'June Jewels' - Precious and shining through :)

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1881

Thanks Chelle, the hospital dont do wig styling, they said that when i got my wig from them, (basic service only) and the place that quoted £36 also advertise saying how they are there for you etc etc… I think its really opportunistic, however I shall have a chat amongst my friends and see if they know any hairdressers.

Ah the cold cap doesnt seem to be working for anyone else, hence my doubt setting in, plus I wore the crash helmet yesterday which thinking about it may not have been the best idea!!. Well i guess its a case of wait and see…i will be trawling through the posts for cutting tips as soon as/if/when it starts to go

xx

1882

Hi…you may already know avout ‘my new hair’ but if not, here is the link…a salon local to me under this scheme cut my wig free of charge (not that I ever wore it as I bought it when my hair was long, thick and curly…so it was too big, couldn’t be made smaller and I was lived in fear of it flying off!!!)…hope you can find one FOC too…

1883

Hi maryland,
Thank you for the link, there are 3 in my “shire” and one of them is the one that charges £36, the other £45…i just think its so wrong that a high charge is made for something thats a sensitive issue, and its not as if they have to wash/blow dry etc. I think its taking advantage and im sure when Trevor Sorbie or who ever the top stylist they all have “special training” under, didnt advocate that they charge that much for the service…or maybe im just tight??. I think that will be my rant of the day anyway lol…
xx

1884

Vicki - am pretty sure any decent hair dresser would be able to cut a wig I’d have a look for a mobile one and just ask if they’d do it and at least it’s in the comfort of your own home.

Sandra - it’s my god daughter in the pic from the wedding yesterday. It’s my cousins who got married eldest daughter, she’s three and a doll x

1885

Evening JJs,
Well I’ve taken the plunge. Went to Argos and purchased some clippers. Did OH’s hair first, he’s had it shaved off to a number 1. OH then did mine, bit of a shock when I looked in the mirror the first time but I’m fine with it now. Had a shower and more has come out, so it’s a bit patchy. Popping in to work tomorrow, wigs not yet here so will have to wear a scarf. I think they may be more affected by it than me.
Maxie – glad you had a great time at the concert. Sounds like you had an amazing time. I’m with you, love the sun but just find it too much at the moment, especially at night.
Becky – you will know when the time comes to clip your hair. As others have said, I can honestly say it was a relief. I had already gone from long hair to a pixey cut. Over the last couple of days it was coming out in large amounts in the shower and then when gently brushing my hair. After clipping it this afternoon and then showering, it was still coming out but because it was shorter it didn’t feel as drastic.
Chelle – have a lovely break in Manchester with family. Chill out though; the house work will be there when you get back!
Deedee – Glad the party went well and the wig was a success. Hope you enjoyed your afternoon in the garden.
Marion – Hope you’re feeling better and enjoyed your afternoon in front of the telly. I was with you watching Murray. I sat in the garden for some of the time but it just got too hot and made me feel a bit light headed. Not looking forward to sleeping tonight, windows are open to try and cool it down but I know it will be roasting.
Jill – hope you had a lovely afternoon with your BB and enjoyed your chillaxing in the garden.
March13 – poor you, that really doesn’t sound like fun. I hope you soon come to love your oak barrel!!
Vicki – I got some clippers from Argos. I’m also like you, only really had tiredness for the first week after first cycle, so I feel very lucky. If I do too much I still get a bit tired. The only other SE now is the hair loss (day 16 clipped to 11mm), I didn’t do CC.
Well had a lovely day at mums. Dad is in Algarve for 3 weeks, mum was going for the same length of time but after my DX wanted to be here as much as possible to give help and support if needed. She is however off on Thursday for 9 days as they had booked to go to Porto for a week midway through, which they are still going to do.
Mum and her pals went for a training walk today for their trek, OH went with them, and they came back rather hot and bothered!! Mums brother is also here from Austria; it’s his birthday today so after the walk mum did a bit of nosh for everyone.
Now home and chilling on the sofa. I hope tomorrows cocktails are nice and chilled for Elizabeth and Esther. This week is a busy one in the bar, don’t be greedy ladies, make sure you save some for me on Saturday, I don’t want that bar running out!!!
Big hugs xxxxxxxxxxxxx

1886

I agree with Chelle Vicki, they told me at my wig place that any good hairdresser will be able to cut/trim wig, am taking mine in tomorrow for a trim when getting head shaved…will prob scare all the customers away lol!!..

God daughter lovely Celle, what a cutie!..xx

1887

Evening all

Enjoyed the tennis today, Andy did it at last.

Jill - well done, brave girl, welcome to the sub- group of the Jewels with no hair.

Becky - I think you are doing fantastically well, with 3 young children, baking biscuits, hosting a barbecue!! I am doing almost nothing compared to you - bit of laundry, bit of cooking and haven’t been out of the bouse since last chemo ( day 11 now). I’m a fellow nausea sufferer, like you. Thought it had gone this morning when I woke up, but it’s still there to niggle and bother me and make me feel down. At least I got a decent sleep last night, first in ages.
Determined to make this week count, will try to go out and do more. I’ve just found the nausea, combined with the horrible taste, really debilitating. Athough not as bad as the first cycle, it’s still very wearing.

Sandra - get you, with Tony Hadley and Rick Astley. Sounds like great fun and you had a good time. Good luck for the head shave tomorrow, the thought of it is worse than the deed, honest. You are so positive, I know you’ll be fine, big hug.

Chelle - enjoy time with the family, let them spoil you.

Marion - so sorry you’ve had a bad day today, hope you’ll pick up, get a good sleep and feel better tomorrow.

Ann - hope tha oak barrel was worth the effort. Every time you look at it, you’ll remember its start in your life. Your 2nd cycle has been better that the first, so am sure they’ll give you the same drugs, just ask at clinic. Hope the 3rd cycle will be even easier for you.

Not very organised tonight, so sorry if I haven’t responded to everyone. Now that nausea is waning, hoping it will be gone completely tomorrow, I am turning over a new leaf. This week, I will stop being a hermit, go out and try to just do more. A friend (a true one) just popped round today with a yummy sticky ginger cake and a magazine. Son answered the door, but she wouldn’t come in - she lives in same street and has obviously seen my bedroom curtains closed most days until the afternoon, realising that I’ve not been feeling very well. This is the latest of several cakes she has handed in, along with magazines. She also drove me around after my ops, when I couldn’t drive and her OH dug our garden and planted some lovely plants he had grown. These are the friends we need, the doers.

Night-night everyone, sweet dreams.

Fuona
xx

1888

Emma (peachy) - well done, brave girl, with the head shave. We all seem to feel the same about it and can reassure each other that the thought of it is worse than the deed. Hope you have good day at work tomorrow.

Fiona
xx

1889

Thanks for all the reassurances re head shave girls…can’t begin to imagine the state I’d be in now if I hadn’t found this site & all you lovely jewels!..:slight_smile:

Fiona isn’t it great when people are just so thoughtful…think when all this is over as others have said will make sure I’m there for my friends & family by just doing something/anything however small …it can really make a big difference…you have a true friend there…:slight_smile:

Deedee I’ve told you a load of rubbish re ‘Chilfest’…it isn’t a tour at all, was just a local gig…sorry OH put me in the picture but I think they’re all touring individually!..doh…blame chemo brain!!!..xx

1890

hi everyone.
well have just spent the weekend in hospital neutropenic sepsis, had had a very sore throat all week and felt really unwell, but thought it was one of he side effects, but gp did blood test following results dent me straight to hospital, bit of a shock as did not have a temperature or any of the other signs that say go to hospital, how ever feeling a bit better now at least can swollow, next round is on the 18th really really not lookng forward to it, how do all you lovely ladies that have yng children manage? cannt even look after myself i seem to feel sad all the time and oh really seems to annoy me whatever he does or doesnt do.
reading what goes on with others does help though, so good luck to you all#love katherine

1891

Morning Jewels. Have been lying low for a few days! Developed a bad sore throat on Thursday that soon became a cold so have been feeling pretty crap and sorry for myself. Phoned chemo unit Friday and was just told to monitor temp and take cold remedy!
Faye and Katherine sorry to read you’ve been in hospital. Hope youre both out soon enjoying the sunshine. Big hugs to you x
Jill and Emma you’ve been busy what with work and house offers! I managed work two days last week but must admit it seems for every good day I have, the next I feel crap. How do you all keep going?!
Trish on top of it all how awful to have to deal with your eye problem. Xx
Chelle and Sandra love your pics. As a mum of 3 boys a cute little girl always makes me ‘want one!’ and of course Sandra who wouldn’t want a cuddle with ‘loving you maddley Tony Hadley!’ Lucky you!
So besides ending last week with a cold I also have a new boob and hair style! Yep Day 18 saw the mass shedding and the headshave. The boys, who had previously said they’d do it, ran for the hills leaving my OH with the clippers. We both had a little cry. Like many of you, although its expected and you know it’s going to happen, when it comes to it. . . :frowning: I over heard my OH telling his brother it was one of the hardest things hes had to do.
Saying goodnight my ES (18) gave me a hug ‘Mum don’t be sad, you’ll always be beautiful to me and if this is what has to be done for you to be better, I’d rather a bald Mum than not have you here at all’ xx
Emma x

1892
  • ethel1 - Elizabeth 8/7 (cycle 2)
  • Esther_1986 - Est 8/7 (cycle 2)
  • Meggy-moo - Agnes 10/7 (cycle 2)
  • MarthasSOS - Martha 10/7 (cycle 3)
  • pat_1949 - Pat 11/7 (cycle 2)
  • Melrose15 - Emma 11/7 (cycle 2)
  • Deedee215 - Deedee 11/7 (cycle 2)
  • Flip Flop - Faye 11/7 (cycle 2)
  • March13 - Ann 11/7 (cycle 3)
  • LaineyK - Lainey 12/7 (cycle 2)
  • Linsey 50 - 12/7 (cycle 2)
  • Trish1303 - Trish 12/6 (cycle 2)
  • ambercatz - Jan - 12/7 (cycle 2)
  • PeachyPal - Emma 13/7 (cycle 2)
  • jmeg - Jill 15/7 (cycle 2)
  • Cassie1 - Jayne 15/7 (cycle 3)
  • NicJ - NicJ 15/7 (cycle 3)
  • Maxie - Sandra 16/7 (cycle 2)
  • pointy - Debs 16/7 (cycle 2)
  • flippantfox - 16/7 (cycle 3)
  • Gussie-WW - Gus 16/7 (cycle 2)
  • Artemis17 - Vicki 17/7 (cycle 2)
  • Suffolklady - Cress 17/7 (cycle 2)
  • cazzer1970 - 17/7 (cycle 2)
  • Fimbo 123 - Joan 17/7 (cycle 3)
  • titus4t - 17/7 (cycle 3)
  • Jackiebee - Jackie 18/7 cycle 2)
  • Satsuma - Fi 18/7 (cycle 2)
  • Katherine10 - Katherine 18/7 (cycle 2)
  • Glasgow Girl - Fiona 18/7 (cycle 3)
  • Janet C - Janet 19/7 (cycle 2)
  • LinsLleisio - Lins 23/7 (cycle 3)
  • BeckyJoan - Becky 23/7 (cycle 3)
  • jayney234 - 23/7 (cycle 3)
  • ChelleB15 - Chelle 24/7 (cycle 3)
  • Marionblue - 25/7 (cycle 4)
  • Spurs79 - Claire 25/7 (cycle 3)
  • TaylorJ - 25/7 (cycle 3)
1893

Like many of you I’ve been doing a blog for friends and family. Here’s my entry for Friday;
Tonight Matthew I’m going to be…
In the space of a few days I’ve become the ‘new’ me. New boob, new hair; it’s hard to remember who I was before the big C reared it’s ugly head and stared me full on in the face. I’ve been told I’m brave, positive, an inspiration? Really? What I am is a good actress. Got a grade 1 CSE in Drama don’t you know!?
Like many I use humour to get me through, it’s a coping mechanism. If you laugh at your own misfortune it’s easier for others to accept it and besides what’s the point in maudling, there’s always some bugger worse off than you! I’m not one for fuss or sympathy, a trait I get from my Mother, although I do like a bit of positive attention every now and then hence the grade 1 in Drama!
Don’t get me wrong I do have mornings where I cry into my cornflakes; times when I feel angry and alone; times when I feel guilty that my lovely boys have to see their mum go through this; times when I lay awake and hope Richard will still love the ‘new’ me.
But breast cancer doesn’t scare me. I’ve got too many friends who have gone before me, set the bar and who ARE my inspiration. I don’t want BC to define me. I didn’t invite it into my life. I didn’t jump up and down shouting ‘Pick me! Pick me!’ The sooner it’s gone the better. So I have no choice but to embrace the ‘new’ me and with new boob, new hair and new attitude I’m coming out dancing!
Good luck all those at the bar today. Keep your chin up xx

1894

Emma (Melrose) - cant believe the hosp told you to stay at home and take a cold remedy! I had no temp when I got admitted but my blood infection was sky high so if you feel the same again I’d just go to the hospital and insist on a blood test. Last thing you need is being ill and delaying your treatment. Good to hear from you though as was getting worried and sounds like you have a great bunch of boys x

Katherine - sorry you ended up in hospital and can’t imagine it being the nicest place in this heat! Hope you’re on the mend and keep your chin up x

Fiona - sounds like you have a great friend there x hope you start picking up soon, you seem to be having a rough ride. It’s so crappy when you just don’t feel like your normal self and it just reminds you all the time that something isn’t right x

Emma (Peachy) - glad you managed the head shave ok, in this heat im beginning to be a big fan (although the wigs are not comfortable and sweaty!. Well done to you mum as well x

Well I’ve had acid all night and not slept well so am about to get up and showered and head over to Manchester. My aunt and cousin are still over from London so will get chance to see them and I don’t very often so will be nice.

Good luck to the ladies at the bar today, think a Tequila Sunrise must be in order with this weather! X

1895

Great post Emma…reflects a lot of how I feel, hate fuss etc but welcome positive attention at times., coping with humour etc…also what a lovely son you have & what a mature attitude…his words brought a tear to my eye xx

Katherine that sounds so scary for you, good job you went to GP…worrying that you had no temp as I’ve been thinking all should be ok as long as no temp…hope you feel a lot better now …xx

Good luck to those at the bar today…xx

Well woken up this morn with very sore mouth, white gums & sore neck glands…just knew after announcing yesterday that few side effects was tempting fate!..phoning GP soon for advice. :frowning:

1896

I second that Maxie - I am exactly the same. I didn’t ask for it but I can’t change it, so have to just get on with it. I also cope with humour and possitive vibes to family, friends and colleagues. I had a wee tear or two. The love from your son when he said those words was just beautiful. It’a also really good that your OH has someone he can be open with and share how he is feeling.
Maxie - Make sure you do phone the doctor, I am sure this heat isn’t going to help any of us as nice as it is.
Chelle - enjoy your trip to Manchester.

Well, best start to get organised for a few hours at the office. Now the head has been shaved, not sure if I should go as I am or wear a scarf. I have a soft top, so I think a scarf may be the order, the last thing I want to do is get sun burnt!! Then its a trip to see an independent financial adviser to review the options in preperation (suppose I need to in case my offer is accepted!!)

Take care JJs, have a wonderful day in the sun. Good luck aat the bar ladies xxxx

1897

Morning jewels well up showered and scarved lol got my LGFG session today should be fun as I am jeans and trainers person so bit worried everyone else will be tarted up lol I just need to be comfy at moment and with no hair can,t really be worried about the looks that much.Anyway anyone suffering from bruising on scar site op was 5 weeks ago breast one is fine but lymph node one is wonderful shades of purple is this normal or am i over using it.
Maxie good that your son can share with you my YS has a habit of text or calls even leaving me notes on the fridge but struggles face to face older 2 lads just text me and daughter just turn everything into comedy(unless shes having drama queen day)
Chelle enjoy your trip to manc its nice and sunny at moment get some quality time with the family avoid the trafford centre if possible lol and if your in stretford arndale be prepared I went on Saturday and it was like a ghost town.
Like most of us I dont do sympthy/attention at the best of times so 2nd day with bandana/scarf just walked to local shop and already sick of the pitying looks and the usually very talkitive shopkeeper just went quite way cant people see I am still me -but thinking about it did we all do the same only weeks ago because if I am honest I think Iam guilty of it.Was in a 4 way conversation at work other day and 1 of them asked was I scared about losing my hair and i admitted yes terrified other girl said it wouldnt bother her well the 4th girl has just had her last herceptin and me rounded on her like a pair of pitbulls lol dont think she will ever come out with that statement again lol.
Well better make a move as much as I’d love to just sit and chat all day,work just texted to see how I was which was sweet until I read last line “do you want any overtime today” just took the sweet feeling away.
Hope everyone has a good day
Jill xx

1898

Morning lovely jewels, good luck and thinking of those at the bar today.

Do any of you lovely ladies use any form of eye drops. My lashes have all but gone and my eyes are so sore.
I am due at the bar on Thursday - some birthday present !, and I am starting to get terribly anxious again. It’s my third of six so I should be thinking positively and considering it to be my half way point, but I am just dreading it.
I suffered terrible constipation last time and I thinking about starting the lactolose and senna today in the hope it does not happen again - any thoughts ?

1899

Anne- I started Movicol and lactulose 3 days before cycle 2 and I didn’t have the same probs, still a bit bunged up but not as bad as cycle 1.

1900

Oh Emma that just made me cry! What a lovely thing for your son to say!