Letrezole, Health Barriers to treatment, loneliness and fear !


Hello newly diagnosed with Grade 3 Ductal Carcinoma ER, PR, HER & node +++ . I’m 54. Tumour in left breast 3cm x 3cm and axillary nodes cancerous. Full axillary clearance advised if surgery can go ahead due to other health issues. 
Body & Bone scan clear . MUGA scan on Thursday. 

Due to significant other underlying health conditions chemo and Herceptin not an option,  surgery possibly in 6-9mths unless tumour doesn’t reduce in which case maybe sooner but I’m a high risk,  then radiotherapy at the end.  

Started Letrozole last week . Taking one a day . Some pain now in the breast and lymph area. Armpit was swollen on original examination my oncologist said. Would that pain now be the Letrozole working ?

Does anyone have any experiences similar to mine with additional health barriers or just having Letrozole as a treatment first. 

Would be lovely to know I’m not alone as I feel very much so right now as all online/text book advice/ help is geared towards traditional therapies and not someone whose options are limited. 

I feel very afraid of it spreading. 

Wish I could advise, but I can;t. I’m on letrazole though, and have various side effects.

Do hope you’re ok. I think the fear is something that never leaves us. Gutting.

Sending hugs

Hello - I am also 54 on letrzole - diagnosis - about 3 months ago - bilateral brest cancer - left brest 22mm lump carcinoma right 55mm lump lobular er positive no swollen lymph nodes but had double masectomy last week 2/2 lumph nodes positive on biopsy.

Its all really scary as the diagnosis came out of nowhere a lump appeared a few months back and here I am - further treatment to be discussed next week with oncologist. 

Letrozole - not nice either got all the side effects but changed to the Accord brand has helped a little. Not the epitome of health before diagnosis but walked regularly and diet was Ok too ( no alcohol, smoking a little red meat).

I did feel whilst I was on letrozole before surgery that the lump was getting softer and seemed to have shifted but maybe all  in my mind.  Best of luck to you - its best to switch off from the cancer every now and again (hard) as otherwise it gets all consuming and depressing I find.

I started Letrozole in November.  Shock diagnosis of stage 4 breast cancer with spread.  Also on second 21 day course of Palbociclib.

Feel dreadful most days, ill on others.  Depression now setting in.  Being supervunerble and not allowed out except for a short walk…  due to covid, which we are all  having to deal with, isolation is horrendous.  Just being allowed to get a pint of milk from the supermarket would be the equivalent of going on a world wide cruise at the moment.

Found you guys today and so glad I did.  Wonderful to know I am not alone, both in my thoughts and shielding.