I am really surprised at how well I feel, sleep is the only thing that is causing me problems, it was 3.30am before I dropped off and wide awake at 7.15 but I feel ok on so little sleep. No steroids after lunchtime so not sure whats keepign me awake but happy to go with what I have so far.
Welcome to all the new members, the forum is great for support, rants, suggestions and just being able to put down what you want. I LOVE you all and hope everyone gets the support they need, whether its from the forum, the ONC nurses, BBC nurses, family, friends, work colleagues…the list is endless.
My next chemo date is due to be 13 July - bloods pending.
Loads of hugs to those going to the bar today, hope those cocktails aren’t too potent
Morning jewels,
Good luck to the ladies at the bar today.
Jmeg love that name by that time our treatment will all be in the past.
Chelle hope you get out today.Mauritius sounds fab we could do a kylie Minogue,disappear and come back looking amazing and glamerous ready to strut our stuff in York
Maxie did you get a lot of pills?iwas only give 4 steroids for the next couple of days and sickness pills 1 to be taken 3 times a day for the next 2 days could continue with them if needed.Told do see my GP if I had any problems.
Will pop back later going to give my ED a ring as she’s off to Hamden to see Ollie Murrs and Robbie.
Take care Meggy xx
Oh feeling so sad and angry for us all today. For Deedee and that poor excuse for a doctor (that made me so angry I want to write a letter of complaint to whichever hospital that was!!!), for Joan and her beautiful poem, for Lins and Chelle having been in hospital /still there, for Debbie’s cat and Fi’s dog, and Maxie, Jill and everyone going through the SE’s, for all of us worrying whether Martha and other infrequent posters are alright.
I think I am mainly angry and sad that for all my efforts to keep my children safe and healthy and happy, that I am the one thing that is wrong in their little lives.
I’m terrified about tomorrow- not really what will actually happen but all it represents - a greater chance of a longer life, but one that is now less likely to be long enough, and one that I did not expect. Sorry all, but I’m struggling today and I feel I can say these things here and that you will all understand.
Ditto to all you’e just said Jackie…, sadly regards Deedee the exact same thing happened to my friend who was sent home in the end because was 4 hour wait, she was too week to argue. She called her onc unit & they got her to another hosp straight away. Sadly some A & e’s dont realise the seriousness of chemo infections.
Lets all hope that our lives aren’t cut any shorter by all this, I’ve heard so many stories of ladies fit & well & in their 80’s & 90’s, and their treatments for BC back then were not as extensive as ours, mainly consisted of mx & that was it as regards treatment ( i know 2 of these ladies personally so not just heresay!)…
Meggy, yes seem to have 3 different 'as & when 'anti- sickness, plus steroids plus lorazepam so got v confused last night & felt very sick. In the end took two different anti-sickness (which I wasnt sure you could do?) & a lorazepam to help me sleep. Seemed to do the trick & feeling bit better this morn thank goodness!..xx
Hi jackiee,
I spoke to my BCN and told her about the doctor at the A&E and she was appalled at this ands said he must’ve been a junior doctor and does not realise how ill we can become if we get an infection.
Maxie glad your feeling better this morn. I was giving 3 days of steroids and 5 days of anti sickness felt fine with that. All I’m on now are my penicillin for my throat infection.
chelle hope you get out today and are doing ok.
good luck to all at the bar today.
Deedee xx
Deedee and Maxie glad to hear you are feeling better.
Jackie the other week I was really low.I popped to the shop and standing outside was my friends mum I hadn’t seen her for a while she had BC when she was 39 it came back 10 years later.she has had 2mx and as Maxie said no other treatments she told me she was going to be 73 on her birthday. I truly believe fate put her there that morning so I would see her.Sending you a big hug. Meggy xx
Thanks Maxie and Meggy, I feel a bit better now, sorry for bringing down the mood, I know that prognosis in reality is very good, and just need to keep focussed on that. I’ve been out in the garden pulling out weeds and that was very therapuetic. And Deedee, I hope your BCN will be following up with the A&E dept! Idiots!
Jackiebee you come on here and BITCH MOAN RANT AND RAVE THROW TOYS OUT OF THE PRAM WHATEVER we are all in the same boat and its good to be able to do it,and in a strange way we are doing it in a way that protects the ones around us that we love and try and stay strong for
HUGS XX
Whatsup jewels lol…so just waiting to get home been a long day but glad to have starter nuking the little buggers! . Feel ok though head still coming back to life after the cold cap-which didn’t feel that tight so hope it’s worked.
Anyway will update you later. Hope my fellow drinkers are doing okay too.
Julia - thanks for your message, just what I needed to hear as I’m feeling a bit gloomy and overwhelmed today.
Maxie - glad you got some sleep and that you’ve been on posting today.
Lins - what a palaver for you having to go and stay in hospital. Hope you catching up on some sleep at home.
Emma ( peachy) - glad you’re doing ok. My sleeping has been poor for the whole cycle. Asked Dr at clinic yesterday and she said it was the steroids, even though I only took them for 3 days at start of cycle nearly 3 weeks ago!!
Jackie- sorry to hear you were having a bad day. Did you grab, pull and throw the weeds around to help you feel a bit better?
Not having the best day myself, feeling gloomy and overwhelmed by facing up to the next few months. Was really positive after clininc yesterday, lovely Dr and got my Emend ready for tomorrow. But washed my hair this morning and so much of it came out. It was like a carpet all over the bath and the bathroom floor. I’d thought I would be ok with it, but standing with the dustpan and brush in hand trying to clear it up was just too much. Since then I’ve felt down and in the mirror with the thinning hair and bald patch on the top I look about 100. Sorry girls, got round 2 tomorrow and I’m more scared than I was for the first one. I tried cold cap last time, but not sure if it’s worth it this time, although Dr yesterday said it was.
Was going to go out for a walk, to clear my head but I look so awful I can’t face it.
Fiona, I gave up on the cold cap. I didn’t bother in the end. They tried three caps and I had no real feeling that it was a tight fit, so thought sod it…the ext 2.5 hours, are they worth it. Decided no.
Today is the last day of steroids, although yesterday and today ws only after breakfast so I hope I get a better nights sleep. Enjoyed another day in the garden helping my mum planting in her new house.
Manager (and friend) from work was coming for a cuppa at lunchtime, then it was after work, now not coming as been pulled into a meeting.
I second that jmeg - Jackiebee, rant as much as you like. This is the best place to do it. I can vouch for relatives who in their late 30’s/early 40’s were diagnosed with BC and one is still with us at 84, the other died at 92. Both had MX and not much else. Makes you wonder if all modern medicines is right…they must think so otherwise they wouldn’t be doing it.
Going home tomorrow, spent the last 5 days with my parents. May come back as I could get used to having my dinner cooked every night for me!! Hubby taking a week off next chemo to spend some time with me, he might as well as we won’t be going anywhere for him to use up his holiday!!
Enjoy your evening June Jewels, I think we all deserve a glass of something special tonight. Whatever your tipple, wine, beer, cider, tea, coffee…this ones on me.
Ladies will catch up on posts later but had a swine of a day as I managed to drop my iPhone down the toilet in hospital at 4am (dont ask!) so have been without communication as my iPad was at home. Got told by ONC at 7am that I could go home once they took another set of bloods. Nurse from chemo unit came at 8 and did them. Then the nurse off the ward came in and said she had ordered my antibiotics so would be about an hour and I needed to wait for blood results so I told her the ONC said no need to wait but she said that would only take an hour as well so might as well. Didn’t order lunch cos I was escaping.
12:15 she came back to say nothing had arrived so I asked if she could chase. She said no worries but just to have lunch so told her I hadn’t ordered anything…
3:30 - she comes back and says antibiotics came at 12:30 but she’d been waiting for blood results but couldn’t give me them as she couldn’t get hold of my ONC. Flipped my lid and said I’d already told her the ONC said I didn’t need to wait and that I’d been sat since 7:30 with no food or drink so she said I should have told her and I said I DID AT 12:15!!!
Anyway - home at last but without a working phone aaarrggghhhh
rant over - hope you are all well and will post later once I’ve calmed down xx
Ok so a more comprehensive post rather a rushd in the car type one…
T’was a long day and i feel a bit fuzzy but so glad to have got the first one done. Disappointed there wasnt any slick cocktail waiter doing his thing with the bottles :-), but the nurses were lovely. Apart from fuzzyness, i feel fine…when did people start to experience their own side effects??. Cold cap extremely hard for 20 mins then just felt heavy, so fingers crossed its worked.
Oh and dont hate me ladies but guess what i got in my take home meds Bag…EMEND!!! and omeprezole…i also got other sickness and injections from day 5. Now can anyone tell me which are the steriods, as ive been told to take all of them for the next 3 days morning and night, but not sure which are the ones that you advised not to take too late in the day. I have Dompperidone(which sounds like champagne), Emend, and Odansetron…Nothing on them says steroids, so maybe they arent??.
If anyone can advice id be mightily grateful…Also i get a free “Buff” head thing which is cool, just need someone to teach me how to ski, skate/snow board etc so im down with the kids…“yo dude how it hanging”
Chelle, sounds like its all been a bit pants , hope you get back on top soon, youre misseed-as is Martha!!.
Ok so i will try to get back on later sending cyber hugs to all, sorry i havent done a proper reply but i do feel spacey just now…
Hope to be feeling as ok-ish tomorrow anyway.
Love to all
xxxx
Vicki none of the names you’ve mentioned are steroids they are anti sickness and for acid reflux - you might need to ring the unit to check they gave you some
Ok Chelle, so what are the steroids for?. I cant remember them mentioning them at any point to be honest so maybe im not meant to have them?. I do have injections for 5 days though.
x
They give you steroids to build you up a little to cope with poisoning yourself but they can also help the chemo drugs be more effective and pretty sure everyone has been prescribed a few days worth of them. Think the injections may be to boost white blood cells. I’ve got the name of the steroids on my phone but it’s not working and I can’t remember it for the life of me!
I have the same Chelle, Dexamethasone - these are a steroid and anti sickness. I was also told that the steroids were to help with eating, especially if you have quite a bit of sickness.
Injections I have to have for 7 days after chemo, these are to help white blood cells dropping too far. I give these myself each day at home. Although the district nurse will come to the house if needed.
Evening Jewels,Just a quick question to the ladies who’s hair is starting to thin was just wondering how your brows and lashes were doing?Really fed up with my hair thinking about shaving it to a number 4.ihad my haircut about a month ago. It is getting thick and is needing coloured,I’ve been wearing my wig but my own hair is starting to stick out underneath it and it doesn’t sit properly anymore.Help Meggy x
