Got my results today and got a diagnosis of grade 3 invasive ductal carcinoma and high grade ductal carcinoma
Her2 +, oestrogen 8/8, progesterone 4/8.
Just looking for any positive thoughts, draining myself to sadness.
I was told chemotherapy before surgery.
I haven’t told my family.
And booked for a PET scan tomorrow.
Hello and welcome
Sorry you find yourself here, but I can assure you your feelings are totally normal and I hope you can benefit from the support given by the nurses and users of this site.
Having a plan of action, certainly helped me. Knowing something was getting done to rid this horrible disease. I won’t lie, there have been plenty of ups and downs, this is not a quick fix. Try (if you can) to think about the future, in the sense that your treatment will come and go, and by the end of it you can start to claw back some normality. My treatment team have been wonderful, a real credit to the NHS, and many others will say the same.
I’ve not had chemo, but I read how well people cope and how different medicines can make the experience a little more comfortable. Things have come a long way since my mum had chemo 30 years ago for breast cancer, and I am pleased to say she is still going strong.
So brace yourself for a long ride, but there is light at the end of the tunnel.
I had a biopsy Friday after mammogram came back abnormal twice. It says neoplasm can’t be ruled out and it says bi rad 4. They have already scheduled me with the breast surgeon does this mean they know but have to wait for results to confirm? Help I’m losing my mind
Hi @jaa2019 ,
We are so sorry to hear your diagnosis - you have come to the right place. The forum is an extremely friendly and supportive place, and I hope you find it helpful for your journey.
If you ever need someone to talk to, or need support, you can reach our nurses on our free helpline 0808 800 6000 or ask them a question here: Latest Ask our Nurses your questions topics - Breast Cancer Now forum
If you want to look anything up to see what has been previously said on the forum, you can use the search function in the top right corner.
Telling your family sounds very difficult indeed, you can mind some guidance on that here: Telling family and friends about your breast cancer | Breast Cancer Now
We have lots of support available, when you’re ready, which you can find out about here We’re here for you | Breast Cancer Now
Please know that we are all here for you, and behind you, and sending you all the love and strength,
Alice
Hi @lynnejones0510,
I’m sorry to hear what you’re going through - it sounds like a really anxious time. I would recommend giving our nurses a call and talking it through with them on 0808 800 6000.
You can also ask them a question here Latest Ask our Nurses your questions topics - Breast Cancer Now forum but I think you would benefit from speaking to someone sooner in order to put your mind at ease.
@jaa2019
Sorry you have a need to join us here.
I have no words to make you feel better. Getting this diagnosis is scary, devastating, panicky….
I am HER2 negative so different chemo to you. Mine wasn’t great but it is do-able. It’s amazing what you get thro when you just have to
However it does eventually stop and I did do some nice things during chemo break weeks. Remember to plan some to keep your resolve going. They don’t have to be big or fancy.
I remember sitting in that hospital room thinking I would be gone by the end of the week. I felt my life was over and I started getting things in order for my family. That was 2.5 years ago.
Since then I got through treatment, back to work, back to holidays, back to life…
My advice would be to
get your support person(s) on board
buy a diary/notebook and write down appointments, medicine times, questions… as you go along
be aware that plans can change.
Take one day at a time so it feels less overwhelming. ‘Does this need to be done today- no? Then I can leave that. ‘Do I need to tell that person today? Etc
At the moment your specialists are collecting info, putting things together and once they’ve done that they will be able to make your plan. So don’t get too hung up on sizes etc at the moment. I did then felt devastated again when things changed.
Whilst their doing their info gathering, this is your time to cry, breathe, eat, drink, sleep/rest (yes I know), get out on walks, be kind/pamper yourself and build yourself up mentally and physically so you’re ready for the next part.
It’s hard but we’re all here for you. You will get through it, (some days easier than others), smile and be happy again. It’s probably just gonna be really shaky for a while.
Big hugs
X
Thank you, I just don’t know why they scheduled me already with out the biopsy results with a breast surgeon unless they already know. It’s a bi rad 4 report that says immediate surgery and biopsy recommended
This number does not work
Hi @lynnejones0510,
I’m afraid our helpline opening hours are Mon - Friday 9 - 4 and Saturday 9 - 1, so it might just be that you have missed them, but you should be able to leave a voicemail and they will call you back in the morning. You can find more info here Call our Helpline | Breast Cancer Now
Hi @jaa2019,
Sorry to hear of your diagnosis, I was diagnosed in November with HER2+ BC and am half way through my chemo then will have surgery. I recently joined a forum on here for people with HER2+ lots of supportive people on there! I’ll try to paste the link…
🫶🏻
Continuing the discussion from Just looking for any positive thoughts:
Thanks I had been reading the post on that group, I will try to find the courage to post there as well.
Thanks everyone for giving me more insight on what to come.
Today was a tough day, it’s my son’s 6th bday.
Earlier when I got my diagnosis was the same exact time 6 years ago when I delivered him.
But today was a present I wish I did not received. Got a busy week
Tomorrow PET scan and Thursday MRI scan.
I understand it is normal to get you an appointment in case you need it. They can easily cancel it if not required.
The not knowing is awful but the appointment is probably just standard practice. If you need it you will be grateful to be seen quickly. If you do not need it someone else will be grateful for the cancellation.
Sending hugs to you x
Last year I was diagnosed with BC (DCIS EP and PP +, then invasive cancer, then BRCA2 mutation… so 3 surgeries later I have two new boobs that are cancer fee (implants), which look great, no nipples (will get new ones at some point and I am in full menopause (no ovaries of FT). And I feel like I dodged a bullet ( A BIG BULLET). Last 31st of December, I was in Mexico visiting my father who lives there now and I had the privilege of seeing a baby turtle release, I was 6 weeks post mastectomy, and still unable to lift anything, do much physical activity etc etc etc and as I watched these little turtles run towards the waves a few thoughts that I shared then with a friend who had been diagnosed with cancer herself and she found them helpful. I hope it helps you, she felt it was encouraging:
I witnessed a turtle release on new years eve, it was beautiful, and also painful to see them fighting so hard to get to to the water. It also felt very appropriate and an allegory to our lives in general, and certainly for my 2024. We are very small in this world and sometimes we need to head into the unknown without fear even if we know what we face is scary, sometimes we need to believe that we will be ok all the same. So I hope that for all of us our year if one of races for which we have the courage and that we all swim into the wide ocean knowing that however violent and scary the start is, we will come back to the same beach bigger and stronger. Sending love and good thoughts for the year ahead.
Thank you both
It’s means a lot reading your messages here. I got my appointment to see the oncologist on Tuesday and also spoken with the CNS and told me it won’t be long once the oncologist sees me chemo will start soon. Tomorrow is my MRI.