Liver mets - new thread

Hi liver met ladies, I haven’t posted for ages I sneak a peak sometimes though. I was dx double whammy with liver, lung and ext bone. I have had docetaxil chemo which shrunk liver by 30% and rads to spine and shoulder and surgery to repair my shoulder which has been eaten away. I have been on tamoxifen and ibrdronic acid tabs since February and things seem to be stable. My hair has grown slightly and finally 4 months after chemo I am starting to feel like a human being. Just wanted to say hi and hope you are all doing well in your treatments . Xxxx

Hi there my friends. Haven’t posted for a while but been reading. Pleased to hear you’re doing well Nicky -would be nice to see you sometime soon, will look on the meet ups thread.
Due to see onc next month after finishing docetaxol in March. Feel pretty ok, tired all the time though. Hair is growing albeit with plenty of grey!! Was very brave and went to a party with no turban or wig!
Wishing everyone all the best with treatment, hang in there.
Love Helen xx

Hey Liver ladies,

 

I am on weekly Paclitaxel and Herceptin currently, but wondered if anyone had any experience of homeopathic rememdies whilst on treatment? I was thinking Milk thistle type?

 

Hugs

Pen x

Hello Ladies,
Just needing a bit of advice please. I start my chemo on 24th for lymph nodes, base of spine and liver. Been told it’s microscopic disease. I’m 46 soon, day before chemo and I asked the question on life expectancy. Bearing in mind I have no symptoms of secondary. I was told 6 months without treatment and 30 months with. I’ve been keeping positive and strong but mainly for everyone around me. Your posts are essential for someone like me who is now being told to not plan Christmas 2017. Just wanted your thoughts on this please and do doctors normally give such a devastating prognosis? I was also told if I didn’t have it on the liver I could have lived for years with it just in the bone x

Thank you so much Nicky08. The breast care nurse did look surprised at his estimate. I see the whole hospital this time round as totally negative. It’s everyone else around me keeping me positive. I know they can’t flower it up but it was quite a shock. I have been on a tumour reducing diet with a social scientist. Very simple. Cut sugar out of everything, drinks and food and go gluten free. It’s really not that hard but we are aiming at starving the tumours! Be interesting to see my scan results after chemo no 3. So many people praise this forum and postings from strong ladies like you are what my family read too. Thank you x

Hello Elly. Thank you so much for your reply. The chemo I am to start began with a D! He said I am to get the full whack but it won’t make me as ill as FEC did. My concern too is that I feel like I’m on a conveyor belt. My reports indicted ‘presuming cancer cells in the lower spine due to scarring’. I had a car accident in 1997 which unaligned the base of my spine but you wouldn’t know. I asked if this was the scarring yet they are unaware of my medical history. They ran an ultrasound test on my liver and again presume it is a tumour as it did not absorb liquid. I do know it’s cancerous in the axilla though as my left arm gets great pain and swells. As I’ve squeezed in an emergency week away, I’m sitting in the sun reading on cancer diets and prevention a. As none of the medics advise on this, it is so essential that we all cut out sugar and gluten. Think I may have mentioned this but I’m being advised by a Social Scientist who works closely with US Professors. Their information is the same as the kindle books I am reading. If we starve our bodies of sugar the cancer can’t function. I’m giving it a good go and this week has been hard, in the sun, with no alcohol! Just a still water for me thank you. After all, cancer just got a free holiday xxx thank you ladies, you are my strength xx

Hey ladies, just thought I would give a wee update. Results show one rogue liver tumour double in size and rest of liver tumour (I have many) and lung stable. Onc is going to do a bone scan, if there is no progression in bones I get to stay on tamoxifen and monitor growth if bones have progressed I change treatment. Mixed bad, but happy to not just go right back onto chemo. Hope you are all well in your treatments. Nicky how fix your results go? X

Fab news Nicky, really pleased for you. Will PM you sometime soon. I had CT last week - results on Wed so bit anxious at the moment.
H x

Hi all so nice to see good news, we’ve had a bit of a blip with mum she has liver mens but on last 2 scans had enlarged ovary which has continued to grow so after having a marker done on it which looked fine they’ve now decided she needs to go in to hospital and have ovarys and fallopian tubes out. Everything has been looking good regarding breast lump and liver but this has worried us. Anyone else had ovary issues??

yes i have the braca 1 gene so had my ovaries removed as a precaution. they found aa small stage 1 cancer there  so had to have a hysterectomy as well.  was out of prison, sorry hospital ,after the hysterectomy after 2 days!!  keyhole surgery.  this was 2 years ago. all good now no reocurrence. SS