I was just diagnosed on Tuesday and had by consult with surgeon today. I will have a lumpectomy next Friday followed by 6 weeks of radiation and 5 years of Tamoxifen providing no lymph node involvement. I am 57 years old and a 12 year survivor of Endometrial Cancer. My crazy brain has been working overtime. My mother was a 50 year survivor of BC and just died last August at the age of 91 of natural causes. I just had the gene test for Lynch Syndrome as I am pretty sure that I will test positive. Any advice?
Hi Maggie57
Firstly, welcome to the forums, I am sure you will find it a great source of information and support. I’m sorry to read of your diagnosis.
As well as the support you will receive here on the forums you might find it helpful to order the BCC resources pack. It has been specifically designed for those newly diagnosed and contains information to help you better understand your diagnosis, test results and the various treatments available. If you would like to order a copy just follow the link bellow:-
Also, do give the helpline a ring if you need any further support or information. They’re on 0808 800 6000. Open 9-5 Monday to Friday and 10-2 Saturday.
Best wishes Sam, BCC Facilitator
Hi Maggie, you’ve come to the right place, there are lots of lovely ladies here, and I’m sure some will have experiences similar to yours to share.
I have no previous history of cancer but was recently diagnosed with 6mm grade one, and for now my treatment plan is the same as yours. I go for lumpectomy and sentinel lymph node biopsy next Wednesday. Take care, and hope you get some answers to your specific query soon.
Just to add - that’s encouraging about your mum, expspecially as treatments will have improved since she had hers. x
I HAVE ALSO BEEN DIAGNOSED ON THE 18/01/16 WITH BREAST CANCER, TOTALY GUTTED AS NO FAMILY HISTORY, FIT AND HEALTHY, HAD MY MRI YESTERDAY, BACK TO SEE THE SPECIALIST ON MONDAY TO DISCUSE MY PLAN.TRYING TO GET MY HEAD AROUND IT IS THE HARDEST PART, I AM 55 AND NOW I HAVE TO PUT MY WHOLE LIFE ON HOLD TO FIGHT THIS.
Hi ladies, I just wanted to add a little message here, I haven’t been on here for an awful long time but just wanted to try to spread a little bit of positivity, I was diagnosed in June 2014 with triple negative breast cancer at the age of 33 my lump was 49mm I managed to get away with a lumpectomy and a further cavity shave as they didn’t get clear margins first time round, I also had a sentinel lymph node biopsy which 1 of 2 nodes tested positive for cancer so had to have an ANC where a further 18 nodes were removed and all tested negative!! I had 6 rounds of FEC T chemo (which was feckin awful, I won’t lie) and 15 rounds of high dose import high radiotherapy!! I am now cancer free!! Chemo for me was horrendous I was admitted into hospital almost every round of chemo had to have a blood transfusion, was neutropenic every time but hey ho I got through it and would do it all again if it meant being here at the end of it!! My daughter who was almost 3 at diagnosis needed me to be strong and get through it and that’s what I did!! I’m so much stronger for it!! I’ve made some amazing life long friends along the way and I honestly am a changed person I live life for now and intend on enjoying my life and trying not to worry too much anymore (I used to worry about everything).
It’s a bit cliche but I’m honestly a stronger person for having gone through the year from hell!
You will all get through this 
I am so happy I had chemo as I feel like I have done everything I can!! I would’ve been more worried had I not of been told I was having chemo (I say I was told I was having chemo as that’s exactly how it was I wasn’t offered it I was told I was having it) all of my doctors and nurses have been amazing and I honestly Owe them my life!! I think it is pretty much the norm to have chemo if you are triple negative!! I know it’s scary but god it’s worth it!!
I’m here if any of you want to chat!!
Lots of love and hugs Lyndsey xxx
I have just started down the chemo route - first one on Monday and so far so good,(Jan 2016 chemo starters thread) although I’m not expecting that to last. But I would say mentally I’m feeling calmer. I know they are throwing everything at me to give me the best possible chance that this wont return. I’ll be having radiotherapy afterwards and hormone tablets for probaly the next 10 years.
The worst part to deal with I found was the waiting for appointments and test results. That really messed with my head!
Loads of good luck to you - this forum is a great place to be xxx
Ithanks blossom and everyone for sharing your own experiences in this nightmare that has invaded our boobs.
The worst is definitely the waiting, when I was diagnosed the oncologist said the lump was between 15-27 mm big but had to have the MRI as my breasts are dense due to still having regular periods.
So waiting for Monday to see when I can get this little **bleep** removed and what treatment is to follow.
Watched a amazing documentary on YouTube about Victoria Derbyshire and her journey, gave me so much inspiration and know that this is happening to so many women of all ages and lifestyles.
Going to keep myself positive and know that the care team at my hospital will get me through this. Though geordie lass ?
Hi , im new to this “blog” thing so i hope im doing it right !. II have Lynch Syndrome and diagnosed today with breast cancer . I had endometrial cancer 20 years ago and im trying to set up a support group in Scotland if anybody wants to get intouch . Good wishes to everyone , keep strong !
Hi this is my first post and feeling quite fragile psychologically. I’m age 55 and thought I was in good health and was knocked sideways when I found a lump 2 weeks ago. Why did I not feel it earlier? I’ve been dieting for the last year successfully and lost weight. I am officially no longer overweight according to my BMI. I wondered if my smaller bust size from 40ish to 35 ish made the lump ‘noticeable.’ The lump is about 4cm and from what I gather means it’s been their awhile. Very upset and scared. I was diagnosed yesterday (31st January). I’m waiting the results of a biopsy. They are checking lymph nodes too. I was told by the Consultant it is definitely cancer. Surgery and chemo on the cards. Other treatment - worse case scenario. I’m convinced the cancer has spread. My back is hurting and every twinge I think is cancer related. Angry and upset and frightened.
Hi rita please try not to beat yourself up about not finding it , i was diagnosed 2 weeks ago though seems much longer, mine was 4.4 cm with lymphs at time of diagnose whether its grown since im not sure , but i know mine had been there 10 months that i know off , i was the same angry at myself that i didnt push for scans last may , also angry at my doctor for saying it was something it wasnt .like you i was scared and upset .once you get your treatment plan and feel like something is being done it eases at little , the unknown is a terrifying place .think ill always be angry at my original doctor …As for the backache , ive also had that since diagnose specially upper back and i was convinced it had spread past my underarm lymps , but bone and ct scan showed no sign of spread .ive had all sorts aches and pains and new one is lighheadiness and can hardly lift my arm as it keeps going stiff in lymph area , once you get your scans out the way and you have some clue about what next it makes it a little less worry , the ladies on this site are very helpful and reassuring when you need it .Please try not to worry .sending you a big hug xx
Just want to add a bit of positivity - I was diagnosed following trial screening (age 49) and had a 25m invasive DC and on MRI a few more scatters of DCIS so had mastectomy yesterday afternoon and I’m back at home with my feet up! Op went well and now just need to wait for results and prob have radiotherapy due to them finding little bits. My nodes looked fine on scan and they did a SNB but said they looked normal. Aches and pains you always link to cancer once diagnosed but you probably wouldn’t think nothing of it normally! I have back ache etc but it’s probably just an age thing as my consultant is not concerned at all. Once you have a treatment plan in place you will feel so much better - the girls further down the line are a godsend on here and they were right telling me it gets easier - it does.
Anniej absolutely go on hol - enjoy the rest. As far as results go if anything shows in the nodes then they’ll treat it - I remember my consultant saying that’s what the nodes job is - to catch them so they are only doing their job - he said imagine they are like pacman! ? Keep your chin up - they are just making sure they get the right treatment plan for you. As far as the MRI goes I screamed “GET ME OUT, GET ME OUT” when they slid me in! Claustrophobia at its worst!
hi annie,
Sorry that that you find yourself here, but if it is confirmed, then it can now be dealt with.
Going on holiday wont make any difference on timings & it maybe a bit of a distraction.
As you’ve already seen, things do settle down when the diagnosis is confirmed & a treatment plan is in place.
Loads of support here whenever you need it.
ann x
Anniej enjoy your holiday x
Hi All,
My name is Emma and I’ve just been diagnosed. I’m waiting on the results of my biopsy for more details.I’m feeling ok at the moment… perhaps a wee bit matter of fact that I have to just get on with it and go through the process… I know that might change but what I’m finding really tough at the moment is telling people. I find myself apologising for telling them bad news… which is ridiculous I know.
Anyway really glad there are these forums and hoping to get lots of hints and tips along with support x