Just diagnosed with Invasive Lobular BC

Shocked and disbelieving - it was caught on my routine breast screening.

Just been for results - confirmed as this type, grade 3, small (13mm) and appointment made to meet MDT next week.

Shocked and horrified actually.  No idea what to expect, and suspect I will have to wait and see the team next week.

I am self-employed, so this is going to have a significant affect on my work and income., Which in many ways is the least of my worries, but still significant.

Anybody able to add any information?  It would be very gratefully received

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Hi Flea

First, I’m so sorry you have to join this wonderful community but you’ve found the right place.

Second, the language you will encounter in cancerworld is downright scary but it’s words that mean something to the experts. ‘Invasive’, ‘aggressive’….frightening as we picture all those malicious cancer cells running rampant round out body while all we can do is wait and wait and worry on top of that. But cancer doesn’t work like that. Mostly it’s quite sluggish so you’re not at risk. Expect a lot of waiting, but it’s all for a good reason. Just steer clear of Google please, no matter how strong the urge is. You don’t know enough about your specific cancer to set up an accurate search and Google doesn’t know you from Adam and has no consideration for your emotions. It’s mostly out of date information anyway.

As regards your self-employment, I would suggest you ring the Macmillan helpline (I think it’s option 5, Work). They will put you in touch with your nearest local adviser who will know anything you need to know, what benefits you’re entitled to when/if you can’t work and any additional sources of support you might not be aware of. It’s an excellent service.

Good luck with what lies ahead xx

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Hi, 

I have also just been diagnosed with invasive lobular Grade2, size 5mm. This was picked up by a regular mammogram check. I’ve been told the lump & lymph nodes will be removed & radiotherapy. 
I see the consultant on Wednesday, not sure what to expect or say. I just feel in shock and like my world has been tipped upside! I’m panicking about everything! My brain won’t stop overthinking. It’s the not knowing about surgery, recovery etc, and this may sound silly but how will I look afterwards. 
I’m trying to remain strong for my family but can honestly say I’ve never cried so much in my life. 
Nikki 

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