Hi,
I am just diagnosed IDCIS.
I am not sure what to write really as I just feel numb.
Have been coping for 3 years now with my husband who is deteriorating slowly with a form of Motor Neurone disease (slow type called primary lateral sclerosis). He is still walking but only just and will be in a wheelchair permanently sometime over next 6 months. And now this!
It is very difficult to be positive - I thank God we are both retired (I am 59). I cannot concentrate on much right now. I have my CT tomorrow with result thurs or Friday, then planning appointment on Friday for surgery.
Tilly
Hi Tilly, Im sorry you have had to join us but a warm welcome to you anyway ?
Life just keeps wanting to throw stuff at us for some reason! You do wonder how you will cope but you will, these early days are the worst but once you have a definite treatment plan things will settle and not seem so frightening, i found nothing worse than not knowing , the facts i could cope with it was the tests and endless waiting that i couldnt handle, just try and take it one thing at a time and not race ahead assuming the worst, it rarely is ! Plenty of support here for you night and day, always someone around Xx jo
Hi Tilly,
so sorry that you found yourself here, but it is a great place with much support.
Sometimes positive, sometimes ranting or crying. That is what this forum and the relevant threads are there for.
As and when you your feel able to explore the various forums and threads you are likely to find a thread or even threads for ths situation you are in at any stage of diagnosis and treatment. With much help and shared experiences.
We are here to support you, as much as we can - even if it is only ‘virtually’.
I hope all goes well for you today and that the results, which you are expecting in a weeks time are what you and your team are hoping for.
The challenges you may have are very real. I once had a near relative with the same illness as your husband. It is not easy. Hence it may be a good idea to ask your treatment team and/or Breast Care Nurse to point you into the right direction for counselling, so you have some actual ‘people’ support to help you through this. There may be waiting times, hence sorting this out now could be of much help. Perhaps also talk to your GP’s practice to find out what local support may be around to assist you and well as getting help with your husband, especially once you start going through treatment.
Let us know how you are getting on - we are here for you!
Hugs Sue xxx
Thankyou …I know I am not alone, just feel like it. Also, husband not doing well since finding out.
Also, CT is showing a 7cm nodule, will find out more today.
Hi Tilly. sending huge hugs. It is so difficult when you are a carer facing your own health issues and have to shift priorities. Being a carer can feel the loneliest place on earth at times and this must feel like a hammer blow. I hope you are able to access additional support for both of you locally. xx
Hi Tilly
Just wondering how you are doing? Xx