Li-Fraumeni Syndrome

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Has anyone heard of Li-Fraumeni syndrome? I had to see a genetic counsellor and she says my family history is suggestive of this condition and I have had a blood test. Any information would be useful

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Hi toothfairy

I have found this registered charity website which contains some information about Li-Fraumeni syndrome which may be of help to you, our helpline may be open again tomorrow for more information if that helps on 0808 800 6000 9-5 weekdays and 9-2 Sat:

cafamily.org.uk/Direct/l32.html

Best wishes
Lucy

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Thanks Lucy.