Hiya all,
Now this is going to be difficult for me to explain so please bear with me?!
I have liver mets which I was diagnosed with in May 08, 5 months after finishing treatment for primary BC (which is triple neg).
Every chemo I have tried just does not seem to be working an my liver mets are getting bigger & a scan I had in feb has shown that I have deveolped a new one. I have 2 quite large tumours on my liver, one at the front of the liver, and one at the back. Tumours at last scan were 6 x 5cm and 5 x something (cant remember exactly what?) cm. Quite large…
I have tried Xeloda (which I was sensitive to so and had a lot of problems with and only managed a week!), Taxol/Gemcitabine, Vinoralbine and currently am on Cisplatin (due for my 3rd cycle on thursday and then will be booked in for a scan)
I am also taking steroids (dexamethasone)since 16th March which don’t seem to be doing anything either.
I have been on/off steriods since xmas eve and they have helped before.
Since about Jan every now and again I got a really weird sensation (which is so hard to describe) that feels like it comes up from my stomach, into my chest and heart and seems to penetrate into my head. It makes my heart race and I get very very woozy headed, like there is a lot pressure in my head and feel like im going to pass out. When it passes I am left feeling suddenly tired & shakey.
I really wish I could describe this feeling but I can’t?
It just feels…weird? Its a very unpleasant sensation.
I am finding that I am having this problem literally all the time now and happens every day. It’s got to the point where I daren’t leave the house now as it has happened twice while I have been out (in Morrisons and Focus!) and it scared the life out of me.
I have been out of the house twice in 3 weeks. Im starting to become a recluse due to fear.
I feel like the Cisplatin is either not working or it’s “egging” the cancer on as since I have been on this chemo it has got worse. Could it be possible for a chemo to “feed” the cancer?? My liver pains are worse than before so I know something isn’t right.
It’s like the cancer is pee’d off and is trying to show me who is boss!
I don’t know if it is my liver pushing on something internally and thats whats causing it or what?
I have a clinic appointment on Weds so will speak to my Onc about it, but I feel like they look at me like im stupid or making it up!
Has anyone else experienced this strange/weird sensations??
I hope this post has made some kind of sense as it is so hard to try explain it properly.
Thanks for reading this.
Julie
X X