Kadcyla

Hi folk, wondered if you’d all heard the
lhttps://www.nice.org.uk/news/article/kadcyla-too-costly-for-use-on-the-nhsatest challenge -

it looks as though a Kadcyla is being withdrawn, BUT ALL IS NOT LOST,

Coukd - a) sign this petition breastcancernow.org
b) respond to the NICE consultation - you will need to register as a stakeholder, but the only takes a few minutes - web page for consultation nice.org.uk/guidance/indevelopment/gid-ta10056/consultation/html-content
The sort of this you can say - challenge their thinking - their evidence was only based on very small samples and evidence out here on those using the drug is that it’s a life saver, ( extends life much more than the 9months that their trial suggest) - a blanket no really isn’t helpful, and they need to put in more detailed assessment of thos using the drugs now.

c) write to your MP about it

Hi Samantha,

Thank you very much for sharing this information about Kadcyla petitions. I am sure many users will appreciate it and be along to show their support soon.  

In the meantime anyone affected by this change, can use our Ask the Nurse service or call our helpline on 0808 800 6000, who will be able to talk you through any questions you have and offer a friendly ear. The opening hours are below.

Monday - Friday, 9am-7pm

Late opening Wednesday, 9am-7pm

Saturday, 9am-1pm

Please note the Helpline will be closing at 12 noon Friday 5th January and will remain closed until mid-morning on Monday 9th January.

Best wishes,

Bonita