Liver and bone mets

Living with secondary breast cancer Supporting each other and sharing experiences
1

I was dx with stage 3 BC in Oct 2013 , had a double mastectomy ( due to gene mutation Palb2) anc had full node clearance.
I was in Tamoxifen for 5 years but unfortunately was diagnosed with liver and bone mets a few months ago.
I’ve just had my 3rd cycle of Gemcarbo and have a scan looming on the 20th Dec.
I’m so scared and am looking for any inspirational stories out there.
Julie x

2

Hi Julie
Welcome to the forum where no one wants to be but we’re all very friendly and supportive. We tend to hang out on the Bone mets please join in thread but there are also lots of useful threads on the Treatments section depending on your own particular treatment.
I was diagnosed straight to stage 4 in Dec 2012 with bone mets and liver mets joined the party in Oct 2014. So coming up for my 6 year cancerversary!! I have had 10 different drugs over last 6 years and currently on my 20th weekly session of paclitaxel. Most of the time I feel pretty well, just getting on with life and making the most of time with family and friends.
I wish you all the best with your treatment, trust me , everything is very scary at the beginning but you do learn to live with it in time. The forum is a wonderful source of help and support.
Take care, Helen x

3

Thank you so much for your reply Helen , I’m still in shock at the moment and it’s good to hear from ladies in the same position , just feel like I’m living a nightmare at the moment .
6 years is amazing and long may it continue for you !!
Julie x

4

Julie Hi

Can I ask you how they found your secondaries? 

I am due to see the oncologist next week for a routine appointment and Ive been getting a lot of rib pain lately.

I just wondered if you had aymptoms or abnormal BTs?

Thank you

Rosie x

5

Hi Rosie,
I had very bad sickness and reflux acid but my BT were normal which seems odd now , haven’t really had bone pain .
I wish you all the luck , you’ll be fine I’m sure , Julie x