Just diagnosed, struggling to stay positive

Let me tell you my wonderful story.

Diagnosed with stage 1 Treatment was lumpectomy with IORT that’s radiation at same time. On Letrozole and the side effects i can manage. Just had 6 month check
up and all good.

Yours like mine has been picked up early so dont worry as that only makes you feel worse

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The waiting for results is so hard isn’t it? But it sounds like yours has been caught early and they’ve acted swiftly, so that’s positive.

Mine is also grade 1, but 10mm. They said I have dense breasts so want to make sure they haven’t missed anything hence the MRI next week. (Never even knew dense breasts was a thing!)

Sending positive vibes your way while you wait for the results and beyond xx

That’s wonderful to hear you’re all good and doing well. Knowing that a cancer diagnosis doesn’t necessarily have to mean months or years of treatment and uncertainty is reassuring. I wish you continued good health and a happy life xx

I thought when I was diagnosed that I would have months, maybe years, of treatment and hospitals and all of that ahead of me and I’d be changed as a person forever. That’s what we immediately think when we hear the word “cancer”, right?! The reality, for me, has been very different to what I expected. Yes, the waiting and tests and delays were excruciating, and I found that really hard, but by results four weeks after surgery I was back to normal and as if it had never happened (even went to the appointment in my usual underwire bra!). For many people, particularly those with early stage cancers, it is a very temporary situation. x

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That’s so good to hear and I’m so glad for you. The consultant and nurse at my initial diagnosis implied this would very likely be my experience too, and I really hope so.

You’re right that the word cancer just has such scary and grim connotations. What I’m realising is there’s a whole range of experiences that people have.

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mine was 15mm

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If I may introduce a slighter lighter note here…I had a reduction in one breast and then the other made smaller to match…wonderful female oncoplastic surgeon…we joked about me now having the boobs I had when I was 20😂 But they look amazing and I’m now feeling like I’ve had a very expensive boob job…super grateful…light at the end of the tunnel, girls…xx

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That sounds amazing Polly!! Go girl!
What a result :clap:

No one wants to hear “I’m sorry, it’s cancer” but catching it early is key. There’s so many of us too. It kind feel like a lonely journey at times, but this forum is so helpful because we all get it :woman_shrugging:

For a lot of us, once we get over the shattering news, it’s really a case of getting on with it. Get the surgery over (1 major hurdle ticked off). Wait for pathology (2nd major hurdle)- my follow up is tomorrow am :crossed_fingers::crossed_fingers::crossed_fingers:

Then get your individual treatment plan and crack on!!

Take care ladies and all the very best to you and your boobs! Xx

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Haha now that’s a silver lining! Tbh my boobs are pretty small anyway so if they have to be reduced I’m going to be left with almost nothing :smile:

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Yes I am really keen to just get on with it and start getting over the hurdles.

Good luck for your pathology results tomorrow :four_leaf_clover::four_leaf_clover::four_leaf_clover:

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Hey,
I’m 39 diagnosed with grade1 IDC er/pr her2-
My ultrasound showed 18mm, mamo 4.5cm, mri 28mm tumour size.
Confusing hey what to of thought, but I was also told, until it’s removed anything can change or be possible for treatment plan.

Waiting on results is hard, it’s the most difficult part.

I had a lumpectomy 5weeks ago & my results came back as size 20mm with no node involvement.
I’m still waiting on my onco dx to see if need chemo.

At the start of my journey, I was in bits & also having 2 children, I wasn’t positive to start, I cried most days.

It’s important to remember you’re still the same person & you do somehow & will adapt to the circumstances.

I still have the odd down day, but I’m just living life & feel more positive now.

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I’m glad you’re feeling more positive now and that’s wonderful news there was no node involvement. Also noted re getting potentially conflicting info from different scans and not knowing for sure until they actually remove and test the lump(s).

I wish you the best of luck with everything x

Hi there!

It’s shite I know as I was there last year, I had three lumps, I’m a bit older … I was 48 at the time, but I managed to keep positive through some days then dropped to almighty lows on others… don’t be afraid to ask for help, I have only recently found a Maggie’s centre and wish I had known about it earlier as there is a place just to feel normal as others around you are in a similar place. I was told I’d only need a lumpectomy to start with then it became a mastectomy. I had the op last Nov… and if you want to talk I’m here for you. Hang in there girl and take strength from your beautiful family :heart:

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Thank you I really appreciate your lovely message :pray: will definitely look for a Maggie’s near me x

Hi I’m also recently diagnosed. Had lumpectomy in left breast and sentinel nodes removed. Bad news, 2 out of 3 nodes are cancerous so axillary clearance op waiting to happen. Good news was that the original cancer was smaller than they thought and was grade 1 instead of grade 2. I really wish doctors wouldn’t say I think etc. But the waiting is the killer. I’m waiting for results of a CT scan. My wound on my breast is still leaking. Getting used to being a cancer patient is awful. Sending best wishes x

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Oh gosh that’s a lot of new findings to get your head around. I’m glad the original cancer was smaller than they thought though. I hope you get the CT scan results soon and can move onto the next phase of treatment. Best of luck with everything and take care of yourself xx

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Hi @beachfox, I notice you say stage 1 - which you will stay at if no lymph node invovement. Do you know the grade too from biopsies?

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Hello ladies,
Well, finally thought all was heading in the right direction- good follow up results (nodes & margins clear) but this damn tumour wound strikes again :pleading_face:

Drain stopped working yesterday. The other end of my wound looked RED!! and hot & angry!!
Always on a weekend :roll_eyes:

So, called 111 - worse than useless but after the second call they said we’ll send your details to your local Urgent care centre for Sunday am.
I was half minded to go last night at about 10pm but just couldn’t face the drunks etc. figured I’d get a good nights sleep and go first thing while it was quiet.
At 2.30am I woke up with a wet, sticky hand. Didn’t take long to figure out it was blood from my tumour wound that bust open…. Panic, panic.
111 we’re just as great 2nd time around. I called them back. Explained etc… they said they would send a non urgent ambulance… but get a clinician to call me back. The very stroppy lady decided I didn’t need an ambulance but should instead drive myself (with a busted open breast) 28 miles to the QEQM… but assured me I wasn’t going to A&E but straight to the assessment unit.
My hb drove me in.
When we got there- yeah- no fast track, I was told (rather bluntly) “they won’t deal with blood, you’ll have to take a seat and wait your turn”…

So, 7 hours later (yes 7!!) I had been passed from pillar to post (still clutching my own blood soaked dressing to my boob) and no one had properly looked at my wound, no one has offered to clean it up for me (I kicked up a fuss to get some saline and gauze to diy it) but they insisted I didn’t remove the drain. I found out why after I discharged myself and walked out clutching antibiotics and a f**king bad mood!

After they gave me a drip with antibiotics, they shuffled me off to another department (where I cleaned my own blood up), and was supposed to be seen by a surgeon… this was now Sunday morning.
After another hour, I was told it could be several hours as there was only 2 on shift.
I had now had enough. I still had a blood soaked wound with a drain that wasn’t draining and an open, infected wound half covered by the drain.

I knew I had dressings etc at home so argued my point that it was wasting my time because they we’re very likely to just give me extra pills and tell me to see the breast clinic… something I can do myself in the morning.

I lost my temper and said just get me the antibiotics and get this cannula out of me, I’m going home.

When I finally got home and managed to gently ease the drain away, it showed a one inch gape in my tumour wound incision. Thankfully I had spare steri strips and saline. I cleaned it up, got some strips on it to knit it together, redressed it and left the drain off as the hole had closed up anyway.

So, I’ll now spend my first “cancer free” day off tomorrow chasing nurses and surgeons, instead of having lunch with my friends.

To say I’m hacked off, is an understatement! I’m livid. My surgeon only looked at my wound last Friday. Why was this infection missed!!! … I had my surgery on 9th of July and I’m no further forward.
This sucks!
I’ve had it!
So pissed off…

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What a shagging nightmare @misswoof-88, it really is quite unbelievable that that is the level of service that we have had to come to expect these days. No doubt you are exhausted, livid and worried in equal measure (ok, probably a bit more furious than the others) but once you get this awful sounding situation under control, if you can bear to, I’d make a complaint to the PALS at the hospital in the (probably vain) hope that they handle it better for the next person. Is this the one in Paddington? I’m really shocked if it is. I’m West London myself, sent to six different hospitals during my cancer treatment and have always had excellent clinical care (admin, not so much). I hope this gets sorted by your team tomorrow and get out for that lunch later in the week.

OMG :anguished: you poor thing, it sounds horrendous! I hope you get it sorted out asap tomorrow, it doesn’t seem right that there’s no breast surgery support at weekends ?? I’m sure you must be knackered after that scary ordeal. Hope you have a better night and get seen by your surgeon. Sending a big hug x

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