Sending prayers and my thoughts to Hilsy.
I was diagnosed with secondary Breast cancer in liver, lungs, lymph nodes and Breast in April. I was put right onto Paclitaxel chemo for 18 weeks, because the tumours responded this was extended to 27 weeks of chemo. Has anyone else had this amount of this drug! Going for scan next week and visit to the consultant on 23rd to discuss next plan. Just wondering if there is any one who has had similar amount of chemo and what their treatment was after it x x
Hilsy, a month on and another note to say I am thinking of you!,
Big hugs x
Yes thinking of hilsy too…hope all is well and sending love and prayers xxxx
Good day. My mother was diagnosed with breast ca stage 4 wih liver, bones/skull mets… Im so worried about her… I don’t know if they are still manageable or treatable… She haven’t started any medication/chemo yet because she’s scheduled for palliative mastectomy this Feb 9…
Hi Aireen, I know exactly how you feel my mum was dx December 14 with liver mets while I was 39 weeks pregnant and what should of been one of the happiest times of our lives was taken away from us by the horrendous disease. My mum is currently on her 11th weekly taxol with 7 to go then will be followed with a hormone tablet. She really well at the moment and you really wouldn’t know there was anything wrong with her physically but mentally she has ok day then terrible days. How is your mum at the moment ? How are you coping ? Xxx
Hi my mum is on 18 weeks of taxol to and has also received a good response due a scan soon as Drs can believe blood are down from 1800 to 285 in just 7 weeks of treatment. Hope you still responding well x
Thanks EJ81, my mum has just come out of her scan now so fingers crossed for good results. Where you going nice on your holidays ?
Love sian xx
Oh lovely, have a fabulous time xx
Hi EJ81 - my mams scan was stable to better in the report from the scan. The onc explained this as due to the damage the cancer has caused there is now a lot of scar tissue but can’t tell between cancer and scar tissue with a ct scan but cause her bloods have come down so quick he expects to the liver to have bettered. Does make any sense to you ? So 2 more weeks of taxol then a break followed by a hormone tablet so fingers crossed this works for a VERY long time. How are you doing ?
Nicky08 - how long a break did you have to have once your chemo had finished to starting your letrozole ?
Hope everyone else’s treatment/results are going in the right direction
Xxx
Thanks Nicky, how you doing on letrozole ? How do you get monitored since being on it to see if it is working ? Sorry to pick your brains we are just new at this xxx
Thank you Nicky your knowledge is amazing although I know it certainly isn’t a chosen field. I didn’t realise that you could be on Heceptin and hormone therapy together. How long have you been on Heceptin ?
Love sian
Xxx
Thanks again for your information, there hasn’t been any mention of Heceptin for my mum so I’m guessing she is negative for that xx
Hi all. Hope everyone is doing ok and treatments are being kind to you. Picking brains again - has anyone had or know anything about liver ablation ? A lady I have been told about asked about this to her onc she was told she wasn’t a candidate for it then went privately for a second opinion to the marsden and is now going to receive it on the nhs through the Marsden, is this something that onc can’t offer maybe ? Or don’t approve of it ? If anyone knows anything be good to hear, maybe a stab in the dark but don’t want to be left thinking, What If xxx
Hi there- newbie to the liver thread! - I haven’t been on the forum for ages. I was initially Dx with bone mets 6 months after primary Dx in July 2012 her2+. Anyway was doing ok on herceptin. However found out in Friday I have liver mets from gastro consultant. Been a strange one. Initially thought I had gallstones back in October. Then blocked bile duct. Let being told csncer doesn’t behsve this wAY. Recently had liver biopsy - was being checked for autoimmune hepatitis. Anyway cancer cells have dispersed in my liver. My lft’s have been credibly high. I phoned my Onc secretary this morning to try and book appt. just wondered if anyone had a similar story and positive experiences to share please. Feel like I’ve been carrying on as normal - at work teaching and running around after my 8 year old and then this happens! Hey ho! Are there any questions I need to ask onc? Any tips on itching also gratefully received. Thank you in advance. Katie x
Thank you Nicky. I am grateful for your reply. I didn’t hear back from Onc secretary yesterday so I’ll get back to her this morning. The itching is driving me potty!!!
Katie x
Hello all. I am new to the forum. I was diagnosed with primary BC in 2011. After a gruelling round of surgery, chemo and radiotherapy, I kind of recovered and went back to work. After a lot of tests I was diagnosed with secondaries in October 2013, in the liver, pelvis and lung. I have been on capecitabine and denusomab since January 2014, with a couple of breaks. The lung met seems to have disappeared! I am greatly heartened by the stories on the forum. We pressed the registrar for a steer on life expectancy. He said average 2-3 years but I doubt if the consultant would have put a number on it. At the time I was pleased because I thought I might make it to christmas! Now I’m not sure whether it meant anything, particularly reading inspiring stories on the forum. I have one suggestion for anyone with palmar plantar syndrome. I have found a winning formula with aveeno cream and skechers memory foam shoes. This combo has liberated my poor feet!
Thanks Helen. That is really encouraging.
Thanks Ej81. That is really encouraging.
Just to let all you fellow liver mets ladies know - I have had my 200th Herceptin injection!! Amazing, unbelievable - I feel very humble as a appreciate all the work, dedication and money that has gone into getting me this far.
Let’s hear it for all those unsung researchers out there - keep up the good work
A very grateful
Blondie