Hello. I have had mets to bones for 9 years. Just been diagnosed with one met to liver. Such a shock. Am currently on Vinorelbine. Have had most treatment options, ie all hormonals, paclitaxol, palbociclib. I have nearly run out of options and I am scared. Has anyone else survived for a while with liver mets? Nan of threex
Hi Nanofthree,
Im so sorry to hear your news it must be a shock after all this time. Do try not to panic though, there are plenty of us on here who have lived for many years with liver mets, and only one met showing up is a good sign and means you may be eligible for some targeted treatments. If you haven’t already, have a read of the threads about liver secondaries and in particular a current one called RFA (radio frequency ablation, where they zap the cells using radio waves) vs liver resection (surgery to remove the affected part). I have had both and currently don’t have any mets in my liver (since five and a half years ago) I certainly know one other person who like me is still going strong after 10+ years with liver mets.
I hope you have a good team you feel you can trust and that you get some decisions about a treatment plan soon. I hate those times when something changes and you don’t yet know what the plan is. Once a plan is in place I sort of relax and trust that other people are sorting me out. A bit irrational, I know, as it doesn’t really change anything!
i see from your name that you’re an old-timer about this grandparenting thing. We are expecting our first grandchild any day now, so I’m super-excited and can’t wait to get into my new role. Any tips appreciated!
all the best Nan, keep us posted
Javksy xx
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Hi All
I hope you don’t mind me joining in this thread. I was diagnosed with Bone Mets 2 years ago and was on faslodex and denosumab. However, in March this year I had 2 large mets and a splattering of small ones through my liver, nodes in my lungs, a pelvic adnexal mass and a further lump in my left breast. (Which was my good one!)
As a result, I stopped hormone therapy and went onto Docetaxel 6 rounds, all now complete,CT scan says I’m stable.
But im feeling very scared, I’m now only on Denosumab, nothing else, next onc appointment December.
i am seeing my GP this week as I want to change consultant, as my current one is not very forthcoming with information, so much so I only learnt about new breast lump and lung nodes from the letter he wrote to GP, he hadn’t ever mentioned to me!
for the last 2 weeks I’ve been experiencing bad head aches, flashing lights, some giddiness and nausea. I’m terrified that it’s now spread to brain. I’ve not had any scans on my head. I think I will mention to GP this week.
sadly in our area we don’t have a SBC Nurse, and the other nurses are reluctant to talk to Secondary ladies,
Although I suppose headaches could be stress,!
sorry for long post just would like to hear others thoughts as I don’t know anyone in the same position as me.
thanks
x
Thank you for the quick reply, even more frustrated with my care now, received letter in post today to say onc not available in December, so now appointment Jan 12th, that’s 8 weeks after my scan and 5 1/2 months since last appointment! I can’t believe it, I don’t think they realise how stressful life is for us ladies!
Will insist that I get new onc with appointment at end November!
Well that’s my rant over, no wonder they send these letters to arrive at weekends when no one available to phone!
Have a good weekend, very wet here, and another update next week. Xx
Hi BJR
I am so sorry you are in this situation and it is absolutely unacceptable that you are left waiting 8 weeks for scan results - I usually wait 2 weeks and find that unbearable. I would contact your oncologist secretary first thing Monday morning to arrange an earlier appointment as it seems likely she will be helpful. Wishing you good luck xx
Hi all
I had Stage 3 Breast cancer 3 years ago. I had a full MX & tummy flap reconstruction. After a mammogram recall I was diagnosed with breast cancer on the other side & yesterday after a CT scan I was told I had tumours on the liver & they’ll confirm post-biopsy if it is secondaries or “mets” -is that what they’re called? Anyway I’m looking for reassurance, advice, anything - as right now I don’t know what to expect. ?