Leptomeningeal disease anyone?

My wife Jeanette was treated 2 years ago for breast cancer which metastasized to the brain. It has come back and a tumour was successfully removed from the cerebellum in her brain 6 weeks ago. Assuming she has still some microscopic amounts of cancer left, they have started to radiate the surgical cavity, but the preparation MRIs are showing new spots, confirming she has Leptomeningeal Disease, which seems really scary, as the prognosis is not good at all. We are going for a remote second opinion consultation with Memorial Sloan Kettering in NYC.

We would like to speak with someone who has also been diagnosed with LMD recently.

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Welcome to the forum @jocelyn

I am so sorry to hear what you and your wife are going through at the moment. I hope a forum member will be able to share their experience with you and that you’re able to get more information to make the decision that works best for you.

As it sounds like you may be based in the USA, I just wanted to let you know that any advice from our nurses on the Ask our Nurses your questions board- Breast Cancer Now forum is specific to the UK and our health system. The forum has people from around the world on it, and I hope that you find it a supportive environment.

Sending our warmest,
Lucy