Just to let everyone know that UKCK has achieved charitable status from the Charity Commission, and we will be having our launch at the Houe of Commons on the 11th June 2012. We have a number of MP’s and medics coming, so it will be a good opportunity to raise awareness, and rally support. Our website is still being sorted out, but will provide info and a way to get information etc.
The National Radiotherapy Implementation Group concluded that if more widely available, stereotactic rads such as Cyberknife could save in the regionn of 3000 lives per year, so UKCK will play an important role in raising awareness of it, helping people to get it, and helping hospitals who want it, to raise funds.
Great news LG! Let me know when the website is up and I’ll pass it around.
Laurie x
Thanks Lemongrove, this is something we need urgently.
A great step forward in the right direction.
Wow you have done a great job Lemongrove. Well done and thank you for all your hard work. Good luck with your recent issues too. I hope you can get a new treatment plan that will keep you on the right track.
Suzanne
Just bumping, because I think this charity will be of use to many on this forum
Lemongrove,
Can you pm me when the site is up. Thanks
Thank you. Yes contact me too.
Julie x
Thank you Lesley, that is wonderful news and will give hope to many of us. Do keep us informed of the website. I hope you are feeling better in yourself now, once you have had your ct scan etc you can then decide what is best for you.
Marina x
Thank you Bertie. Must say I’m a bit worried about what the CT will reveal, given that the Femera may not have been working since December 2010. In fact as I only started Femara in July 2010, and had received chemo and rads (including Cyberknife for skull mets), there is a strong possibility that Femera never worked.
But that is not unheard of (the Docs recon a third of women do not respond to Femara), and that is one of the reasons I insisted on chemo and rads at the outset, rather than just going onto Femera and Bondronat.
Hopefull the Exemestane will work, but as it’s just another AI, I’m not holding my breath. If it stays in my bones, my main weapon is going to be rads I think.