Afternoon Ladies
I’ve been on letrozole for about 18months now. In my experience, joint and bone pain comes and goes. For me, it can attack one area of my body, but will go again in about 6 weeks. This week, seems to be my knee!.
I was advised by my oncologist not to stop taking it. If I can’t manage, then there are other things they can try.
Try to bare with it for a while… It can settle down. Go back to your oncologist if you are unable to manage.
Best wishes
Sue xx
Thanls Sue and Butterfly x
I absolutely hate the side effects from this medicine!
I am seriously considering stopping after a little more than 2 years. God bless us all ?
Hi
I have found the side effects reduce as time goes on - I take Lyrica and Ibuprofen for the pain which seems to work. I also found Vitamin D with Calcium helped.
Hi, have been taking Letrozole since August 2019 and the side effects have got progressively worse, so I can hardly walk due to joint pain. I have not seen my consultant since February 2020 and when I have raised issues with the team at my local clinic I get fobbed off. My GP recently had blood tests done due to hair loss and gout-like symptoms and found I was suffering from Vitamin D deficiency and am now anaemic. This side effect of low estrogen was never mentioned and there is nothing in the leaflet that comes with the medication.
The Americans have been aware for at least 10 years that Letrozole can cause gout-like symptoms and vitamin deficiency. Why aren’t we kept informed?
I am due to see my consultant at the end of April so hopefully I’ll get some clarification