.
Pat, Emma, Deedee and Faye, joining Ann at the bar tomorrow - all the best to you all.
Hi Marion, hope you don’t mind me asking but where did you buy your sleep cap from? My hair is rapidly going, my head is really sore and hurting, but I need something for sleeping in, I don’t want my OH waking up with a convict now do I.
Emma ( Peachy) Well done on the house front, something good to look forward to, and it looks fab.
i have a really bad cough, had to sleep sitting up last night, hope it won’t stop my cocktail today!!!
all the best to everyone today.
Pat Xxx
Morning Jewels
Congrats on the house Peachy it looks great and hopfully it will give you major distraction from BC without to much stress I love moving been in this one 3yrs and getting itchy feet should really think about downsizing but due to divorce and everything may have to wait till property market takes a decent turn and finish hammering out all the finacial side of it.
Good luck at the bar today girls ,I am seeing ONC today,chased up my physio yesterday because the cording is so painful and my full arm looks a mess ,and found out that they had forgot to send the referal shes going to chase it up as urgent but having one arm thats about 2" shorter makes little things to do hard luckily its still sunny because as ugly as the arm looks still cant tolerate fabric against my upper arm feels like sandpaper rubbing.Read up a bit last night on the lympomea and scared myself to death so resolving now to avoid google and keep myself in the dark until I can see my doctor.
Well better get sorted appt at 9 at the main hospitail so need early start and wits about me to get through rush hour traffic,on a 3-10 today so hope everyone has a great day in the sun.
Jill xx
I DON’T WANT TO GO Feel shite with this tickly cough and cold (snap Pat and Marion) without adding more s/e’s to it. Reverting to child once again, going off to my corner to hide!!!
Melrose, I don’t want to go either. I was up at 5, walking around the farm. I have horses with ages varying from 23 to a pair of 2 year olds and a newborn foal. I lent on the gate watching the youngsters and realised I have so much to look forward to and therefore a few weeks of sxxxxx has to be tolerated with as good a grace as I can muster.
We must be strong and we must realise that modern medicine and wonderful medical staff are there for us, plus our family and friends who are helping us get through this blip in our lives.
Sermon over and back to reality. I am hiding under the duvet, but the gallon of lactolose I have had is about to force a jet propelled route to the bathroom. I managed to frighten a horse this morning with my impressive range of farting, the poor filly trotted off with a very startled look on her face.
Come on Melrose, we can hold cyber hands and get through it. xxx Windy Miller Bald Eagle.
Good luck all of those quaffing at the bar today - it’s another one ticked off and one less to go.
Emma - Peachy - a new house - so exciting - I’ve been in mine for just over a year and am still doing it up - I love decorating!
Emma - Melrose - ditto all the advice above. Sending big hug x
Deedee - I’m on T-Fec but the T (for Taxotere) that I’m having is Docetaxel - and I haven’t had any sickness at all with it (plenty of other stuff though !)
Ann, you made me laugh - scaring horses - now that IS impressive wind. One of my friend’s husband wanted to know what would happen if we tried to light one (such a child!) - I told him that I didn’t want to be responsible for burning down the town.
Jill, sorry you’re having cording issues - I was having terrible trouble but the physio did give me some very good exercises and things are slowly improving. I’m the opposite though, I’ve lost so much feeling around the top of my arm and the underarm area, do you think it will come back ever?
Pat, hope the cough improves. My head was really sore just before the hair packed it’s bags and evacuated! it’s actually a relief now it’s gone!
Off to visit my parents with my three boys. My daughter is staying home ‘tidying her room’ I’ll believe it when I see it. My mother hasn’t seen my new look - ES said I look like like a Fascist - thanks Fred.
Much love and hugs to everyone. Cress x
Will check in properly later but just want to wish Emma, Ann, Faye,Deedee & Pat all the best at the bar today…thinking of all of you…another one ticked off ladies…sip those cocktails slowly!!!..
Good luck to Pat, Emma, Deedee, Faye and Ann today.
Emma, I know I will feel the same next Wednesday, but you can do it. It is a short time we have to do this in the scale of our lives. We are all holding your hand virtually xxx
Peachypal - great news! Gives you a lot to look forward to.
TaylorJ - your son sounds so kind. I have 3 sons and boys can be so loving to their mums, can’t they? What a blessing.
Pat - I bought 2 sleep caps, one from Bohemia Headwear and one from Annabandana. I don’t wear them yet in this heat but I keep one under my pillow so I can pull it on quickly if one of my sons comes into my room in the night as my balding head could give them a shock!
Izzy - welcome to the Jewels. I hope you’ll find it helpful and supportive here. I’m having chemo before surgery too, and there are at least 4 or 5 others as well.
Marion, Emma, (sorry can’t remember who else) hope your colds and coughs get better soon. I had a cold the whole way through my 1st cycle and never told anyone as I was scared it would delay things - naughty but it cleared up by itself. You were right to get checked out if you are worried, Marion.
Ann, you do make me laugh
Thanks everyone for your messages and support yesterday. Determined to get as much info as possible from the onc this afternoon on what I should be expecting.
Right, better go and hang some washing out before going to see the ‘headcase doctor’ then the ‘bad cells and lumps’ doctor.
followed tips re seeing my granddaughter in her school concert, put me on side out of the way of everyone else, dont know what they thought, but hay dont care any more, think its now time for us to think about ourselves and not worry about what others think, although i would nt be brave to go out without my wig.
1week to go before poision time and aleady starting to feel anxious, just hope it wont be as bad as first cycle, sorry this sounds crappy, feeling very low at moment.
love to you all
Katherine xx
Good Luck today Joan, will be thinking of you, don’t take any rubbish from your Oncologist, they are there to help and reassure you, not be negative! You’re right about sons, they are a blessing, i honestly don’t know what i would do without mine, he’s 23, works nights and is in the middle of a degree yet insists on coming to call of my appointments and scans etc with me, even if he hasn’t had much sleep, i tell him that he doesn’t need to come to them all but he won’t hear of it. He actually asks more questions than i do and knows exactly what to say, i’m single and both of my parents have passed away so he really is a god send, as well as making me tea, cooking and making sure he is with me when i have my Chemo. He also tells me constantly that he would rather have me here wearing a wig then sat next to just a ‘wig’ which makes me laugh x
Can i also ask any of you ladies if you’ve had the Picc Line and if it’s uncomfortable? I’m having one fitted on Monday and i’m nervous of how it will affect everyday life, that’s the least of my problems i know, but it’s the fear of looking like a ‘cancer victim’ i guess I have a read a few things online but wondered if anyone could pass on some advice? I hope all of you having treatment have a good day without too many SE’s xx
Hi Jewels
Haven’t posted for a while but have still been reading. I have been enjoying a week of feeling more ‘normal’ and having my taste buds back, put on a few pounds due to this though.
Hair has been blocking up the bath and very little left now. I have been throwing it out of the bathroom window for the birds to use as nesting material-recycling lol. Got wig yesterday. My hair is quite long but have got a shorter wig as figure I will have to wait ages for my hair to grow again so had better get used to shorter hair, quite like it. Got a couple of nice scarves too.
I have been on an emotional roller coaster this week. I feel that since diagnosis I have been on a wave of appointments, worry and trying to get and digest loads of info and then after chemo felt dopey and this week has been the first time I’ve had a clearer head and time to myself. I have fluctuated between being a grumpy bitch and losing the energy to fight and feeling very positive with a ‘I can do this’ attitude. Had a lovely day yesterday with a good friend who came with me to get wig and then had a meal and a good natter by the river in the sun-did me a lot of good. Had lots of lovely messages from workmates and long time friends and think I can stay in positive mode now for bar tomorrow.
Hi and welcome Izzy. I too am having chemo first-8x Fec-T
Good luck today to Ann, Emma, Faye, Deedee and Pat-hope it’s not too horrid.
Marion-hope cough gets better soon.
Love to all
Jan xxx
Cazzer-I have had a Picc line. It didn’t hurt at all going in and it was a little itchy and sore for a few days as my arm adjusted to it but I don’t even notice it now. The district nurses come round to flush it with saline once a week and clean it up-they told me no stretching with that arm which I keep forgetting when doing things such as putting washing out.
At the hospital they left the bit that they attach the drip dangling which was annoying as it would catch on things. The rest of it is covered with a thin sticky see-through cover. The district nurses put another of these covers over the dangly end bit (don’t know it’s technical name) as well and it feels much better as it keeps it in place and doesn’t catch. They also gave me a sleeve to put over it in the shower which works really well. I bought a flesh coloured Picc line cover off ebay which is also useful as it just looks like you have a bandage on when wearing short sleeves.
It’s just another of those things you get used to and you will soon forget about it but it really isn’t painful at all
Hope this helps
Jan
Hi Jan, yes this does help me a lot thank you, i was worried about doing daily things and that i might catch etc but if i only have to put with a few days of discomfort, i should be okay I also have days which are less positive which i’m sure is the same for everyone, but getting out there and feeling human does help enormously. I’m cold capping and it’s day 15 after my first Chemo, I did lose a bit yesterday when i washed it but you can’t notice it yet, although i’m not sure how long it would take anyway so still not sure if it’s worked, i have my wigs just in case as i know that i would be extrmemely lucky to keep it, have my second Chemo next Wednesday so i’m expecting to lose more then, i’m also having 8 x FEC-T, 8 seems such a lot but i can’t believe how quickly it has gone from my first one! I’m hoping the next 5 months pass just as quickly! thanks again, Caroline x
Good luck to all at the bar today- especially ann celebrating your birthday - say hello to the garden sutie gang and leave me some cocktails for next week!
Pat - I bought nightcaps at annabandana. I bought 1 and had 1 as free gift as I spent quite a lot . The one I bought is really tight and although the freebie is supposed to be the same size, its much more comfortable.
Joan - Hope you get info and reassurance from your onc today.
I went for blood test this morning but won’t get the results until tomorrow afternoon. I took an antihistamine yesterday in case it was caused by hayfever as they are cutting all the fields in north Wales it seems. I could barely speak when I went to bed last night but my voice is much better today. I do hope that is all it was. GP gave me some more antihisamines anyway as she sais she had been suffering to.
Hope to here from you ladies propping up the bar later.
Cress - I’m still very numb, top of arm and underarm too. BCN said could take months to get better ( or as good as it’s going to get). Still persevering with the exercises, although when I’m feeling crappy for a week and a half after each chemo, I do them less often.
Emma (melrose) - picture all of the June Jewels holding hands together around you. You can do it lovely, hear from you later.
Pat - got my sleep cap from Annabandana. Tried it on, it’s fine, but not actually worn it yet in this hot weather.
Joan - hope those doctors are kind to you today and you get good, positive news.
Katherine - 1 week to go for me too, until the next visit. Trying my hardest to have a “normal” week since I’ve been feeling better the last couple of days. It is so hard, but let’s tick off another one together.
Glad you able to get to the school concert, proud Grandma.
Caroline - my son is turning 23 this month, like yours, he is a blessing, so kind and caring. (Got a gorgeous 19-year-old daughter too and she is fab with the scarves, hats, etc and we are having a shopping trip tomorrow.)
Jan - lovely to hear from you. I think it’s that rollercoaster effect with all of us, good days and bad, it’s so hard isn’t it? I had lunch with my wig-choosing friend yesterday too, same as you.
Hi all back from ONC and bloods are fine so all set for monday WHOPPE DOO he changed my anti sick tabs so hopfully wont be as bad,saw the BCN and shes told me to take a mixture of co-codamol and paraectmaol for the pain in the arm and shes going to chase up my physio .Bit peeved that I had to pay to park as at my normal hospital get free parking for all appointments.Well going to sit in garden for an hour before work hope everyones good after the bar today catch up later
Jill xx
Feel shite with this tickly cough and cold (snap Pat and Marion) without adding more s/e’s to it. Reverting to child once again, going off to my corner to hide!!!
!)
. The one I bought is really tight and although the freebie is supposed to be the same size, its much more comfortable.