Little sister HER2 + grade 3

First time posting here.

My little sister, 34, was diagnosed with a grade 3 HER2 + breast cancer 3 weeks ago. She has since been told the MRI showed an area of concern which they believe is a new cancer. She had a ct last week to see if it’s spread, she gets the results Monday.

She also meets with clinical and medical oncology Monday.

How the hell are people coping? I’ve not stopped crying since I found out. I feel absolutely broken. I’ve not cried in front of her.

This wait for results is absolute torture.

Would appreciate any words of wisdom, positive stories, anything x

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They say the early days are the hardest, once all the investigations are complete and a treatment plan is in place it all feels a little less daunting.

I’m HER+ and they did find a baby tumour next to my main one on the MRI but they still believe everything is contained in that one breast with no lymph’s and it didn’t change my treatment plan.

I had my first chemo a couple of days ago and I’m still feeling ok.

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I’m HER2+ too and I’m 33. The time between the biopsy results and the final picture after all the scans was really tough. I had a CT to check for spread and my breast MRI picked up a spot on the other breast which ended up being benign but I needed to get more mammograms, ultrasounds and a biopsy for that result. It’s a really tense time.

I think it’s best to reassure yourself and your sister that now they know there is a cancer in her breast absolutely everything is being checked before they start the plan.

It’s hard not to spiral into the worst case scenario but there are so many stories of women on the other side of breast cancer thriving and living their lives again.

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So sorry to hear your news :heart:

There will be some waiting around now for results and as hard as that is, it kind of gives you time to adjust. Not knowing the full picture is the hardest part. Once you have a plan things are much easier :heart:

My advice would be to spend more time searching in this forum than you do google because there are real people here that share the same story as your sister and they have come through it. Ask as many questions as you need to.

All the testing they can do now to get a clear picture of whats going on means they will know exactly how they can treat her. Please don’t spend too much time thinking the absolute worse (I do need to take some of my own advice haha) I know its easier said than done but breast cancer is very treatable now :heart:

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Sorry to hear about your sister. The waiting is definitely the hardest part! I’m 34 and was diagnosed with 1 lump at the end of October, following mri and mammogram that found 2 more areas of concern that they wanted to biopsy so had to wait another couple of weeks for full results. Luckily both were benign and I’m booked in for Tues 16th December for a lumpectomy.

I think I’ve dealt with it better happening to myself than I would if it was happening to one of my family members!

The waiting is the hardest part but I just had to look at it that they were getting the best possible treatment plan for me and making sure there was nothing they were missing.

What helped me was:

-This forum and staying off Google!

-Keeping busy and doing nice things. I didn’t let the diagnosis stop me from living life.

There are so many treatment options now for BC. I started a thread for positive stories when I was feeling down a few weeks ago, of you search “positive stories” you should find it.

Sending love to you both x

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I’m 32 and I was diagnosed with the same as your sister just one month ago. My MRI also picked up further areas of concern and after further biopsies it turns out I have 2 tumours and a positive lymph node in the same breast.

It’s been a crazy month of tests and time spent at the hospital but my CT scans thankfully came back all clear and I started treatment on Wednesday this week. I’ve felt ok so far, just a bit tired.

It’s been a struggle if I’m honest but I feel a bit better now a treatment plan is in place. It was so daunting waiting for results, always expecting the worst

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Why are women getting this so young? And at all? I just cannot comprehend it…

Just wanted to update. They have since found 2 more areas in the breast they believe are also cancer. She starts chemo 31st for 6 cycles. Absolutely terrified xx

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It really is terrifying :frowning: Sending you, your sister and family all big hugs. I hope you find comfort in the many stories here of people that have been in similar situations. Once those little chemo soldiers go in and kill off the cancer cells, you could start seeing things shrink and hopefully that will also fill you with hope :heart:
It’s your sisters job now to make sure she’s as strong physically and mentally as possible. Get her immune system fighting fit :heart:

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How are you and your sister getting on now?

I am new to this forum now.

My sister also has a breast cancer diagnosis.

I’m finding reading posts like yours and all the replies very helpful indeed.

Thinking of you and your sister and sending lots of love.

I appreciate the suggestions from everyone to avoid doing research on Google!

And use this website and forum instead!

Thank you all.

My god it’s a rollercoaster that’s for sure!!

So sorry to hear about your sister. Is her diagnosis the same as my sisters?

We went to pick up her wig last week, and she had her remaining hair shaved - that was the lowest day, absolutely broke me.

She is 2 chemos in and she is so so rough, not been out of bed today bless her. Just been sat on the bed for an hour with her chatting over a cuppa.

Thinking of you all!!

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Hello beautiful people,

I am sorry I haven’t been on here to write more before now.

My sister had her mastectomy 3rd February and 7 lymph nodes removed. 6 of the nodes were HER2+ so we know have met with the oncology team and she will start chemo either next week or the week after.

My sister had a seroma under her armpit which kept filling up with fluid. I know this can be very common.

They drained it a couple of times.

Then when she had her paddle removed under local anaesthetic she developed an infection in the aroma site and ended back in hospital on IV pain relief and antibiotics.

I think I’m going OK but to be honest it’s all been like a roller coaster of days flying by and up and down to the hospital visiting my sister and attending our patient appointments. It’s my pleasure to do this and support her.

Then our old dog got very sick right in the middle of it all and he’s picked up now but my sister kept saying “Drake can’t die when I’m not there with him and I’m in hospital” :see_no_evil_monkey:. The best were amazing, the dog pulled through and we enjoy each day as it comes.

My main fear right now is how I’ll be able to support my sis during chemo on days when she has side effects. It’s the fear of the unknown I know.

thank you for all your sharing and posts. It really does help so very much indeed to know there are others out there at different stages of this journey.

I agree - I had no idea that women as young as in their 30a were going through diagnoses.

My sister is 54 and I’m 57.

I think she’s handled the mastectomy and the DIEP breast reconstruction very well. Yes pain, yes sickness and off her food at time and hard to get all the pills on at the right time of day. But she was fit going in to this as went to the gym a lot and I can see that’s helped her recovery post surgery.

Medics and surgeon are incredible. My sisters not looked at her new body and scars yet. I’ve seen them and I have to say her new reconstructed breast is beautiful and I had no idea surgeons could do work like that now adays.

I know we have a journey ahead of us with her 8 rounds of chemo over 16 weeks if the timetable ca be followed as planned. Then radiotherapy then immunotherapy.

I love when you spoke about sitting chatting to your sister having a cuppa on the day she didn’t get out of bed. Luckily I’m not working full time just now in an office so can be flexible to be around for my sister.

I am thinking of you all and sending my love and good wishes to you and to those you know going through healing from breast cancer. It’s brutal. People are very very kind and caring though.

Bar my initial first thoughts on waking in the morning of “of my God, this is a nightmare and I can’t believe this is happening to my sister”, I tend to push those thoughts away, get up straight away and walk the dog and get on with practical tasks and to do lists things plus housework and that seems to be keeping me on a reasonably even keel.

We did have a laugh as I’m not the best cook and one night when I’d made dinner and my sister was eating, I asked her afterwards how as it and how many marks out of 10 did my meal warrant. She said 3 out of 10 and we both burst out laughing!!!

I am learning the importance of not faking it to laugh in a false way but seeing the humour at times and also being grateful for me being able bodied and being well enough to care for someone else and trusting deep down inside and having faith that we can cope, she can cope with chemo and she can come through the other side.

I’ll keep in touch more regularly here.

I send all good wishes to you and yours xxx :heart: