Hi Chambo
As you have read mine we 6.5cm, node neg, had onco dx test done which came back low so no chemo.
Have they said you Have to have chemo hun? I Think a lot of lobular are found quite large…i know it is scary though…docs have told me they are very treatable x
I had a mastectomy and reconstruction about 3 months ago.
Love Rachael x
Hi Chambo,
First of all welcome, but sorry to hear you’re joining us. I did not have a lobular diagnosis, but there are many ladies here with a similar diagnosis.
From what I’ve seen here, it’s not unusual for a lobular bc to be technically larger, as it’s not a discrete lump as such, unlike the more common ductal bc, which most of us have.
Going through all the investigations at this stage, is so stressful & we’ve all been there, but it does get better when your treatment plan is in place.
Do come & chat or vent whenever you need to, there’s loads of support from the lovely members here.
ann x
Thanks Ann, it means a lot, yes very stressful the MRI thought it was about 5cm but after surgery it was 12.2cm which has worried me! And now thinking it must have spread?? ? X
Hi Rachy, yes I’ll need chemo and radio once the ANC is done after the 20th oct, I’m back for results this Thursday from the bone and CT scan and I worried sick!!! I only felt a little thickening of the skin and a slight dimpling on diagnosis so it’s unbelievable it was so big!!! I’ll keep you posted x
Hi Chambo,
If it’s any consolation, statistically it’s very unusual for it to have spread elsewhere when first diagnosed, as bc tends to be picked up earlier & the lymph nodes tend to work well in catching the little blighters.
As ever, it’s the uncertainty when waiting for investigations & results that’s so difficult, but it is about getting the beast treatment plan for you to get it dealt with.
ann x
Hi chambo
Sorry that you’ve found yourself here.
I had lobular bc last year. Lobular can be larger because it tends to grow long and thin. The bone and ct scan will be done as standard because of the size, but that doesn’t mean its spread. They are just checking everything to be on the safe side. It’s positive that you have clear margins and the lymph nodes will do their job, catching any stray cells.
You’ve got alot of treatment to get through, so just take one at a time. And you will get through it.
Sending a hug
Sue xx
Thanks for all your replies it’s reassuring I’m just starting out on this awful part of my life, but the doubt and worries do consume you! Thanks all xx
whoops! should read ‘best’ I blame that predictive text again…
Hi Rachy65
You are in good hands and try not to worry too much. Ask your BCT any questions which you are concerned about and write them down if you don’t remember…looking through the posts from our lovely ladies I hope you feel more at ease now.
Regarding your partner, he needs to understand how much of a difficult time you are going through and if he can’t cope he’s no good for you! You need positive people and support around you now and not something else to stress about! Maybe have a chat with him to tell him exactly how you feel! I split up with my partner last year and I was dating someone since January and after I told him my situation he went weird and then told me he had depression! I do sympathise with him if he has as I have friends going through this but they are still supporting me too! I have totally gone off him now (it doesn’t take much) and I feel a big weight off my shoulder! Hipefully though your partner will see sense and support you if not you are better off on your own with the support from friends and family.xxx
Chambo x1, i had ct and bone scans too. I can honestly say it was absolutely the worst time waiting for the results. I had convinced myself that the cancer had spread but they were clear and it hadnt. The worry that you are feeling is normal. Hopingvthat all is ok and you can get on with your treatment xx
Hi Ck
Funny you should say that, he has said tonight that he is getting depressed!.(apparently I’ve caused it!)
I’m getting to the point where I’m ready to tell him if he isn’t up to supporting me then it’s about time we parted.i have family and friends that were here for me… (and all of you lovely ladies!)
Thank you for this message tonight…i have felt do alone after the diagnosis anfchis lack of support.
Love Rachael xx
Hi Chambo…i have had messages on here from women with larger tumours than yours… (and quite a bit of node involvment)…they are still fit and healthy 10 years later xx
Hi Rachy
Seems like they use the same excuse! I know it sounds wrong I know but I hope they never get ill as wouldn’t wish this upon anyone…and to state it’s your fault well, I’m sorry but we didn’t choose to have BC!!! Clearly weak men!!! Concentrate on getting better Rachy, you really don’t need this!xxx
Hi Sue C
Was the lobular you had a large one? You have prob told me before sorry
Rachael x
Hi
Well it was 45mm, so fairly large I suppose. Clear margins and no lymph node involvement. They did bone and ct scan because of the size, but they were all clear.
I then had chemo because it was grade 3, plus radiotherapy and now hormone therapy…my bc story!!
Thsnks for sharing that again Sue.
I’ve had quite an anxious/down day today.
Havnt been out of the house…with just my own company x