Hi i have just been brave enough to sign up to the forum.
I was diagnosed with DCIS in july 22.
I have had surgery, chemo, radiation and take anastrozole.
It will take me a while to navigate this lovely site.
So a very big HELLO FROM ME
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Thank you
Welcome to the forum.
It’s a shame you didn’t sign up earlier as there are so many groups for support. Such as the monthly chemo and radiotherapy groups
Here are some useful links
- Website: You can register for our services. Or find our publications, more information and support or how to volunteer. It’s all here.
- Helpline: 0808 800 6000 (Mon-Fri 9am-4pm; Sat 9am-1pm). Speak to our trained helpline team. No questions are too big or too small.
- Ask Our Nurses: You can message our nurses here on the forum, or confidentially. Whatever you prefer.
- Someone Like Me: Will match you with a trained volunteer who’s had a similar experience to you. They’ll be a phone call or email away to answer your questions, offer support, or simply listen. Call on 0800 138 6551 or contact our email volunteers
- Younger Women Together: For people 45 and under. You can choose the support that suits you: online, one day or 2 day residential events. Find an event.
- Moving Forward: Finishing treatment can be hard, and it can be difficult to move forward with your life. You can access our support online or face-to-face. Our online information hub and Moving Forward journal provide extra ideas and information. Courses run over 2 weeks, with 2 3.5hr sessions. Or trained facilitators and volunteers are there to help. Find a course near you.
- Publications: Download and order publications. You can read online or order your copy for free. From managing menopausal symptoms, hormone treatment or triple negative breast cancer, our information is here for you.
- BECCA: Our free app is your pocket companion to primary breast cancer.
- Speaker Live: sessions are on every month. They focus on the topics that matter to you, lead by expert speakers from across the UK. You can register for one of our webinars, and watch it live, or as a recording. We also have Facebook and Instagram Live sessions run by our clinical team on a huge range of topics. You can find them all on YouTube
- Secondary breast cancer is full of uncertainties. But you can count onLiving with Secondary Breast Cancer to be there for you, no matter what. You’ll be able to talk, listen and learn with people who understand the challenges that secondary breast cancer brings. Our groups are open to people with a secondary diagnosis. Monthly sessions, facilitated by a therapist, are held in a variety of locations across the UK and online. Find a group. And if you are 45 or under? Our Younger Women with Secondaries Together events provide information and support
- LiveChat: Open to people with a secondary diagnosis. A private chat room where you can talk to others in a similar situation.
- Access Fund – all our events are free, but if you need help getting there or accessing our services, let us know. Email us at accessfund@breastcancernow.org or call 0345 077 1893.
I’ve been with the forum for less than a year and haven’t navigated it all. It’s is a very supportive community.
Take care🥰
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Welcome to the forum @snowy1
It is full of kind, helpful people like those who have already replied to you, and I hope you find the support you are looking for.
Please know that our nurses are here for you any time, here on the forum on the Ask our Nurses your questions or over the phone 0808 800 6000.
Sending our warmest,
Lucy
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AND HELLO FROM ME too
I am Seagulls and I find joy in being part of a family of fellow patients.
I have no patience and I like to find out the evidence for cancer treatment. The gold standard is randomised controlled trials.
.e. a random set of patients get the treatment and there is another randomised group that do not get it. Then the results for each group are compared.
It is rare for this to happen but they do sometimes use the results of smaller trials find in different countries and combine the results to get bigger samples of people having one treatment compared with another.
In the case of breast cancer it is the most common cancer affecting women and it’s been around a long long time so a lot is known about it and by and large women live through it and do not die of it.
Not much consolation when you get it as the most effective treatment for it is still surgery to remove tumours and surrounding tissue it may have spread to.
I have now had it twice once at age 48 in 2003 and then at age 67 in 2022. the new diagnosis was a different kind of primary breast cancer so not related to the first one.
The trouble is the older you are the more likely you are to get breast cancer, but when you get to my age other illnesses kick in too.
The most common causes of death of women are heart disease and Alzheimer’s (dementia). So I am keeping an open mind on my future direction of travel.
Seagulls
Hi. Ive signed up today as im still waiting on my mammogram results after nearly 5 weeks x GP found thickening of left breast so i was refered to breast clinic 
Just wondering if anyone as had to wait this long x
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Hi @wendy84
I waited about 2/3 weeks so I would give the hospital a call. Do you have a breast care nurse number? If not contact your GP to see if they can chase for you.
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Snowy, we have all been there and now were here for you WELCOME
BIGGEST HUGS Tili 
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I think you should chase it up 5 weeks is a very long time to wait for results
I hope it is negative x
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Hi everyone, I’ve recently signed up to this forum. I was diagnosed with breast cancer last year. I have found it helpful to read posts from other users who have shared their experiences.
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Welcome silver69. I am 69 in August. I was diagnosed in June 2022. I would rather not have joined the club but at least I have been retired for a while and own my house.
I have grade 2 cancer Er+ one lymph node next to it with cancer in it. I had a mastectomy and diep reconstruction which I am told took around 9 hours altogether. I don’t remember a thing except I was very jolly when I woke up
I was told on the day of my mammogram that it was likely to be breast cancer and then i had the results in two weeks.
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Welcome to the forum @silver69
It is full of kind, helpful people and I hope you find the support you are looking for.
Please know that our nurses are here for you any time, here on the forum on the Ask our Nurses your questions or over the phone 0808 800 6000.
Sending our warmest,
Lucy
1 Like