Kadcyla

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1

Hi

 

Can anyone give me any feedback as to how they have found taking this Kadcyla. . It has been suggested that it would be good for me.Have been taking Herceptin for the past 18mths and tolerated this really well so it is a difficult decision to make.

 

Thanks

2

Hi there, I can only comment on kadcyla from a friend’s perspective, not been on it myself. My friend started on it in April or May, i think. She has not lost her hair and I think she’s been generally quite well on it except for some peripheral neuropathy where she has lost some feeling in her fingers.

She has not had a scan yet since starting it, so I don’t know how it’s affected the cancer.

 

Truddles x

3

Hi, I’ve been on kadcyla for 14 months. I’ve found it much easier than previous chemos (EC and Taxotere). I do suffer from fatigue sometimes (but nothing horrendous) and get joint pain. I hope it works well for you. Della x

4

Hi

new to this thread, I’ve had 7 cycles of Kadcyla and have had flu/cold symptoms after last 3 cycles for 2 or 3 days. Also tired for 3 days afterwards but otherwise feeling remarkably good and with shrinkage reported after my scan. It would not be as easy to keep working full time like I did on Herceptin, but for me its a truly remarkable drug and every active and otherwise healthy person who is HER+ and gets progression while on Herceptin should be able to have it - a longer life and a good quality of life while on it has to be worth the money, after all we won’t be drawing our pensions etc. so we aren’t going to cost the government any more money than most people.

5

Do you ladies know if kadcyla crosses to the brain. I have mets in brain lung liver and bones. I live in India and I am starting kadcyla next week.
In UK does the nhs pay for kadcyla or how do you get it.

6

Hello everyone,

I am Nancy, I live in Belgium.

Here on the internet i cannot find much info about Kadcyla.

So i hope i can find some answers here…

My story: my breastcancer has spread to my bones, I already had FEC and 2 times Taxotere.

After that i have had herceptin. Nothing works, not even the chemo, because the tumor i was treated for is also back. Now my last hope according to my doctor is Kadcyla.

Even with this, she gives me a survival rate of 5% for the next 5 years.

After all this time i am a bit sceptic, why should this work then?

My doubt is big, to give this a try, first i want to know more about the SE and if my life will be comfortable to live, if you know what i mean. 

So what my question really is: are the SE worth it?

Thanks in advance for your help.