Hello friends
Cycle 4 over with today all went well although it took longer the chemo prescription machine (don’t know what it is called) was broken and they had to get another hospital to dispense the drugs 1 1/2 hr later and then my lovely new Dr (removed due to Ts and Cs) was slow authorising the drug (apparently he is letting paperwork pile up)
Bloods are good so lets see if the hair stays on my head although there were more loose hairs in the sink.
I do hope you are all doing well Love and ((((hugs)))) xxx
Hello to all
I have had cycle 5 today I saw onc first for medical review he was pleased with blood results he said the blood for liver showed a reduction but not to build hope up too much because the scan would show it better which I shall be having after cycle 6 or 7. I cannot understand why my chemo nurse today did not put my wbc results down in my record book 4 was 5.2 it seems to be lowering each time what is the the lowest it can go.
As for se I have had a free cycle week with 4 no ‘D’ thank goodness I have felt great although it shows in the afternoon when I get Dinner ready I get very ratty with hubby when he tries to help he gets in my way, also I am tired ready for a rest because I try to do too much through feeling better. Oh se the hair how could I miss that the head is still full of hair but getting thinner I lost quite a lot during washing and I went to a wig shop yesterday and bought one. But not ready for it yet but all the messing with so many wigs she got me to try there was hair dropping on me but it has now settled down again with little dropping today. I wanted a cap or turban but forgot to ask.
Well lets hope cycle 5 goes as good as 4.
Love and (((hug))) to all xxx
Sorry Carabel
I was writing at the same time as you. Sorry about the picc line not working lets hope the hickman works good luck tomorrow will be thinking about you.
(((hugs)))
Hello friends
Tat I do hope you are feeling so much better than last time you posted has the slower infusion helped you? I do hope so life can be so miserable with this disease at times. Do let us know how you are. :heart:
Carabel did you have the Hickman line fitted. If you did I hope it went ok it will be so much better for you. Luckly my viens are very easy although last week they weren’t but I made sure I had plenty of fluid this time.
I had a phone call yesterday from the CT Scan secretary who offered me a cancelation for 4 pm Saturday How lucky was that I was shocked because I didn’t expect that for another 2 weeks.
My cycle 6 was today my bloods were fine again my wbc was 5.2. My hair is getting thinner but still plenty left to get away with it as long as I don’t mess with it.
Love and (((hugs))) to you all xxx
Hi ladies
Tat hope you get sorted and you manage to have your chemo this week! Glad you enjoyed some family time.
did you get your CT results?
I am still in hospital unfortunately- breathing not improving so may have added infection. Apparently blood clots is a recognised complication of active cancer. Not sure whether chemo will go ahead this week but Thursday is still a wee bit away so I’m hoping that I improve enough! Very frustrating knowing that it’s been effective and has been interrupted by other complications.
Hope everyone has managed to enjoy their weekend x
Hi all
Carabel sorry you have found yourself in hospital this week lets hope they let you home tomorrow. Will you have to inject to get your blood clots sorted. It must be scary when your breathing becomes bad I do hope they have been able to help you with this. Sending you loads of ((((((((((hugs))))))))))))
Tat I do hope your wbc has gone up now and you will be able to have your chemo. I know what you mean about the waiting in the hospital it seems as though we spend most of our time sitting around waiting for this and then waiting for that. Glad you had time with your family during this half term I was lucky to have my Wetherby family visit it was lovely to see the grandchildren.
Love and (((((hugs))))) xxx
Hi
Still in having iv antibiotics and on oxygen. Hopefully will get on top of things soon . However will miss chemo again this week so I understand that frustration! Especially since the ct I had on admission showed it was shrinking tumou
Here’s hoping we all have a better week x
Hi Carabel and Tat
So sorry to hear you are still in hospital Carabel lets hope they get you sorted out soon.I know it must be annoying to miss a cycle especially when it was doing it’s job. To be in for a week is bad enough but to go on to another week is awful. Sending you loads of ((((((hugs)))))))
Tat sorry to hear your bloods are down I know how you feel when you have to miss chemo I had it on my last one.But if thats what it takes I do hope they can get your bloods back up.It was nice to see the grandchildren I miss them alot.The granchildren in France I am not sure if it will be possible to see them at Christmas and they cannot come to England because they cannot leave their dog as it has trouble with her legs and no-one seems to look after her like they can she goes down hill very quickly when they are not there.
The hair is still covering my head it’s getting thin and is coming out more now so this next chemo will hurry it along I think.Hoping CT scan results will be ok on Wednesday.
Love and ((((hugs)))) xxx
Hi girls
I have been taken off Taxol due to my ulcerated skin mets the chemo would make it difficult for it to heal because of the hb. So after 7 cycles and still have hair on my head although it is getting thinner and I think the hair is dead and when the new hair pushes through it will fetch what is left out. Shame because everyone has remarked how nice my hair has looked colour and straight so now I shall have to put up with grey I have never seen it grey all over.
My new treatment is Fulvestrant (Faslodex) its an Hormone treatment which involves needles in both buttocks every 2weeks for 3 doses then every month.
I do hope you are much better Carabel and that you are at home recovering and your breathing is back to normal.
Also you Tat I hope your bloods are back to normal well an acceptable level so that you can continue with the Taxol.
All the best with love and ((((hugs)))) xxx
Hello ladies - just catching up with your progress. Hope everyone gets back on track with their treatment and good luck with scans. It’s hard not to worry. I only got home from hospital today due to a few complications. Will see oncology next Thursday but not sure if they will consider me fit for chemo although I do hope so. Take care xx
Hello Carabel and Tat
I do hope you are both feeling better.
Fulvestrant is often used with other drugs in trials. I have had my first of 3 fortnightly injections before I have it once a month. So the next time I have a blood result and see the onc will be January 3rd + 4th I am feeling so low about it while on taxol I felt better than I have done for such a long time. Now I am getting quite anxious being left for such a long time without blood tests. I am in pain which I didn’t have for a long time.
I wish you both success with Taxol and shall be watching how you are both doing.
Love and ((((hugs)))) xxx
Hello marirose
Gatecrashing here but we hate to see you like this …we rely on you to watch over us for advice and support …so think positive about the hormone jab …maybe once the chemo is clear for a little while …the oncologist will put you back on it again. maybe it was for the best as you could have ended in hosp with chemo overload and you wouldn’t want to be there and miss strictly and celebrity jungle on tv !!!
Carolyn xxx
Me again .
My friend that has the hormone jab says she got a sore bottom for the first two and felt achy but she’s fine now with it so hang on there …
Xxx
Hi Carolyn
The sore bum I can tolerate but it’s the pains in my right leg groin and lower back I have taken Oramorph which has helped ( I have had it in the cupboard a few months but never needed it) but the pains stop me from moving around properly and I hate that my bones are hurting too so it worries me. The more I think about the change over to this new drug without proper consultation makes me feel I have been thrown on the scrap heap. I have not slept for the last 4 nights so I know this will get me down too. But I will put a brave face on it and as I always say “I’m fine”
love and ((((hugs)))) xxx
Marirose, so sorry that you are feeling down…you have made so many of us feel better with your wise and comforting words, now it’s your turn! I hope that you have a sunny day today, that you manage to get more sleep-feeling exhausted is no fun, and that if you are feeling anxious, you ask for a follow-up sooner than January.
I have had faslodex treatment, I’m not sure if your pain is from your secondaries or the injections? My tips were to lie on your side so you are relaxed, ask the nurse to warm up the phials a bit, it’s quite viscous apparently, and inject very SLOWLY. I also used to massage my derrière straight after although I later read that it made the liquid disperse too quickly! Who knows?
Sending you (((((hugs)))))
Well, that’s me off Taxol now. Results of Monday’s scan show all liver tumours have grown 
Going to have a break until the new year and then start doxorubicin on a three weekly cycle. There’s a lifetime dose of 6 cycles of dox, so whether it works or not I’ll be moving onto something else before too long. Feeling pretty low tonight, but my daughter’s coming home from uni, so that’ll help.
Hope everyone else is having a better week! Hugs, Tat xx
Hiya tat
So very sorry that the chemo hasent slowed down the critters but focus on Xmas and a nice chemo break and then the new chemo regime in the new year.
Hopefully having your daughter home will be nice and cheer you up a bit .
Sending lots of special hugs . Xxxx