Hi
I’ve just been back to the surgeon 12 days post wide local excision of tumour, biopsy and Sentinel Node biopsy. My lymph nodes are clear - results in surgery. The historic lump was a papilloma so non-cancer, but the margin round the tumour in the lower left quadrant of my breast shows LCIS or lobular neoplasia. I have been given three options
1. Have radiotherapy and Tamoxifen for 5 years, with annual screening/check-ups
2. re-excision to take more tissue, and if clear it buys more re-assurance it’s all out, and if not more surgery to follow
- total mastectomy to make sure (surgeon thinks this a bit all guns blazing approach.
Do any of you have any thoughts about how I proceed. We have pencilled in for option 2 on 26th September and I feel this is probably the best way to go.
I was really hoping to come out of the appointment reassured it was all out, but the LCIS is an uncertainty as it’s not actually cancer, but a marker for the possibility of it in the futre.
On a good note, I’m healing brilliantly, the superglue closure of the incisions is great - you can watch the improvements daily and shower 24 hours after surgery. And the bruising has almost gone.
Diane xx
Hi positivethinker
I’ve attached a link to our information on LCIS in case you haven’t already seen it:
breastcancercare.org.uk/breast-cancer-information/breast-awareness/benign-breast-conditions/lobular-neoplasia-lcis
You might also find it helpful to talk to one of our Helpliners about this. They will be able to offer you practical information as well as emotional support. The opening times are 9-5 on weekdays and 10-2 on Saturdays and the number is 0808 800 6000
Very best wishes
Janet
BCC Moderator
Hi Diane
I had WLE and SNB on 10/9 and went back for results 18/9 expecting to be reassured all the nasty stuff was gone. However he said that there were some of the invasive cells near the margin in 1 area but several areas of DCIS in the margins. He recommended a mastectomy and talked about reconstruction. Also offered me chemo before any surgery saying it didn’t matter which way round I did it. No radio needed as sentinel node clear. Lots of things to think about so we are seeing him again next week. I think I would prefer to get the surgery over with and have immediate recon rather than a 2nd op. I am trying to stay positive and remember that I’m lucky that I have these options to make sure I remain well. Still a shock when you think one thing is going to happen and then it’s the opposite. Take care and let me know what you decide.
Barbara