Morning all. Like Maxie I am resting after the efforts of getting me and furface (that’s the dog!) up, fed, and to this point. Asda brought me some groceries first thing but as they made a substitution without telling me I will be over to the store later on to get a refund! Kind of defeats the point of home delivery, huh? 
Really sorry to hear abuot ongoing side effects. Don’t want to tempt fate, but so far, I am getting off pretty lightly. So far my hair is still in (I’m not CC-ing) but I know it’s on borrowed time. I always said I wouldn’t have a wig but then realised I could have a complete change from my usual short greying crop. So I am planning a long, feathered rock chick wig in my original jet black colour. Will be great for going undercover. 
Have my appointment at the local wiggery next week.
( Chelle , when you’re next updating the list, my next chemo is down for 16th July. Really appreciate that you do this!)
Maxie , welcome. And you’ll find the support on here second to none.
Suffolklady , we could always open a skype chatroom if the BCC boards don’t have a live chat option? If we all use skype, that is …
Faye, I’ve been meditating through this too. Joan , I also really like Jon Kabat-Zin’s mindfulness books. I already have the mindful way thru depression, so I might check out full catastrophe living. I also really liked “close to the bone - life threatening illness as a soul journey” which I borrowed from my local Maggie’s centre. It’s not for everyone (the title alone will set some teeth on edge, I know) but it spoke to me.
Martha, thanks for posting the info from May. I can vouch for my chemo caddy - I sorted myself out last week & it’s great for lugging all the bits and bobs round the house when I’m feeble. I use a posh chocs paper bag that a pal brought. I also have my “bum bag” all set up (as well as my going to hospital bag) and actually it’s like a bag liner so I don’t have to do that really annoying switcheroo whenever I change bags (bane of my LIFE). SO I might well stick with it once all this sh*te is over.
Thanks for the links to diet info too. My pal who is two years out from finishing her ovarian cancer treatment swears by organic red wine for medicinal purposes. That’s based on Anti-cancer - a new way of life , which was her recommended read.
Phew, seem to have verbal diarhorea this morning, need to go and take the dog to the park …
Chelle, I love your teacher’s outlook. I was once told something similar. That your life is like a sandwich - the slices of bread are your arrival and your departure and what you have as a filling is up to you!
I think why we all get so p****ed off with BC is that it puts something in our sandwich that tastes so bad!
Thanks to all for headache tips - I’m going to mention it to onc next week. Vicki, you’re right, can’t be having headaches on my hot dates! swing those arms and swing them high - think of it as physiotherapy!
Debs, I think you’re right about alcohol. I’ve not had a drink but I sense that the headache would be right back at me if I did. Enjoy the concert x
Sandra - I’ll keep my mouth shut in the bath! I’ve also been writing a blog - it’s a great way for friends to keep up with how I’m doing without having to worry about calling me! I’ll check out Chemo Nights - sounds good - mine’s more rambling on than anything useful!!!
Jayne, I was the same re Bernie Nolan - watching the news in front of my children - and anything you say makes it sound like you’re trying too hard to convince them that it’s going to be ok - and of course, none of us can promise that anyway. HOWEVER, we will stay strong because we’re June Jewels, and we will continue to shine together long after BC.
Must get up… 
Morning all
Emma (peachy) - good for you, going for it with the new house, I applaud your energy! I’m also addicted to The Apprentice, it makes for great telly. Never much of a telly watcher before BC, but enjoying a few things now.
Cress - phoned BCN this morning re ache in my good arm and got the answerphone. Might phone onc nurse later if no-one gets back to me. Don’t feel so panciky about it today.
Debs - enjoy the gig. Really jealous - I love Robbie.
Jayne - I have a daughter too and have asked to be referred for gene testing after my treatment done. Ditto the Bernie Nolan story - everywhere I went online yesterday, the story just kept popping up. It really got me down too.
Maxie - I’ll try to find that blog you’ve recommended. Feeling reasonable this morning (day 9), although the queasiness still there - it’s just so wearing. The concert sounds great and good for you getting VIP, you deserve some special treatment. Have a blast.
Vicki - so glad you’re feeling better today. Put yourself first and if you don’t feel like being cheerful, then don’t. We really do need to be a bit selfish sometimes.
Gus - love the idea of the rock chick wig.
It’s a beautiful day here in South Wales, I think the weather is good most places, so enjoy the sunshine everyone.
Fiona
xx
Hi Ladies,
I hope you are all doing okay today 
Just have a quick question and hoping some of you will know the answer, i had my Chemo 9 days ago and today have a really annoying headache (Didn’t sleep very well last night) Just wondered if i can take paracetamol? My temperature is normal, but i’m in work and working on a PC so wondered if it’s safe to take any? I was going to call my DR but think they will take a while to call back? Any information would be great? thanks Caroline xx
Yes you can take paracetamol but it can mask a higher temp so best to check your temp prior to taking them
Thank you Chelle, i guessed as much, my temperature is normal and apart from the annoying headache i feel okay. Have a nice relaxing day if you can x
Caroline, ditto what Chelle said, my onc nurse told me that as long as I take my temp first, to take anything I want that gets to work on the headache - so I’ve been on a cocktail of paracetamol, codeine and ibuprofen - and of course, keep drinking lots of water! x
TC 6 Cycles Herceptin 12 Cycles - Cycle 4 Day 2
Morning eveyrone
Cazzer - I understand that as long as your temperature is ok you can take parecetamol. It can drop your temperature but as long as it goes back up again later, should be ok. Do ring your cancer centre though if it carries on or your temperature stays down.
Chelle - What is it with your family and traffic? No point going through all this then having a punch up with a car
Bless your mum for putting you first bet you didn’t need thet worry on top of this though.
Cress - I’m staying off the booze to. Don’t think my liver could cope. Hope your headache leaves you in peace today.
Apart from usual red face not feeling too bad today. Even went to loo this morning. I bought some Crazy Jack Organic Apricots, the brown ones not the horrible orange chemical treted ones. Ate 6 before bed and worked a treat. Much better than taking pills which I hate.
RIP Bernie Nolan. It is so depressing when you you read of someone who has been given the all clear and then, within a couple of months it comes back. Guess we can all just hope for the best and as has been said, live every day to the full.
Catch up later
Marion
XXX
Thanks Suffolklady, i’m drinking so much water think i’m going to explode! Or they may need to bring a bucket near my desk as running to the loo is driving me nuts! The joys of BC eh! 
x
Thanks Marion, i will keep an eye one it x
Hi Jewels,
Have been really down today because my hair is shedding really badly I am trying to hold on to it as long as I can at least till after I have been to my goddaughter’s 21st party tomorrow night (my daughter’s best friend). I do know it will have to be shaved over the weekend. I was in a serious car crash when I was 18 with my sister who was also going for treatment for leukamia at the time she came out of it with broken arm but I unfortunately went through windscreen so ended up with head and face injuries. Had to be in plastic surgery unit for a good few weeks. Result of this they had to split my head open from ear to ear so I have a huge scar there so thats why I’m also dreading being bauld as this will be the first thing you will see the huge scar. some of my friends don’t even know about my scar sorry I didn’t want to sound all doom and gloom because Im usually a very strong person with what I have came through years ago but I just think why meee.
On the bright side
Was really busy yesterday out with my daughter for her to get her eyebrows waxed, I usually get it done but felt i didn’t need to so instead my friend who usually does it done all my nails for me got the full works done and then she put on black nail polish a lot nicer than what I wouldv’e done so hopefully with all the strenghteners and varnish it will help.
Martha
& Emma Hope you are both doing ok
Joan Hope you get on ok with your house offer, I would love to move house because I hate my back garden its very hilly.
Jill I too was going to ask about my daughter getting tested as my BC is hormonal and my daughter had a cyst in her ovaries when she was born and also was on Zoladex injections for growth she was going through puberty at 7yrs old. So she too has hormone problems so I’m going to speak to my onc this week.
Maxie, Sandra Wow thats was great getting VIP for concert Loved the 80’s music when I was single going to the dancing looking for bf 
loved spandau ballet, Ultavox, simple minds etc.
Debs Enjoy Robbie and Ollie concerty my friends went to it here in Hampden and they loved it.
Vickie Thats terrible you have to pay £36 for cutting wig. I don’t need to I’m goin on wed to get mine cut although I’m tempted my self to do it as i have done hairdressing but my family are nooo
Chelle I don’t know how you do it keeping this list upto date well done you, Hope you are ok
Marion Hope the red face calms down for you soon, I got green moisturiser in my goody bag in LGFG class which is really good for the redness if you were going out it really does work.
Jackie Good you got your wig sorted out with your mum, My older sister was crying too along with me when I went for my wig fitting.
Gus You go for it with rock chick wig
Cress, Fiona, Agnes, TaylorJ, Becky and Jayney and sorry If I missed anyone out its hard to keep up with you lot lol Hope yous all had a nice day today and enjoyed the sun but remember jewels we do need to cover up suncream Going to send OH upstairs to watch telly so I can watch my coronation street. Byee
_ Deedee xx _
Marie Forgot to say well done finish all the chemo and good luck for rad keep popping in to let us know how your doin? xx
Deedee, I don’t think people will see the scar first, I think they will see what a wonderful, strong, beautiful person you are, because that’s how I see you and I don’t even know you!
xxxx
Deedee,
I agree with Suffolk Lady
Marie
Aww thanks very much Cress & Marie much appreciated xx 
Deedee - hope you enjoy the party tomorrow. Shaved my head last weekend and was fine once it was done, I found it more upsetting when my hair was shedding so badly and getting all patchy. You’ll be ok, cause you are strong and brave and one of our beautiful shining Jewels.
Your nails look fab too.
Night- night everyone,
Fiona
xx
Deedee - how often will you have your bald head on display? I’m never without wiggy, scarce or night cap. I have a head a bit like a ski jump so don’t even look at myself in the mirror without my head covered. I think we are all more aware of our shortcomings than other people are. They are usually too busy stressing over their own. I also think people are so taken aback by a lady with a bald head, any imperfections pass them by. I know that is a bit of a harsh thing to say,but I think its true. Many of us have battle scars. I have had lymphodema in my right ankle for 30 years following a fall. It is swollen and ugly, especially in summer just when I want to wear pretty shoes, which won’t fit my foot. However, it doesn’t stop me from wearing dresses or Capri pants, ad quite honestly, if anyone thinks less of me because I have a fat foot, I wouldn’t want to know them or care what they think anyway. That’s my rant over.
One day after treatment and I’ve been quite well, popped into the supermarket and garden centre and got a load of washing on. stomach injections start tomorrow though which usually give me bone ache and more visits to the loo than I would like.
Hello
I am so hot, temp ok but juscan’t cool dow. Must be thr cxxp floating round inside me.
Ann
Morning Jewels well been up an hour or so and dont think I am going to be the miracle one,hair begining th shed not major but now know it wont be long hopfully get next 4 days at least I ve got work today,market tomz,LGFG on monday (not sure if its right time) and the a 4 hour work meeting tuesday,so I suppose weds would be good lol (not) and appt with ONC and back in work thursday would of liked -need a few days to get over it but dont think I ll get it.
Not in work till 3 -10 today the weather already looks good so hopfully top up the chemo tan and get a few zzz’s in the garden before work did a 9 hour shift yesterday but when i got in YS had done both gardens,hooverd and mopped all the floors and walked the dog he must of found my casual (chemo brian) to do list lol OS still not reappereard so bathroom still awaits.
Went shopping with daughter and 2 yr old grandaughter (trafford centre) thursday evening NEVER NEVER again dont know who was worse the 21yr old or the 2 yr old or could of just been me total stressed people getting in my way and me having to rest she got what she wanted and I got nothing came home drank half bottle of wine and crashed.
Anyway got a few bits to do before I can be lazy hope everyone enjoys the sun and has a good SE day other than the lack of energy and now the bit of shedding I think compared to most of you getting away lightly but popping that many diffrent pills dont think anything can get through the barriers
Catch up later
jillxx
Morning Jewels,
Didn’t sleep well but just a combo of steroids and it being really warm so a bit tired this morning. Should be at my cousins wedding today but had to decline as there are lots of kids going and it’s quite a journey so just don’t think it’s the most sensible idea plus I’ve not seen a lot of the wider family since starting chemo and don’t want them fussing over me when it’s my cousins big day. Sent my camera with parents so they can get lots of pics for me.
Feel like bowel gate is setting in again so need to dig out the suppositories me thinks
Think I’m going to slap on some sun lotion and get sat in the garden today as its too nice to be indoors.
Hope all the twinkles have a good day x