Fab thank you! Bring on 2014 and lets kick the ass of this rubbish year!!!
Dorothy is a fab name! lots of connotations with a cat though, dots, diddles, dotty diddles…lol
xx
Debs - course you are welcome on our get together x
Cress - love the t-shirt idea x
all - cocktail list had a lot of dates in the past (and I’m OCD about plans!) so all past dates have been moved on by 3 weeks. I know Everyone’s dates don’t stay exactly to plan (and with chemo head I’ve probably messed them all up anyway) but please check and let me know if anything needs changing. (Am sure one of the Jewels is having chemo weekly but can’t remember who?)
OH has had to go to Birmingham for work today so I’ve been instructed not to move further than the living room and kitchen (oh bathroom permitted as well) or I’m in trouble
Hey chelle glad to have you admin/ocd tendency working for us, think it gives us all a sense of community knowing when we all have our round to get in loll…
Started getting a horrible taste in my mouth ans my tongue is looking coated. Trying to clean it with a baby size soft toothbrush doesn’t help…
Least it’s sunny here so washing on and mowing the grass later I think.
Take care all jewells.
Xx
Vicki - boil some water and add a teaspoon of salt and let it cool then rinse with it. Only thing they kept my mouth semi normal. Did it about 4 times a day
Ok, heels on, lippy on, inappropriately revealing dress on- it must be time for a cocktail. Thanks for the good wishes. A few of us at the bar today! See you on the other side, ladies!
Morning wonderful jewels,
FEC x 6 cycle 2 day 8 and feeling a lot better. Been to see the horses this morning and had a walk. Hungry for the first time in a week too.
Got a good lump on my forehead following my meeting with the wash hand basin ! Husband has removed the lock on the bathroom door !! In the grand scheme of things the second cycle has been easier than the first, purely based on the availability of Emend. It took me 10 days to pick up on the first cycle and this time 8 days.
Best wishes to all at the bar today. xx
Fec/T CYCLE 1 day 3
Morning ladies,
lots to catch up on, first of all good luck to all of you on the cocktails today! 
Chelle so glad you got out eventually, what a nightmare day for you!.. surprised your temp didnt shoot up again with all the aggro!!
Can’t believe you’ve had time to update the list, you’re so organised!..spot on with my next bar visit, if all goes to plan!..xx
So sorry for the three of you that have lost pets in the last days/weeks…so sad for you when going through all this as well…life can be so harsh at times…hugs to you all…xx
Becky great to hear from you, wow dont know how you find time for everything & then write great long post too!! Enjoy your camping trip at weekend!!..xx
Nic J …brave of you to not have your 2nd dose reduced, I can see where you’re coming from tho…will be a special night for you withyour boys & mum there too…take plenty of tissues & enjoy…xx
Chemo brain has kicked in already & I want to post back to so many more of you but cant scroll back as will lose my post!.. need to make notes as I go along!
Liking all the suggestions for t-shirts, be great to get names on the back…PAST is great too. Thought of another one we could add maybe somewhere “Diamonds are a girls best friend”!!..as I feel like we ARE all friends (& jewels!)
Felt a lot better yesterday. YD popped up from London for the afternoon, I ended up doing a pamper session on her ( er shouldnt that of been other way round?!) anyway was lovely. Managed to eat a normal tea but no cakes or anything,(yuk!)just nibbling ginger biscuits .
Felt a bit heartburney before bed but had taken the Omeprozole in the morn, may take it a bit later today. We kicked OH out of bed & YD slept with me which was cute (she’s26!!) However this morning she informed me that I snored really loudly all night (lorazepam!) so not impressed!
Took 3rd Emend this morn plus one other anti- sickness that you take at same time, plus steroids, now feel a bit queasy as theyre all kicking in to do their bit…have to self inject the WBC booster at 1pm…surprised myself that I did this ok yesterday.
Something a bit weird happened yesterday tho, hope not TMI for those of you feeling queasy, but was lying on bed reading when suddenly thought… Ooh think I need a wee (but not that urgently) went to loo & there had been a deluge akin to waters breaking all through to leggings!!!..what was that all about??..convinced not wee…may need to stock up on Tena lady at this rate!!..anyone else had similar, or am I incontinent now too?..may have to bring a commode to York with me next year!
Where is Martha??..we need a tracking device on her!!
Have a lovely day Jewels & may all your s/e’s be small
p.s dont know why I havent revealed my proper name yet, its Sandra (Maxie is my dogs nickname!)
so catch you all later
Sandra xx
Sandra yes that’s one of my side effects too!
FEC CYCLE 2 DAY 3
Good luck and welcome to the coctail lounge Cress, Katherine, Jackie, Fi & Fiona no pushing in.
I have changed my profile pic to show me enjoying a real coctail with my daughter,I cant drink now if makes me feel sick so my husband is pleased as Im a cheap date.
My side affects are mostly I cant sleep I just lie there which makes me tierd for the rest of the day. Not sure if its the steriods that are causing this.
Nicj and Becky you are a super mum doing what you do whilst we are dealing with side affects etc… Im lucky that my children are a lot older and can more or less look after themselves which gives me time to rest.
Haha Nic, I just knew you’d have had that s/e as queen of most of them!..thanks thats reassuring that Im not alone!!..xx
Cassie…lovely photo, you look v glam sipping your cocktail!..I too have gone off alcohol & cakes & choc too (all my fave things!)
Taste may change soon I suppose but at least may lose a bit of weight…
xx
Hi jewels,sorry that I missed the girls going to the bar this morning.I plugged iPad in to charge overnight and didn’t switch it on doh. Any way girls hope they are being gentle with you.
Sandra same thing happened to me yesterday felt really strange in the downstairs department ,my daughter was in the shower so I had to grab a bucket ,it was like a dam had burst.Will watch for this on 2nd cycle don’t want it to happen outside lol.
Will also reveal myself .My name is Agnes.Meggy is my dogs nickname lol
Take care Jewels Agnes xx
Haha another doggie nickname!!..love the name Agnes its a family name in my family. Didnt really want to reveal my name at first in case of snoopers i.e. friends & family maybe being horrified by all my hypochondria & s/e’s but now don’t really care & feel weird being called same name as my dog…lovely tho he is!!..xx
Another one with Gushing syndrome!..I swear if it wasnt for this site Id be on the phone to BCN’s every 5 mins!!
Catch you all later xx
Well it’s buzzing at the bar. Cocktail going down nicely so far! Lorazapam helped earlier! Lot’s of faffing around with cap and then finding a vein. Managed at last but getting picc before next cycle so that should help. Trying to relax into in now
x
FEC-T, 3 of each. FEC cycle 2, Day 1
Hi everyone
Thanks for all the messsages sending me good vibes for today. At the bar from 9.30 until noon. Feeling really woozy and tired, had some lunch, on the sofa with my blanket and the tennis.
As well as my Emend, got some extra anti-sickness stuff through my canula before the chemo. Nurse said I shoud be fine this time, given all the ant-sickness stuff I’ve got. If not, she said, don’t know what else to do with you!!!
Tried cold cap again, went through 3 today - each time there was so much hair inside I left looking so much worse, really bad bald patch getting much bigger on top of my head and fringe vey sparse. So, I think it’s not really working for me. Give it a few more days, put OH on standby with the clippers. I couldn’t go outside how I look now - wig good to go and had another Annabandana delivery yesterday.
Will post properly later, if I feel ok, to respond to all the great posts I’ve read.
Hugs to everyone,
Fiona
xx
PS - Chelle, booked in for 3 weeks today, 18th July, for 3rd cycle
Hey all,
I have been secreatly stalking you june jewels girls for a few days now (hope you dont mind). I recently started chemo on 21st June and just looking for some insight of what other people are expereincing. This morning i woke up and my gums are white…i have constant dry mouth too no matter how much water i drink…does anyone have any ideas on what i can do to help it? xx
- Janet C - Janet 28/6
- Katherine10 - Katherine 28/6
- LinsLleisio - Lins 2/7 (cycle 2)
- BeckyJoan - Becky 2/7 (cycle 2)
- jayney234 - 2/7 (cycle 2)
- ChelleB15 - Chelle 3/7 (cycle 2)
- Marionblue - 4/7 (cycle 3)
- Spurs79 - Claire 4/7 (cycle 2)
- TaylorJ - 4/7 (cycle 2)
- ethel1 - Elizabeth 8/7 (cycle 2)
- Esther_1986 - Est 8/7 (cycle 2)
- Meggy-moo - Agnes 10/7 (cycle 2)
- MarthasSOS - Martha 10/7 (cycle 3)
- pat_1949 - Pat 11/7 (cycle 2)
- Melrose15 - Emma 11/7 (cycle 2)
- Deedee215 - Deedee 11/7 (cycle 2)
- Flip Flop - Faye 11/7 (cycle 2)
- March13 - Ann 11/7 (cycle 3)
- LaineyK - Lainey 12/7 (cycle 2)
- Linsey 50 - 12/7 (cycle 2)
- Trish1303 - Trish 12/6 (cycle 2)
- ambercatz - Jan - 12/7 (cycle 2)
- PeachyPal - Emma 13/7 (cycle 2)
- jmeg - Jill 15/7 (cycle 2)
- Cassie1 - Jayne 15/7 (cycle 3)
- NicJ - NicJ 15/7 (cycle 3)
- Maxie - Sandra 16/7 (cycle 2)
- pointy - Debs 16/7 (cycle 2)
- flippantfox - 16/7 (cycle 3)
- Artemis17 - Vicki 17/7 (cycle 2)
- Gussie-WW - Gus 17/7 (cycle 2)
- cazzer1970 - 17/7 (cycle 2)
- Fimbo 123 - Joan 17/7 (cycle 3)
- titus4t - 17/7 (cycle 3)
- Suffolklady - Cress 18/7 (cycle 2)
- Jackiebee - Jackie 18/7 cycle 2)
- Satsuma - Fi 18/7 (cycle 2)
- Glasgow Girl - Fiona 18/7 (cycle 3)
Fiona, Glad to hear you got back from the bar quite quickly, especially with CC time too!..I was there for 3 hours ( but they couldnt find a vein for ages!!)
Hope the Emend works for you this time, I think if I hadn’t had it would def have been v sick by nightime…fingers crossed & confident you’ll feel fine …xx
Chelle on the ball as usual!!!..hope you’ve not ventured out of your area today so far?!..
Aw Fiona - glad you’re back in 1 piece! The cold cap I’m using isn’t changed throughout the session as its hooked up to a machine that keeps it frozen. At least you tried x
Maxie - what are you trying to do to my chemo head changing your name now! I’ll prob end up calling you Mandra!
Welcome to Paula, sorry your post only just appeared!.. Im not quite up to the mouth stage yet (only day 3) but some of the girls have mentioned salt water mouthwash & Gelclair mouthwash which you can get on prescription.
Sure more Jewels will reply to you soon!..xx