Charys, Jane, Ladybowler, Sallyann, Strudel, Emily, Mysti, Ann-m & Pam75 - I could kiss you all.
goooood morning Anita, I think we can all remember those first few days of diagnosis - they are the worst! I was diagnosed on October 28th and although I haven’t actually started any treatment yet, this site and these ladies (our gang) have made the past few weeks so much more bareable - i have the best husband and family and they are great but I still felt lonely somehow - oooh not now!! Coming on here and sharing our journey and picking up tips from other ladies ( Jane - Ive ordered my cushion from jens friends) has made it so much easier for me …
I can honestly say that even without meeting the ladies on here, I consider them to be friends and really good ones at that … ?
Keep coming back to chat and let us know how you are getting on … I’m here everyday!! Hahaha
We all keep each other up to date with how we are doing and please feel as though you can be a part of that.
My diagnosis is a grade 2 invasive lobular cancer - having a mastectomy on the 22nd December (rubbish date … lol). Not sure of treatment after surgery, chemo has been mentioned but I don’t know for sure …
Speak soon
Sarah xxx
Hello Anita. We all know too well the feelings that you are experiencing - there will be highs and lows. I found it particularly difficult telling people - there’s no easy way to say ‘I have cancer’ and it was the shock on their faces that upset me. You will feel better with a firm plan. But just a word of caution - the firm plan can change; I hadnt realised that and found all the uncertainty difficult.
This is one place where we all totally understand where you are coming from. Sometimes you will just want to offload, sometimes you’ll have questions, sometimes it’s easier to write things down than saying them to family or friends. Use this site as you need to.
Hi,
I am completely new to this forum. I had a lumpectomy 2 days ago of an invasive ductal carcinoma. They did intraoperatve analysis of the sentinel node (OSNA) which was positive so the had to remove more lymph nodes. I was told on recovery that the cancer had spread and that I would need chemotherapy. I found it hard as they had said preop that in most cases with my size of lump it would not have spread.
I have 2 young kids of 3&6 and I am worried how I will manage to cope with the chemo as I have no family nearby. My next appointment is on 28th Dec to see the consultant to discuss everything. I just need to prepare myself for what lies ahead.
I can see it is best to know what all the possibilities are and prepare yourself as mentally it is a big disappointment when the best case scenario doesn’t happen. Sending my good wishes to you all.
hi amoyart,
So sorry you find yourself here & treatment is going to be more complex than you thought. I did not need chemo, but there are nany other ladies going through similar who will advise & support you, As well as the chemo threads, there is a section for ‘younger women & families’ on this site.
do take care
ann x
Hi Amoyart,
I’m sorry that the treatment isn’t as you hoped for.
There is a thread for your young ladies with families like yourself, which I have read and they are so brave and inspiring.
I have grade 3 aggressive, so even though mine (as far as we know) hasn’t spread to the nodes I will still need chemo, but my children although at home are 16 & 21. It will also be sometime after Christmas.
I know it’s not easy all this waiting, but I hope you have a lovely Christmas with your little ones.
Thanks so much for your replies, will look in the young families section too. It means so much to have other people to share things with.
hi blueleyla,
It sounds pretty similar to most of us here, obviously, you will know more on Weds, but there’s no reason not to be positive. bc is very treatable these days, with some of the best outcomes out there.
Loads of support here when you need it.
ann x
Hi Blue, I can only echo Strudel’s words. I have had the cloud of doom creep up on me a few times & I have come on here & been calmed & comforted by the ladies on here. They really have been my lifeline & I’m not sure how I would have coped with this awful disease without them.
The waiting has been awful, but I have now had my mx so feel so much better & even though I now have to wait for the results of my SNB & their could still be microscopic cells, I’m not worried at the moment. You definitely have good days & bad days.
Hi Blue, I also had an MRI scan and whilst I was in the waiting room I very nearly went home because I was SO scared - BUT I didn’t, I somehow stayed and the scan Itself was fine … it didn’t bother me at all … like others have said, because you are lying on your front, you don’t actually see the machine around you and I had headphones on with music playing so I just sang along in my head …
honestly, you will be fine xx